SIBO test

[Sabaarya]

Hi,

Haven’t posted for a while. I feel a little bit better after my strict diet. Not sure if my iron went up though and not sure how long does it take for ferritin levels to go back to normal. Had SIBO test last week and results are negative for SIBO hydrogen but elevated methane level. Does anyone have the same thing? 

[Scott Adams]

SIBO is a common issue, and in your case could definitely be related to your recent celiac disease diagnosis. Hopefully your strict gluten-free diet will help with both your ferritin and SIBO issues, but this can take time. The average time to recover after a CD diagnosis is around two years. It is possible that your SIBO issue may need to be treated with antibiotics, which would likely speed up this process, and hopefully you can discuss this with your doctor.

Here is a quick search for others who have posted about SIBO on Celiac.com:

https://www.celiac.com/search/?q=SIBO&quick=1

[Sabaarya]

41 minutes ago, Scott Adams said:

SIBO is a common issue, and in your case could definitely be related to your recent celiac disease diagnosis. Hopefully your strict gluten-free diet will help with both your ferritin and SIBO issues, but this can take time. The average time to recover after a celiac disease diagnosis is around two years. It is possible that your SIBO issue may need to be treated with antibiotics, which would likely speed up this process, and hopefully you can discuss this with your doctor.

Here is a quick search for others who have posted about SIBO on Celiac.com:

https://www.celiac.com/search/?q=SIBO&quick=1

Thank you:).

I was told that my SIBO is negative but methane level was elevated. My doctor said it might be related to bloating and gas. Anyways after coming back to LA I will discuss it with my doctor. I asked him if I need antibiotic treatments for methane but he hasn’t responded yet. I was also told that my celiac is mild but it’s Marsh 3A I don’t think it should be considered mild, I’m not doctor but I think stage 3 is actual damage. Can I ask what was your Marsh score and how long did it take for you to heal ?

thank you so much

[Scott Adams]

I don't think that is mild either, and it can take a year or more on a 100% gluten-free diet to fully heal. I don't think the Marsh scale was in use when I was diagnosed, but I do know that my gastro said that the damage was visible to the naked eye. I believe it took me closer to 2 years to feel like I had recovered, but I know that I had issues avoiding contamination, especially because I did eat out regularly.