7 Month Very Sensitive To All Wheat

[Rilith]

Hiya, I'm a newbie to this site. I am from the UK.

I have 2 boys aged 7 & 4 and a 7 month old little Girl called Holly. Holly was born with Downs and has some complex heart defects. We have also recently found out that she is very very sensitive to gluten.

She has symptoms of diarrhoea, bloating, runny nose, thick mucus that sticks to her chest making her cough, and failure to thrive. Good thing is she is tube fed her milk feeds ATM but I am having a nightmare time with weaning.

She is eating basic root veg and fresh fruit (not a bad diet really..LOL) but I just don't know what to give her fo her breakfasts.

We are just waiting to see her Paed to find out if they will test her for Coeliacs, once it is confirmed I will be able to get bread and pasta from the NHS.

What do you give your little ones for breakfast???

[Tony'sMom]

Have you tried baby rice cereal? My little ones were always able to tolerate that. My 9 month old also enjoys eating yogurt and scrambled egg yolks. You may want to ask your ped about the egg yolks, different doctors say different things. Applesauce is a big hit here also.

I hope that helps a bit.

[Fiddle-Faddle]

Welcome to the board! You'll find many of us who have children with various issues--my oldest has Asperger's and heart problems.

You mention trouble with weaning--are you weaning her from the tube-feeding, or from the breast? If she's only 7 months old, is there a reason to wean?

[Lucas' mum]

Hi there, I am also new to the board and in the uk. My son Lucas (9 months) has been showing signs of celiacs for a while and as there is a family genetic history we are now on a gluten free trial (which is going very well). We have used the following breakfast ideas, hope they help.

Hipp organic breakfast cereals are almost all gluten free. Also their pots of fruit purees work well for breakfasts.

Mashed baked banana and avocado with yoghurt (we are dairy free too at the moments so its soya yoghurt).

Gluten free toast fingers

and for a big breakfast... beans, scrambled egg and ham strips.

Hope that helps a bit

Paula x

[TCA]

My daughter just turned 1 and is also gluten intolerant. She has had one open heart surgery for pulmonary atresia and the 2nd is planned for August. She has a G-tube and we have unsuccessfully tried EVERYTHING under the sun to supplement my breast milk with to give her more calories. The most recent was formula called Compleat Pediatric which she proceeded to projectile vomit, as she has everything else. The only thing that works for her is a mixtures of Gerber Chicken, Gerber Prunes, and pureed avocado mixed in with the breast milk (I'm pumping and will continue for a while) and giving through her feeding tubes. She is now taking a few bottles a day of about 1.5 oz. Since she can't have the typical starter foods, we've become very imaginative. we're finding she does better with foods that she can control and not with things on a spoon. She's not eating, but chewing on things. I've found that she will at least taste Cheetos Puffs, Fritos Corn chips, Rice crackers, and meringue cookies. Anything on a spoon makes her gag uncontrollably. It's really pitiful. I hope your baby doesn't have as many issues, but it does sound that they have some in common. I do hope you find some good solutions soon.

I also have found a medical journal paper linking celiac to down's and heart defects. We both already know about the link between heart defects and downs. Let me know if you're interested....

[Fiddle-Faddle]

Anything on a spoon makes her gag uncontrollably.

My oldest son (the one who had open heart surgery) gagged on all kinds of things, too, including rice cereal (unless it was very soupy with breast milk). What did work (when he was well over a year) was soups--miso soup, chicken broth (real, not canned), and eventually I made soup with beans, ground meat, all kinds of vegies, and rice. When he was about a year old, he liked hummous, which I thought was very nutritious. I was amazed he didn't gag on it when he did gag on rice cereal (I did water it down a bit), and myhusband thought it was very funny to have a baby with garlic breath!

Bless you for pumping for your baby--I know how tough it is to pump! Hang in there!