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Possible Celiac?


VictoriaSmith

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VictoriaSmith Explorer
14 hours ago, Wheatwacked said:

Good to hear.  Isn't it amazing how quick the response is? Whatever diagnosis they choose to come up with, I think GFD Is the way to go. 

Low A/G can be an indicator of low IgG and I believe low IgG can return inaccutate Celiac blood tests? 

 

It is amazing how quick the response was! Im starting to notice some small results in my psoriasis as well, less redness. Hopefully I'll continue to have some improvement there.

Now if I can get this pesky tingling, joint/muscle pain and headaches to go away I'll feel so much better. Still taking the vitamins, so hopefully that will eventually show some results too. 


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VictoriaSmith Explorer

I've also made an appointment for my eye doctor on Tuesday, since my vision has gotten worse recently. 

Eyes are more sensitive to light and bright colors, notice more floaters/bright spots and they hurt alot.

I'm legally blind in my left eye and have always had double vision because of it. Lazy Eye on left with Astigmatism in both. But I've recently been experiencing double vision in my good eye.

Also few years back he discovered a few choroidal nevus in both eyes, a couple being of some larger than he liked sizes. Also was showing some signs of Glaucoma with my pressure, but nothing too concerning right then in that area.

Maybe he can take a look and see if there's some indicators there everyone else has missed. 

Wheatwacked Veteran

"The combination of vitamins B6, B9 and B12 may help reduce your risk of developing AMD by lowering your homocysteine levels.."

The 9 Most Important Vitamins for Eye Health

Synthetic vitamin A, E and folic acid are often fortified in that stuff we don't eat anymore. Which is actually a benefit because these manufactured vitamins are connected to increased cancers. Good source of vitamin A: red fruits and vegatables; vitamin E: 60 grams of almonds = RDA; Folate: beans. 

I knew about homocysteine and B6, Folate (B9) and B12 and though it is ignored, Choline is integral to lowering homocysteine, but its connection to eye health was an "eye opener" 

Another reason to increase thiamin (B1) they don't tell us about. "A clinical study found that 100 mg of thiamine taken three times daily reduced the amount of albumin in urine — an indication of DR [diabetic retinopathy] in type 2 diabetes"

I wear bifocal contacts in my left eye -10.5 diopter and they don't make a bifocal strong enough for my right eye. Had cataracts in both. In my Diabetic retinopathy checkup the optomotrist affirmed my regular optomotrist statement that it was gone. Right eye has also improved. 

Best Eye drops in my opinion. Vision Clarity Eye Drops, 2 Pack (5mL Bottles) Lubricating Antioxidant Eye Drops for Dry Eyes - Low pH, Pharmaceutical Grade to Nourish, Moisturize and ProtectVision Clarity Eye Drops, 2 Pack (5mL Bottles)

Vitamin E Harms More Than It Helps Supplement No Help for Cancer, Heart, Stroke -- but Increases Heart Failure Risk

"In the CARET trial, which was the only study to evaluate incidence, vitamin A (25,000 IU daily) plus beta-carotene (30 mg daily) was associated with an increased risk of lung cancer incidence and mortality after 4 years, with the mortality risk persisting up to 6 years. Vitamin A and Cancer

"The problem is that many foods have folic acid added to them. All grains in the United States must have 25 micrograms of folic acid added per serving. That is not enough to be a problem. However, some cereals add a lot more than 25 micrograms. Some cereals have 400 micrograms of folic acid in one serving. That's the same amount that it is your multivitamin tablet! That could bump your intake up to 800 micrograms or more a day." https://www.uab.edu/shp/nutritiontrends/nutrition-know-how/consumer-concerns/folic-acid-and-cancer#:~:text=Folic acid plays a role,cells to grow more easily.

On labels in the US folic acid and folate are used interchangebly.

"Folic acid supplementation may prevent initiation and early promotion of cancer development but it may promote the progression of established precancerous and cancer cells"   Folate and cancer: a tale of Dr. Jekyll and Mr. Hyde? | The American Journal of Clinical Nutrition | Oxford Academic (oup.com)

 

VictoriaSmith Explorer
12 hours ago, Wheatwacked said:

"The combination of vitamins B6, B9 and B12 may help reduce your risk of developing AMD by lowering your homocysteine levels.."

The 9 Most Important Vitamins for Eye Health

Synthetic vitamin A, E and folic acid are often fortified in that stuff we don't eat anymore. Which is actually a benefit because these manufactured vitamins are connected to increased cancers. Good source of vitamin A: red fruits and vegatables; vitamin E: 60 grams of almonds = RDA; Folate: beans. 

I knew about homocysteine and B6, Folate (B9) and B12 and though it is ignored, Choline is integral to lowering homocysteine, but its connection to eye health was an "eye opener" 

Another reason to increase thiamin (B1) they don't tell us about. "A clinical study found that 100 mg of thiamine taken three times daily reduced the amount of albumin in urine — an indication of DR [diabetic retinopathy] in type 2 diabetes"

I wear bifocal contacts in my left eye -10.5 diopter and they don't make a bifocal strong enough for my right eye. Had cataracts in both. In my Diabetic retinopathy checkup the optomotrist affirmed my regular optomotrist statement that it was gone. Right eye has also improved. 

Best Eye drops in my opinion. Vision Clarity Eye Drops, 2 Pack (5mL Bottles) Lubricating Antioxidant Eye Drops for Dry Eyes - Low pH, Pharmaceutical Grade to Nourish, Moisturize and ProtectVision Clarity Eye Drops, 2 Pack (5mL Bottles)

Vitamin E Harms More Than It Helps Supplement No Help for Cancer, Heart, Stroke -- but Increases Heart Failure Risk

"In the CARET trial, which was the only study to evaluate incidence, vitamin A (25,000 IU daily) plus beta-carotene (30 mg daily) was associated with an increased risk of lung cancer incidence and mortality after 4 years, with the mortality risk persisting up to 6 years. Vitamin A and Cancer

"The problem is that many foods have folic acid added to them. All grains in the United States must have 25 micrograms of folic acid added per serving. That is not enough to be a problem. However, some cereals add a lot more than 25 micrograms. Some cereals have 400 micrograms of folic acid in one serving. That's the same amount that it is your multivitamin tablet! That could bump your intake up to 800 micrograms or more a day." https://www.uab.edu/shp/nutritiontrends/nutrition-know-how/consumer-concerns/folic-acid-and-cancer#:~:text=Folic acid plays a role,cells to grow more easily.

On labels in the US folic acid and folate are used interchangebly.

"Folic acid supplementation may prevent initiation and early promotion of cancer development but it may promote the progression of established precancerous and cancer cells"   Folate and cancer: a tale of Dr. Jekyll and Mr. Hyde? | The American Journal of Clinical Nutrition | Oxford Academic (oup.com)

 

That is really interesting! 

So Diabetics can improve or better manage their DR with Thiamine? My husband is Type 1 (Diagnosed at 9) and he was diagnosed with Diabetic Retinopathy last year. Been doing the shots in his right once a month and recently done the laser in his left. The right eye has greatly improved, and they seemed to caught the left one early enough. 

I'm glad to hear yours has improved

You'd think the FDA would put more restrictions on what goes into our food and what manufacturers have to report is in it. Going gluten-free has really opened my eyes to what is in our food and what they don't have to list. 

knitty kitty Grand Master
(edited)

This article is very interesting.

https://eandv.biomedcentral.com/articles/10.1186/s40662-020-00199-y

Nutritional and medical food therapies for diabetic retinopathy

 

My type two diabetes is under control with thiamine supplementation and Autoimmune Protocol Diet.  

Edited by knitty kitty
Added post script
VictoriaSmith Explorer

Got good news at the eye doctor yesterday! 

I read 20/20 in my good eye (right) for the first time. I've always been 20/60 in that one. My Astigmatism and Farsightedness has improved as well. My left eye is still the same 20/200 but didn't expect improvements there anyhow. 

The chordial nevus in both eyes was the same, no increase in size there. Everything else looked good as well. 

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    • knitty kitty
      Welcome to the forum, @AnneBSunflower, I have Hashimoto's, too.  I've learned some things that have helped with mine. This study says it's common to find anti gluten antibodies in Hashimoto's.  So antibodies aren't necessarily due to gluten ingestion.   https://pubmed.ncbi.nlm.nih.gov/31149170/   Take a B Complex supplement and Benfotiamine, a form of thiamine shown to promote intestinal healing, and Vitamin C.  This study found a higher rate of thiamine and Vitamin C deficiencies in people with Hashimoto's.   https://pubmed.ncbi.nlm.nih.gov/37278003/   Try cutting back on the amount of iodine in your diet.  Iodine, even in small amounts, can stimulate the thyroid which in turn stimulates the immune system which increases antibody production.   Dairy and eggs are high in iodine.  Switch from iodized salt to Pink Himalayan salt.   https://pubmed.ncbi.nlm.nih.gov/9703374/   Supplement with Selenium, a mineral that helps the thyroid function and calms the immune response in the thyroid.   https://pubmed.ncbi.nlm.nih.gov/37033262/ Hope this helps!  Keep us posted on your progress!
    • knitty kitty
      @Rejoicephd, Would you consider adding a B Complex to your supplements?   I was taking a multivitamin and still became deficient.  There's a question as to how well multivitamins dissolve in the digestive system.   I found taking a B Complex and Benfotiamine, a form of thiamine shown to promote intestinal healing, very beneficial in my recovery.   Some B Complex supplements use Thiamine Mononitrate which is not well absorbed nor utilized by the body.  Thiamine Hydrochloride is better.  Benfotiamine is easily absorbed.  If not needed, the B vitamins are easily excreted. High B12 out of the blue could be masking a lack of other vitamins that work with B12, like Folate B 9, Pyridoxine B 6, and Thiamine B 1. Meats and liver are great sources of B vitamins.  B vitamins are needed to make digestive enzymes that digest protein, fats, and carbohydrates.   Do keep in mind that most gluten free processed facsimile foods are not required to be enriched with vitamins and minerals lost in processing like their gluten containing counterparts.  The more carbohydrates you eat, the more Thiamine is needed to process them into energy instead of storing them as fat.   Hope this helps!  Keep us posted on your progress.
    • knitty kitty
      @kopiq,  Your case is not hopeless.  Doctors are not required to learn much about nutrition.  Celiac Disease causes damage to the lining of the small intestines resulting in malabsorption of essential vitamins and minerals.  The eight essential B vitamins  and the four fat soluble vitamins (A, D, E, and K) are chemical compounds that our bodies cannot make, so we must get them from what we eat.  If we're not absorbing sufficient amounts from our food, then supplementing with vitamins and minerals help boost our ability to absorb them.  The B vitamins are safe and water soluble, easily excreted in urine if not needed or not absorbed.  Essential minerals are important, too.  Magnesium and Thiamine make life sustaining enzymes together.   Blood tests for the B vitamins are notoriously inaccurate.  By the time a deficiency shows up in the blood, you've been deficient for a few years. The best way to tell is to try taking a  B Complex and looking for health improvements. Taking a B Complex and Benfotiamine, a form of thiamine shown to promote intestinal healing, helped me immensely.  I also took Vitamin D and Magnesium Glycinate and others. Did your doctor offer any treatment to correct your critically low Vitamin D level?   Mine was lower than yours.  My doctor prescribed the less bioavailable form D2.  Our bodies utilize the D3 form better.  I bought over the counter Vitamin D3 supplements (1000 IU) and took several with each meal.  Taking high doses of Vitamin D to correct a deficiency is safe and very effective at improving health.  I started feeling better quickly.  Vitamin D helps regulate the immune system and lower inflammation, as well as makes hormones. Laying out in the sun cannot correct a Vitamin D deficiency unless you're below the 33rd parallel (on a tropical island with abundant exposed skin for several months).  Ultraviolet rays from the sun destroy the thiamine in the body.  That feeling of lethargy is because the sun exposure broke down thiamine into unusable pieces.  Thiamine and the B vitamins make ATP, the energy currency the body requires to function, to make digestive enzymes, to regulate body temperature, to think, to heal itself.  We need more Thiamine when we're outdoors in hot weather, working or exercising.  Thiamine deficiency doesn't cause heat stroke, but thiamine deficiency can make heat stroke symptoms worse.  We need more Thiamine when we're physically ill or injured or undergoing medical procedures.  We need more Thiamine when we're emotionally stressed or traumatized.  Anxiety and depression are very early symptoms of thiamine and other nutritional deficiencies.   Rashes can be caused by deficiencies in Niacin B3, Vitamin A, or Vitamin C.  Some rashes can become worse with exposure to sunlight.   The B vitamins are needed to make digestive enzymes that will help you digest fat and proteins better.  Meats are an excellent source of B vitamins.  Sweet potato and plantain are high in carbohydrates.  The more carbohydrates one eats, there is a greater metabolic need for thiamine to turn them into energy, ATP. Can your doctor refer you to a dietician or nutritionist?
    • Rejoicephd
      Thank you @cristiana.  Its really helpful to hear your experience, thanks for sharing.  8 years is a long time!  And its also good to know that others have experienced worsening before it gets better.  I've just started doing the food diary recently, and I'll keep that going. It's at least helping me try to get a handle on this, and also helps increase my overall awareness of what I'm putting in my body. I will also message my GI doc in the meantime too.  Thanks, it's really helpful to talk through this.  
    • trents
      Yes, the development of additional food intolerances is a common spinoff of celiac disease. To ensure valid testing after beginning a "gluten challenge" you would need to be consuming at least 10g of gluten daily (about the amount in 4-6 slices of wheat bread) for at least two weeks. Many cannot follow through with this regimen, however, as their intolerance reactions are just too strong and present too much health risk.
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