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I Need Documentation Of Possible Symptoms

sillyactsue

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sillyactsue Explorer
sillyactsue
Posted

My husband has celiac, I might and the baby has two genes for gluten sensitivity. Aimee ( the baby) has had trouble growing from the time she was in the womb. She is breastfed and her doctor has recommended that she be breastfed until she is at least 3 because she is casein sensitive. Milk fat is needed for brain development until age 3. She is 22 mo. old now. I have heard some reference to children having trouble with speech as a result of not growing because of Celiac but it has all been somewhat vague and only mentioned as a side issue. I need more information on this. Aimee is as sharp as a tack, she uses baby signs for a lot of her communication and she says some words but no sentences. She does not put two ideas together in word form. I have been concerned for some time because her speech does not match her intelligence level. Experts in child development are now confirming that she has a significant delay in the area of speech.

My question? Where can I find documentation that her speech problem could be a result of the gluten sensitivity.

Also, I have not heard much about casein sensitivity and the effects it may have had. Where can I find more about that?

Any one who has experiance or info in these areas?

sillyactsue

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eKatherine Apprentice
eKatherine
Posted

Are you gluten or casein-free?

TCA Contributor
TCA
Posted

I don'thave documentation, but my son has had the same symptoms and was allergic to milk too. His speech and walking were delayed, but he's very intelligent. We're probably going to have to start speech therapy soon. Are you gluten and casien free while nursing? I'm nursing my daughter now and have to avoid both of these and eggs for her.

sillyactsue Explorer
sillyactsue
Posted
  • Author
I don'thave documentation, but my son has had the same symptoms and was allergic to milk too. His speech and walking were delayed, but he's very intelligent. We're probably going to have to start speech therapy soon. Are you gluten and casien free while nursing? I'm nursing my daughter now and have to avoid both of these and eggs for her.

Yes, both Aimee and I have been gluten and casein free for a few months now. After about a month on this diet she started saying more words and has been less fussy. I am becoming a single parent and am struggling with the need to make a living and to keep Aimee home and safe from gluten/casein. Because of the extreme expense of the diet and having no support from husband I am trying to get Aimee on SSI. That is why I am looking for documentation. Has anyone here ever tryed to get on SSI and if so were you successful?

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