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Alternative Medicine

Roz

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Roz Newbie
Roz
Posted

Hello and Happy New Year Fellow Members:

This is my first post and a brief introduction. I hope you

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Guest LisaB
Guest LisaB
Posted

Well, please share! Can you post that recipe? I love buckwheat!

No help on the other, I'm a wee bit too far away...

Lisa

Roz Newbie
Roz
Posted
  • Author

I rushed too much with the first post of this recipe. I apologize!

Modified Cream of Buckwheat Cereal

1 Tablespoon each:

Cream of Buckwheat

Buckwheat Groats

1/3 cup each:

Water (tepid)

Rice/Soy Milk Drink (or substitute)

pinch of salt (optional)

stir

microwave (medium-powered microwave; adjust time if necessary):

3 minutes (50% power)

stir

microwave 3 minutes (50% power)

let sit for 5 minutes

add sugar and lactaid low fat milk (or substitute)

I use Pocono or Pocono Mountain packaged in boxes and labeled gluten free (I

Guest LisaB
Guest LisaB
Posted

Thank you so much! I'll try it as soon as I can get those items. :D

mannabbe Newbie
mannabbe
Posted

Roz,

Check out naturopathic.org to find a naturopath in your area that is a member of the American Association of Naturopathic Physicians. Just as MDs vary in expertise, attitude and experience - so do naturopaths. Try to find one that speciaizes in intestinal stuff (perhaps someone at a local celiac group has a recommendation?). I have had wonderful, life changing experiences with naturopaths because they are so knowledgeable in nutrition. Good luck

Laurie

  • 2 weeks later...
dclark519 Newbie
dclark519
Posted

Roz, I just wanted to say how fortunate you are to have been diagnosed! The disease is hard but after only 3 weeks on gluten-free diet I feel better than I have in years and years. I read that it's hard to find a dr. that believes in the common saying, we are what we eat. I am finding alot of good food out there , surprisingly! it also helps when you tell yourself that " this is for the rest of my life" so somehow, it tastes better! LOL :D I'm 35 and have felt 90 for years.I thank God daily for my new Dr. the old one just wanted to cover up all symptoms with pills! Good luck and thanks for the recipe.

dclark519 Newbie
dclark519
Posted

Lisa, if you have a grocery store near you called hyvee or woodmans , they are excellent places for gluten free food. The stuff is pretty expensive, and bobs red mill.com is another fairly affordable place to find alot of stuff. the ingredients seem to last awhile too. last week i had like 4 things here I could eat that weren't fruits or veg. After a trip to woodmans, I have a whole shelf full. It's nice to know there are quite a few foods out there for us to eat. it's a totally different life now! food is everywhere you turn!! ;) good luck

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shanmac Rookie
shanmac
Posted

Hey,

I'm across the country so I can't help you with finding an alternative medicine practitioner, but I wanted to share my experience. I was skeptical about trying acupuncture but I was in such pain from Celiac that I decided to give it a shot. I was lucky enough to find an acupuncturist in my area (Portland, Oregon) who was very familiar with Celiac. She has worked wonders and made this disease so, so much easier to live with. I know many people believe acupuncture doesn't work, but there is no way I could be feeling as good as I feel today with its help. Good for you for seeking alternative medicine- it works wonders!

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  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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