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Support In Marin County


Katja

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Katja Rookie

I am fairly new to being a celiac, also allergic to Dairy, Casein, and Eggs. Yeast is also on my list, but I am having a hard enough time cutting everything else out so I will still have some yeast here and there. Being german i just cannot go without bread :rolleyes:

Anybody out here in the San Rafael, CA (Marin County Area)? Any support groups? I have been trying to deal with this on my own but it's sometime just very hard. Got glutened again a few days ago, everytime that happens it would be nice to have a group to go to and just get some feedback or simply vent :D

Cheers,

Katja

  • 3 months later...

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Rebecca47 Contributor

I am also newly diagnosed with CS. I live in Rohnert Park about half hour from San Rafael. You can e/mail me if you would like. I have done pretty well my doctor says according to my test. my numbers are way down, and I feel better. Black circles under my eyes are going away. I have gained about 5 lbs. which is good, Ihave a really hard time gaining weight as others probably do too. I know that I still have a lot to learn.

Rebecca

  • 1 year later...
Lena Marie Newbie

Hello Katja - I am located in Mill Valley, and was diagnosed with Celiac about 9 years ago. I also love bread, and I have not yet found a Gluten-free bread that satisfies. I have just checked into a another site to find out if there are any support groups in Marin County. I will let you know what I find out. The Support groups for Celiac need to make themselves more visible, and accessible.

Blessings,

Lena

I am fairly new to being a celiac, also allergic to Dairy, Casein, and Eggs. Yeast is also on my list, but I am having a hard enough time cutting everything else out so I will still have some yeast here and there. Being german i just cannot go without bread :rolleyes:

Anybody out here in the San Rafael, CA (Marin County Area)? Any support groups? I have been trying to deal with this on my own but it's sometime just very hard. Got glutened again a few days ago, everytime that happens it would be nice to have a group to go to and just get some feedback or simply vent :D

Cheers,

Katja

  • 8 months later...
Patsy Lou Newbie

I'm in San Rafael and willing to host a mtg. but I'm brand, brand new. I've been trying to do it myself so it's too late to get tested. I feel better eating less gluten foods so I feel I must be celiac.

What do we need to start a mtg?

tom Contributor

I thought there was a celiac yahoo group that focused on the north bay area, but didn't come up w/ the url.

There is Open Original Shared Link , which may be the one I was thinking of, which gets mentioned on Open Original Shared Link

Good luck :)

Patsy Lou Newbie
I thought there was a celiac yahoo group that focused on the north bay area, but didn't come up w/ the url.

There is Open Original Shared Link , which may be the one I was thinking of, which gets mentioned on Open Original Shared Link

Good luck :)

Patsy Lou Newbie

I checked out the northbay celiac site. Many thanks Tom. It's a very good informational website for any new person like myself .


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grammieb Newbie

hello, I live up in the north bay, Santa Rosa, Rohnert Park area. :rolleyes: I was diagnosed in Aug, 2006. I used to be known as Rebecca 47 on here, but I am here again with a new name. I would like to know where support groups are, but i need to go and I will be on couple days

Patsy Lou Newbie
hello, I live up in the north bay, Santa Rosa, Rohnert Park area. :rolleyes: I was diagnosed in Aug, 2006. I used to be known as Rebecca 47 on here, but I am here again with a new name. I would like to know where support groups are, but i need to go and I will be on couple days

So far I haven't been able to get a return call about support groups. If and when I do, I'll post it.

  • 1 year later...
sfkate Newbie

I live in San Rafael and am trying to navigate the waters of the gluten free lifestyle and living with celiac disease. I am open to sharing any advice, recipes, tips and overall support.:)

Hello Katja - I am located in Mill Valley, and was diagnosed with Celiac about 9 years ago. I also love bread, and I have not yet found a Gluten-free bread that satisfies. I have just checked into a another site to find out if there are any support groups in Marin County. I will let you know what I find out. The Support groups for Celiac need to make themselves more visible, and accessible.

Blessings,

Lena

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      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
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