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Hello Everyone


Holly04

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Holly04 Rookie

Hello Everyone,

My name is Holly. I just found out very recently that I do have Celiac Disease. If anyone has any suggestions about getting started on the new diet, I would appreciate it if you could try to get back to me. I had no symptoms, but I am kind of on the short side. My doctor thought it was strange because both of my parents are tall. Anyways, if anybody could get back to me, I'll appreciate it again.

Thanks,

Holly :)


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flagbabyds Collaborator

How old are you? I am 13, I don't really know much about starting the diet because I was diagnosed before I was 2 so I don't really remember what i went through because well I don't know what it was like. My name is Molly and if you have any questions you can e-mail me, my e-mail is flagbabyds@aol.com and i use that for IM as well ;)

  • 1 year later...
Guest Doct.Giggles

I am 13, and I started out by following my diet as best as I could and it seemed really easy at first. But for me it just got harder for the first year. And when I was diginosed my parents thought that it was best for me not to know that if I cheated too much I would get cancer. I was at really high risk then and I have changed. I was diginosed when I was 10 and I was just starting fifth grade and it was very hard to go into the school year knowing that you are different than everybody else and have people wonder what is wrong with that girl. I have a lot of topics started that gets into a lot of stuff like that. But I think that the diet is just a new life style and really easy to adapt to physcally but it was really hard for me mentally. :( So good luck and I hope I was helpful to you.

-Tiffany

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    • trents
      Welcome to celiac.com, @EndlessSummer! Do you react to all vegetables or just specific kinds or families of them? What you describe with green beans sounds like it has an anaphylaxis component. Like you, walnuts are a problem for me. They will often give me a scratchy throat so I try to avoid them. Does it matter if the vegies are raw or will-cooked in how you react to them?
    • EndlessSummer
      I only notice recently every time I eat green beans the roof of my mouth gets slightly itchy and I get extreme dizziness.     I get shaky and sweaty and it last for an hour or two before it goes away. I’ve been allergy tested in the past for food allergens only two came back positive (both in the tree-nut family) nothing in the legumes.   (I do have a celiac disease diagnosis, the reason I was food allergy tested was because I ate a walnut and my lips swelled up)  I decided to test this out to be sure so I ate a couple of cooked green beans last night within 15 minutes I was spinning, my shirt drenched in sweat. My heart racing.   I’m not sure what this is, I do have issues with others vegetables  as my stomach doesn’t seem to tolerate them. Even when they’re cooked I just can’t digest them but they never made me as dizzy and sweaty as the green beans.    anyone else experience this?
    • ShariW
      I have found that in addition to gluten, I am sensitive to inulin/chicory root fiber. I wondered why I had gastrointestinal symptoms after drinking a Chobani yogurt drink - much like being glutened. Happened at least twice before I figured out that it was that chicory root fiber additive. I do not react to ordinary dairy, yogurt, etc.  For the holidays, I will only be baking gluten-free treats. I got rid of all gluten-containing flours, mixes and pastas in my kitchen. Much easier to avoid cross-contamination that way!
    • Scott Adams
      It's great to hear that your gluten-free journey has been going well overall, and it's smart to be a detective when a reaction occurs. Distinguishing between a gluten cross-contamination issue and a reaction to high fiber can be tricky, as symptoms can sometimes overlap. The sudden, intense, food poisoning-like hour you experienced does sound more consistent with a specific intolerance or contamination, as a high-fiber reaction typically involves more digestive discomfort like bloating or gas that lasts longer. Since the protein bar was the only new variable, it’s a strong suspect; it's worth checking if it contains ingredients like sugar alcohols (e.g., maltitol, sorbitol) or certain fibers (inulin/chicory root) that are notorious for causing acute digestive upset, even in gluten-free products. For your holiday baking, your plan is solid: bake the gluten-free items first, use entirely separate utensils and pans (not just washed), and consider color-coding tools to avoid mix-ups. Additionally, store your gluten-free flours and ingredients well away from any airborne wheat flour, which can stay in the air for hours and settle on surfaces. Keep listening to your body and introducing new packaged foods one at a time—it’s the best way to navigate and pinpoint triggers on your journey.
    • Scott Adams
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