Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Looking For Doctor In Baltimore, Md Area


haphenomenon

Recommended Posts

haphenomenon Newbie

I have been gluten free for almost a year now, but have had no positive diagnosis. I had one doctor (gastroenterologist) who didnt really listen and prescribed a drug called raglan- which "empties the stomach out faster" in his words.

I started to read up myself and decided to stop eating wheat, at which point my symptoms decreased and I started feeling better. The doctor accepted this and even though the blood test was negative prescribed me to believe I have wheat sensitivity and stick with it. Needless to say I dont want to return to him.

I have further deduced that it is gluten I am sensitive to as I have almost immediate reactions of bleching and cramps. Well, after joining this forum and reading and looking into the enterolab tests I find myself wanting a definitive diagnosis. I am wondering if there is a doctor not only willing to accept the results but possible insurance coverage for the tests?

I also am just interested in finding a good GP who not only understands the gluten thing but is sympathetic to some nutritional and non western approaches to healing. Any suggestions as to where to find one?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest gillian502

If you're in Baltimore, the first place I'd try would be Johns Hopkins. Another possibility is the University of Md. Celiac Center for Disease Research.

Sara Lydia Newbie

I am in College Park, MD. I asked the same question trying to find a specialist familiar with Celiac Disease. YOu'd think with Johns Hopkins and UMD theyd be easy to find, but nope. I've had horrible luck with docs here.

However, the local Celiac Support Chapter highly reccommends this guy:

Dr. Michael Epstein of the Digestive Disorder Assoc, Annapolis, Md. telephone number 410 224-4887 .... he can also be seen in Glen Burnie Maryland on Mondays or Wednesdays I think.

I am seeing him on the 19th, his next opening is in late August, but they said the other docs there are very familiar. Good luck.

Sara

Guest gillian502

I'm in Rockville, and I had no trouble finding Celiac specialists at JH or U. of Md., but I did have to wait 10 weeks to see them! That was no fun, I'll admit. I'm seeing Dr. Alessio Fasano in July at the U.ofMd. Celiac Center, I'll post how that goes if anyone else needs the info.

  • 2 weeks later...
haphenomenon Newbie

Thank you so much for the help! I really appreciate your responses.

I'm going to call both doctors suggested and

try to hook up with the local celiac support group.

thanks, julie

miup2l8 Newbie

Hi - I seem to have had the same problem about getting diagnosed....my

(ex)dr who is a gastroenterologist, basically said - "you're not losing weight so I wouldn't worry about it too much! Come back and see me in three years for a follow-up colonoscopy" Yeah! Riiiiiight!

Anyhow, I found a dr in Annapolis - Dr Suzanne Sankey of the Annapolis Gastroenterologist Assoc. 410)224-2116 (703 Giddings Ave. Suite M). She also has an office in Severna Park - if you're familiar with that area. The office phone number there is 410)647-5980.

The only problem is that Dr Sankey seems to be extremely busy; when I called for an appt last week, the earliest I can get in is 09/02! There are other drs in her office that I might have been able to get an earlier appt with but her name was listed at another website that I was reading about Celiac so I'm willing to wait. After all, I've already had the problem for a long time so 2 months more is not going to kill me (hopefully) :D

I too have started avoiding gluten and have started feeling much much better.

Hope this information helps you some!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Kirita posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Recovery from gluten challenge

    2. - annamarie6655 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Airborne Gluten?

    3. - trents replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

    4. - Celiac and Salty replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

    5. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,236
    • Most Online (within 30 mins)
      7,748

    kssynlson37
    Newest Member
    kssynlson37
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Kirita
      I’m wondering if anyone has had any experience with the gluten challenge. My teenager completed a gluten challenge over the summer, it ended up being 10 weeks although she stopped being consistent eating gluten after 6. Her previous endoscopy was negative but this past August it was positive after the gluten challenge. If you have done the gluten challenge, how long did it take you to feel back to normal? It took about two months before she got “glutened” again but now she’s having difficult coming back from that and has a lot of fatigue. I’m hoping someone has some advice! 
    • annamarie6655
      Hello everyone, I was on here a few months ago trying to figure out if I was reacting to something other than gluten, to which a very helpful response was that it could be xanthin or guar gum.    Since then, I have eaten items with both of those ingredients in it and I have not reacted to it, so my mystery reaction to the Digiorno pizza remains.    HOWEVER, I realized something recently- the last time I got glutened and the most recent time I got glutened, I truly never ate anything with gluten in it. But i did breathe it in.    The first time was a feed barrel for my uncle’s chickens- all of the dust came right up, and most of what was in there was wheat/grains. The second time was after opening a pet food bag and accidentally getting a huge whiff of it.    When this happens, I tend to have more neurological symptoms- specifically involuntary muscle spasms/jerks everywhere. It also seems to cause migraines and anxiety as well. Sometimes, with more airborne exposure, I get GI symptoms, but not every time.    My doctor says he’s never heard of it being an airborne problem, but also said he isn’t well versed in celiac specifics. I don’t have the money for a personal dietician, so I’m doing the best I can.    is there anyone else who has experienced this, or gets similar neurological symptoms? 
    • trents
      I was suffering from PF just previous to being dx with celiac disease about 25 yr. ago but have not been troubled with it since. Not sure what the connection between the two is of if there is one. But I do know it is a very painful condition that takes your breath away when it strikes.
    • Celiac and Salty
      I have dealt with proctalgia fugax on and off for a year now. It feels almost paralyzing during an episode and they have started lasting longer and longer, sometimes 20+ minutes. I was recently diagnosed with celiac disease and wonder if the 2 are related. I did request a prescription for topical nitroglycerin for my PF episodes and that has helped tremendously!
    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.