Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Kamakazi Weekend


Mandy F.

Recommended Posts

Mandy F. Apprentice

O.k. so, I cheated. And I decided that if I was going to do it, I'd go big... so for all of you out there who have major reactions, I ate some gluten for you too. :D

On Friday, I had a banquet for work. The menu looked like it would be pretty easy to navigate, but when I got there, it got harder. The Beef and Chicken were both in gravy, it was buffet style so the salad got some croutons in it, and the potatoes had some kind of seasoning on them that made them seem a bit questionable to me... I was starving, though, and just decided to eat it anyway knowing that I don't have any major reactions. While I was at it, I had two peices of cake (I've missed cake so much and it was so so so so good!!!) because I figured "eh, I've already been glutened, why not?"

Well, after Friday, I decided to make this weekend my very last gluten weekend ever and decided to make it count.

I had Krispy Kreme doughnuts for breakfast on Saturday... but didn't eat any gluten for the rest of the day.

Then for the Grand Finale, my friend and I went to the Cheesecake Factory. I got a meal that I figured would be low on gluten then got a piece of Strawberry Cheesecake. I'm definetly going to learn to make a gluten-free cheesecake...

I suppose this was my first (and last :rolleyes: ) test of the diet and I have learned my lesson. I was so fatigued that I lived on coffee for the weekend and found that I spent a great deal more time in the bathroom this weekend as well.

I guess all I can really say is "Gluten -- you will be missed!" :lol:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Kaycee Collaborator

Mandy you are real real bad. It makes my dabble with gluten seem hardly worth mentioning. But I will mention it.

After a month of going gluten free I had the tiniest little bit of kfc, and I mean tiny, and a snack pack of crisps, which contained flour in. This was all eaten undercove, in the bathroom, because I would've been given a severe telling off from husband and sons. They went through a stage of making sure I was eating the right thing, and that was done while they were eating chocolate biscuits I might add. Within an hour or so, of eating the offending articles, the reactions started. I got wind and burps in my stomach, but what surprised me was a cough and nasal congestion that lasted for about an hour. Does that happen to anyone else? Then about 3 hours later I had rumbles in my bowels. And then it took a week to come right.

And last night I must have had a bit of gluten as I had the same reactions, within a couple of hours of my meal, without the nasal congestion, but I still had the cough. It must have been the pickle! So by deliberately sabotaging my diet a few weeks back, I knew almost immediately last night what was going on

I had to try the gluten as I wanted to know what sort of reaction I would have, and of course it is so different to reactions I had before being diagnosed. It is a total different ball game now. But it scares me enough not to deliberately eat anything with gluten in it.

Cathy

Life is too short for bad coffee!

BoulderEm Newbie

I get nasal congestion too, where my nose turns red and I can't breathe through it for about an hour or so...weird.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    2. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    4. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    5. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      High TTG-IgG and Normal TTG-IgA

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,849
    • Most Online (within 30 mins)
      7,748

    Jadelucia
    Newest Member
    Jadelucia
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.