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Secondary Food Allergies


manja

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manja Apprentice

Hi,

I got diagnosed with gluten sensitivity in April using Enterolab and I am gluten free since.

Currently I have so many secondary food allergies I wonder do I actually have celiac disease?

Does anyone understand the link between gluten and secondary food allergies?

I am allergic to dairy, nightshades (bad), caffein, bananas, potatos, and corn (really bad).

(Also have hashimoto disease.)


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Ursa Major Collaborator

Actually, I've wondered the same thing, as I have even more intolerances than you. But yes, I definitely have celiac disease as well as those other intolerances. I challenged it a few times by eating gluten, and the result wasn't pretty, believe me. Of course, I've had no testing at all (other than a probably botched skin biopsy for DH, and I'll be getting the results for that on June 5th), and only my 'gut' feeling to go on.

It is possible that you will outgrow some of those intolerances over time, as your intestines heal. But don't count on it.

MustLoveGoblins Newbie
Does anyone understand the link between gluten and secondary food allergies?

I'm sure someone with more experience will come along and explain this better than me, but from what I've read an intolerance to gluten can cause Leaky Gut Syndrome, which is pretty much what it sounds like. The inflamed gut lets food particles escape into the bloodstream, where they're attacked by your immune system because they're seen as foreign. This of course teaches your body to go full out on attack mode whenever these foods are encountered in the future, which will give you an "allergic reaction." It does sound like, after you've eliminated gluten and your gut has healed (3-6 months, I read), you may be able to tolerate these foods again. I hope this is the case, because I had secondary allergies when I was tested too (and it's a pain to be gluten free when you can't have dairy, nuts, and eggs either).

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manja Apprentice

Hi Ursula,

Thank you for your response.

Now that I am feeling a little bit more in control of things I am wondering what other tests I could get done in the long term. I know about the biopsy, which is going to let me know how bad things are. I might get it done in a few months. (I'll be moving in July and don't feel like dealing with two sets of doctors.)

I don't mind being gluten free and taking care of all the secondary allergies I have. I feel so much better now than 5 weeks ago. I am a little scared about finding out about other secondary allergies. My reaction to corn is pretty intense.

Therefore, I am sticking to eating about 6 kinds of vegetables, 4 fruits, basmati rice, meat, seafood and olive oil.

I still think that I am not "totally awake" yet. Don't ask me to do math problems at this point.

I also have problems remembering faces and names. Sometimes simple words don't come to my mind. I feel like I have too many pregnant pauses, although I am not pregnant. :)

It is probably a good idea to get calcium levels checked as well, what else ... ?

Wuerde mich ueber eine Antwort freuen. Manja

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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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