Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Love My Doctor


Nantzie

Recommended Posts

Nantzie Collaborator

My regular doctor's name is Patricia Chen, MD. She's at UC Davis Medical Group on Madison Avenue between San Juan and Sunrise. I'm pretty sure that she's not taking new patients right now, which is why it took me a while to write this. But she's just so great that I wanted to post about her anyway because so many people have such bad experiences with doctors while trying to figure all of this out.

When I went in to ask her about celiac and try and get a referral to a GI, she listened to me like I was an equal and gave me the referral.

When my biopsy came up negative and I told her that I was going to go gluten-free anyway just to see what happens, she told me that it's really hard to be gluten-free, and that gluten is in everything. She was very encouraging of me trying it, and was politely skeptical, but not discouraging at all.

That was back in March.

I went to see her last week for an unrelated issue, and told her how my life had completely changed after going gluten-free. Her whole demeanor changed. She started talking to me like I was a friend of her's and got really excited. She said, "Oh my God! I have SO many, SOOO many patients now who come in the same way you did, with all the symptoms. All the tests come back negative. They decide to go gluten-free and the change is immediate and it changes their whole lives." Then she joked that she was about ready to start a club for people with non-diagnostic, dietary-change-positive gluten intolerance.

She even knew about Outback and PF Chang's having gluten-free menus. I told her about Whole Foods having a Gluten-Free Bakeshop too.

She's just really nice and down-to-earth. I just love her. :wub:

Nancy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



floridanative Community Regular

I'm so glad you found a good doctor that listened to and encouraged you. If there were more docs out there like her, so many others on here would not have suffered for years. The only great doc I ever had was a neuro doc and I hope I never need to see him again. He was almost like an alien to me since he asked me alot of questions, really listened and never interrupted me. Oh I almost forgot about my new dermatologist who actually found my anemia last year when pcp and gyno hadn't a clue as to why I was so fatiqued. He is from India and I would love him to become an internist but of course, he's not going to. He knew all about Celiac - more than any GI I've seen to date.

  • 2 weeks later...
misskerry Newbie

May I hop onto this thread and chime in about how great my GI is? I have read on here about people who can't get their doctors to listen to them and they continue to go to them with these symptoms but can't find any relief. That's what going to my primary care phsyician is like. However, my gastroenterologist is wonderful! The first appointment I had with him and his nurse practitioner they actually LISTENED to me! They wrote every little thing down, even if I didn't know if it was related or not. They asked me questions, I asked them questions, it was great. At my follow-up appointment I was given the information on Celiac Disease. In less than a month I went from having no idea why I was so horribly sick to being diagnosed with Celiac and put on the gluten-free diet. I wish that I could share him with all of you because he is great.

Thanks for letting me add that.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,040
    • Most Online (within 30 mins)
      7,748

    Steeve
    Newest Member
    Steeve
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      This is an older article, but may be helpful.  
    • gfmom06
      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
    • Beverage
      Exactly which blood tests were done? There are a few different ones and some docs don't do them all. Also, your results and reference ranges for each?
    • Jmartes71
      Thankyou so much for your words.Its a hard battle when a supposed well known hospital whose celiac " specialist " has down played me because my colon looks fine and put it in my medical and so pcp doesn't take seriously. In their eyes we all carry that gene.Im having alot of bad days trying to be positive because of it.
    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.