Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Possible Celiac?


VictoriaSmith

Recommended Posts

VictoriaSmith Explorer
14 hours ago, Wheatwacked said:

Good to hear.  Isn't it amazing how quick the response is? Whatever diagnosis they choose to come up with, I think GFD Is the way to go. 

Low A/G can be an indicator of low IgG and I believe low IgG can return inaccutate Celiac blood tests? 

 

It is amazing how quick the response was! Im starting to notice some small results in my psoriasis as well, less redness. Hopefully I'll continue to have some improvement there.

Now if I can get this pesky tingling, joint/muscle pain and headaches to go away I'll feel so much better. Still taking the vitamins, so hopefully that will eventually show some results too. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 55
  • Created
  • Last Reply

Top Posters In This Topic

  • VictoriaSmith

    27

  • Wheatwacked

    9

  • trents

    8

  • knitty kitty

    6

Top Posters In This Topic

  • VictoriaSmith

    VictoriaSmith 27 posts

  • Wheatwacked

    Wheatwacked 9 posts

  • trents

    trents 8 posts

  • knitty kitty

    knitty kitty 6 posts

VictoriaSmith Explorer

I've also made an appointment for my eye doctor on Tuesday, since my vision has gotten worse recently. 

Eyes are more sensitive to light and bright colors, notice more floaters/bright spots and they hurt alot.

I'm legally blind in my left eye and have always had double vision because of it. Lazy Eye on left with Astigmatism in both. But I've recently been experiencing double vision in my good eye.

Also few years back he discovered a few choroidal nevus in both eyes, a couple being of some larger than he liked sizes. Also was showing some signs of Glaucoma with my pressure, but nothing too concerning right then in that area.

Maybe he can take a look and see if there's some indicators there everyone else has missed. 

Wheatwacked Veteran

"The combination of vitamins B6, B9 and B12 may help reduce your risk of developing AMD by lowering your homocysteine levels.."

The 9 Most Important Vitamins for Eye Health

Synthetic vitamin A, E and folic acid are often fortified in that stuff we don't eat anymore. Which is actually a benefit because these manufactured vitamins are connected to increased cancers. Good source of vitamin A: red fruits and vegatables; vitamin E: 60 grams of almonds = RDA; Folate: beans. 

I knew about homocysteine and B6, Folate (B9) and B12 and though it is ignored, Choline is integral to lowering homocysteine, but its connection to eye health was an "eye opener" 

Another reason to increase thiamin (B1) they don't tell us about. "A clinical study found that 100 mg of thiamine taken three times daily reduced the amount of albumin in urine — an indication of DR [diabetic retinopathy] in type 2 diabetes"

I wear bifocal contacts in my left eye -10.5 diopter and they don't make a bifocal strong enough for my right eye. Had cataracts in both. In my Diabetic retinopathy checkup the optomotrist affirmed my regular optomotrist statement that it was gone. Right eye has also improved. 

Best Eye drops in my opinion. Vision Clarity Eye Drops, 2 Pack (5mL Bottles) Lubricating Antioxidant Eye Drops for Dry Eyes - Low pH, Pharmaceutical Grade to Nourish, Moisturize and ProtectVision Clarity Eye Drops, 2 Pack (5mL Bottles)

Vitamin E Harms More Than It Helps Supplement No Help for Cancer, Heart, Stroke -- but Increases Heart Failure Risk

"In the CARET trial, which was the only study to evaluate incidence, vitamin A (25,000 IU daily) plus beta-carotene (30 mg daily) was associated with an increased risk of lung cancer incidence and mortality after 4 years, with the mortality risk persisting up to 6 years. Vitamin A and Cancer

"The problem is that many foods have folic acid added to them. All grains in the United States must have 25 micrograms of folic acid added per serving. That is not enough to be a problem. However, some cereals add a lot more than 25 micrograms. Some cereals have 400 micrograms of folic acid in one serving. That's the same amount that it is your multivitamin tablet! That could bump your intake up to 800 micrograms or more a day." https://www.uab.edu/shp/nutritiontrends/nutrition-know-how/consumer-concerns/folic-acid-and-cancer#:~:text=Folic acid plays a role,cells to grow more easily.

On labels in the US folic acid and folate are used interchangebly.

"Folic acid supplementation may prevent initiation and early promotion of cancer development but it may promote the progression of established precancerous and cancer cells"   Folate and cancer: a tale of Dr. Jekyll and Mr. Hyde? | The American Journal of Clinical Nutrition | Oxford Academic (oup.com)

 

VictoriaSmith Explorer
12 hours ago, Wheatwacked said:

"The combination of vitamins B6, B9 and B12 may help reduce your risk of developing AMD by lowering your homocysteine levels.."

The 9 Most Important Vitamins for Eye Health

Synthetic vitamin A, E and folic acid are often fortified in that stuff we don't eat anymore. Which is actually a benefit because these manufactured vitamins are connected to increased cancers. Good source of vitamin A: red fruits and vegatables; vitamin E: 60 grams of almonds = RDA; Folate: beans. 

I knew about homocysteine and B6, Folate (B9) and B12 and though it is ignored, Choline is integral to lowering homocysteine, but its connection to eye health was an "eye opener" 

Another reason to increase thiamin (B1) they don't tell us about. "A clinical study found that 100 mg of thiamine taken three times daily reduced the amount of albumin in urine — an indication of DR [diabetic retinopathy] in type 2 diabetes"

I wear bifocal contacts in my left eye -10.5 diopter and they don't make a bifocal strong enough for my right eye. Had cataracts in both. In my Diabetic retinopathy checkup the optomotrist affirmed my regular optomotrist statement that it was gone. Right eye has also improved. 

Best Eye drops in my opinion. Vision Clarity Eye Drops, 2 Pack (5mL Bottles) Lubricating Antioxidant Eye Drops for Dry Eyes - Low pH, Pharmaceutical Grade to Nourish, Moisturize and ProtectVision Clarity Eye Drops, 2 Pack (5mL Bottles)

Vitamin E Harms More Than It Helps Supplement No Help for Cancer, Heart, Stroke -- but Increases Heart Failure Risk

"In the CARET trial, which was the only study to evaluate incidence, vitamin A (25,000 IU daily) plus beta-carotene (30 mg daily) was associated with an increased risk of lung cancer incidence and mortality after 4 years, with the mortality risk persisting up to 6 years. Vitamin A and Cancer

"The problem is that many foods have folic acid added to them. All grains in the United States must have 25 micrograms of folic acid added per serving. That is not enough to be a problem. However, some cereals add a lot more than 25 micrograms. Some cereals have 400 micrograms of folic acid in one serving. That's the same amount that it is your multivitamin tablet! That could bump your intake up to 800 micrograms or more a day." https://www.uab.edu/shp/nutritiontrends/nutrition-know-how/consumer-concerns/folic-acid-and-cancer#:~:text=Folic acid plays a role,cells to grow more easily.

On labels in the US folic acid and folate are used interchangebly.

"Folic acid supplementation may prevent initiation and early promotion of cancer development but it may promote the progression of established precancerous and cancer cells"   Folate and cancer: a tale of Dr. Jekyll and Mr. Hyde? | The American Journal of Clinical Nutrition | Oxford Academic (oup.com)

 

That is really interesting! 

So Diabetics can improve or better manage their DR with Thiamine? My husband is Type 1 (Diagnosed at 9) and he was diagnosed with Diabetic Retinopathy last year. Been doing the shots in his right once a month and recently done the laser in his left. The right eye has greatly improved, and they seemed to caught the left one early enough. 

I'm glad to hear yours has improved

You'd think the FDA would put more restrictions on what goes into our food and what manufacturers have to report is in it. Going gluten-free has really opened my eyes to what is in our food and what they don't have to list. 

knitty kitty Grand Master
(edited)

This article is very interesting.

https://eandv.biomedcentral.com/articles/10.1186/s40662-020-00199-y

Nutritional and medical food therapies for diabetic retinopathy

 

My type two diabetes is under control with thiamine supplementation and Autoimmune Protocol Diet.  

Edited by knitty kitty
Added post script
VictoriaSmith Explorer

Got good news at the eye doctor yesterday! 

I read 20/20 in my good eye (right) for the first time. I've always been 20/60 in that one. My Astigmatism and Farsightedness has improved as well. My left eye is still the same 20/200 but didn't expect improvements there anyhow. 

The chordial nevus in both eyes was the same, no increase in size there. Everything else looked good as well. 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,746
    • Most Online (within 30 mins)
      7,748

    Hughesy
    Newest Member
    Hughesy
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Russ H
      The EMA test is an old and less sensitive test for anti-tTG2 antibodies. It relies on a technician using a microscope to check for fluorescence of a labelled substrate (typically monkey oesophagus or human umbilicus), giving a simple positive/negative result. It is similar to running a standard anti-tTG2 test but with a high cut-off, making it more specific but less sensitive. Transient rises in tTG2 can be caused by e.g. viral infections and inflammation. Very high levels of anti-tTG2 (>x10 standard range) are almost certainly coeliac disease but moderately raised levels can have several causes apart from coeliac disease. Other food allergies can cause villi blunting but that is much rarer than coeliac disease or other non-coeliac causes. Not All That Flattens Villi Is Celiac Disease: A Review of Enteropathies
    • Theresa2407
      Maybe you have a low  intolerance to Wheat.   Rye, Barley and Malt are the gluten in Celiac disease.  It has always been stated Wheat and Gluten, not just a Wheat intolerance.  Barley will keep me in bed for (2) weeks.  Gut, Migrains, Brain fog, Diahrea.  It is miserable.  And when I was a toddler the doctor would give me a malt medicine because I always had Anemia and did not grow.  Boy was he off.  But at that time the US didn't know anyone about Celiac.  This was the 1940s and 50s.  I had my first episode at 9 months and did not get a diagnosis until I was 50.  My immune system was so shot before being diagnoised, so now I live with the consequences of it. I was so upset when Manufacturers didn't want to label their products so they added barley to the product.  It was mostly the cereal industry.  3 of my favorite cereals were excluded because of this. Malt gives me a bad Gut reaction.
    • Gigi2025
      Thanks much Scott.  Well said, and heeded.   I don't have Celiac, which is fortunate.
    • Scott Adams
      Do you have the results of your endoscopy? Did you do a celiac disease blood panel before that?  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      It is odd that your Tissue Transglutaminase (TTG) IgA level has bounced from the "inconclusive" range (7.9, 9.8) down to a negative level (5.3), only to climb back up near the positive threshold. This inconsistency, coupled with your ongoing symptoms of malabsorption and specific nutrient deficiencies, is a strong clinical indicator that warrants a more thorough investigation than a simple "satisfactory" sign-off. A negative blood test does not definitively rule out celiac disease, especially with such variable numbers and a classic symptomatic picture. You are absolutely right to seek a second opinion and push for a referral to a gastroenterologist. A biopsy remains the gold standard for a reason, and advocating for one is the most direct path to getting the answers you need to finally address the root cause of your suffering. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.