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  • Recent Activity

    1. - trents replied to DanteZaffar's topic in Related Issues & Disorders
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      Young celiac person looking for advice

    2. - Beagirl replied to Beagirl's topic in Coping with Celiac Disease
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    3. - Scott Adams replied to HeloIP's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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    5. - DanteZaffar posted a topic in Related Issues & Disorders
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      Young celiac person looking for advice


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  • Posts

    • trents
      Welcome to the forum, @DanteZaffar! Are you still eating oats (even gluten free oats) and dairy? There are other foods besides those that contain gluten that can cause celiac-like reactions. We call this "cross reactivity" (not to be confused with cross contamination). Their proteins are similar enough in structure to gluten to trigger the same kind of reaction. Oats and dairy are perhaps the most common offenders. You might try eliminating these two from your diet for awhile and see if symptoms improve.
    • Beagirl
      I thank all who have replied to my initial comment. After letting it sink in for a few days and since eliminating gluten I have to say I do feel some better so all is not lost. I have investigated and there are lots of gluten free choices I can make without giving up really anything. At some point I will attempt to make my own gluten free bread when I have nothing else to do and see how that works. I got to thinking even though annoying it's not the end of the world, this problem is manageable, and it can be a learning curve for sure. Maybe this is just another part of the aging process so I better get used to it. Thank you all again. 
    • Scott Adams
      This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      if it is an event, you would need to post that in our calendar.
    • DanteZaffar
      Hello, I’m only 20 and recently got diagnosed with celiac disease. I’ve been gluten free for around 2-3 months now but still feel miserable with bouts of gi symptoms that can come and go. I’m not sure what I’m doing wrong since I’ve cut back on a lot of food and eat more Whole Foods alongside using my own plates and such to  avoid possible sites of cross continuation. Recently my gi symptoms seemed to have gotten better but now I’m having a tension headache and some bouts of anxiety which were characteristic of my state when I first started out in the gluten free diet. Am I doing something wrong for these symptoms to come and go randomly??? Or is this normal for the healing process to be so random. I’m scared that I might have unresponsive celiac or refractory even though it would be highly unlikely…
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