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Tests On A Gluten Free Diet.....

mrsnj91

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mrsnj91 Explorer
mrsnj91
Posted

I was reading the biop. thread and it had me thinking....

My DD is currently on a wheat free trial diet with the allergiest. (Not sure if you all remember my story but I am thinking it might be Celiac as we ended up on a Gluten Free diet in the end of this trial and she is doing so well. I am the "on the fence" person that posted for the 1st time last week! :lol: ) Anyway.....I know you have to be on gluten to do the biop. but do you have to be on gluten for the blood work too? I have a dr. appointment on Wed. for her and would like to mention the blood test but since she is on a Gluten Free diet currently I am not sure if I can. I dont' want to put her back on it. She is doing so good.

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nikki-uk Enthusiast
nikki-uk
Posted

-Yes,you do have to be eating gluten for the blood test to show positive.

Unfortunately if your daughter has been gluten free (or even just wheat free) for a while it's unlikely that she would have enough antibodies in her blood to show positive.

Hope that helps :)

mrsnj91 Explorer
mrsnj91
Posted
  • Author

*sigh* That is what I thought. I don't want to put her back on it. :( So the only way to know is to make her sick again. That simply doesn't make sense.

nikki-uk Enthusiast
nikki-uk
Posted

I sympathise with you!.It is mad isn't it?

I wish there was an easier way of testing!

My son is currently on a waiting list to have a biopsy(weak positive bloods)-so we have to keep him on gluten-but I hate it,It goes against the grain(no pun intended!) to actively feed your child something you KNOW is making them ill :angry:

Take comfort in the fact that you now know how to avoid your daughter being ill-even if it's not an 'official' diagnosis :)

mrsnj91 Explorer
mrsnj91
Posted
  • Author

True. But my dr. is bouncing between Celiac and just a wheat allergy. I would want to know one way or the other. Well we have an appointment this week and I will see what he says. Thanks for the info.

kempy99 Apprentice
kempy99
Posted
I sympathise with you!.It is mad isn't it?

I wish there was an easier way of testing!

Actually the testing that my 3 year old is going through right now (sent the lab pack back today) does NOT require him to be consuming gluten....and even better, it does not require blood sample, rather a stool sample -- much easier to collect from a child!!!!

We are doing our testing through a company called EnteroLab. My son's ped said that he knows of the Dr. that runs that lab and is very highly respected and regarded in the area of intestinal health. Their website is www.enterolab.com. Hope this is helpful!

Rebecca

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