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Need Help W/ Genetic Question

Debbie in Germany

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Debbie in Germany Newbie
Debbie in Germany
Posted

Hi Everyone,

I'm currently being tested for celiac and waiting for my results. Been reading this board all day ;-) I have iron deficiency anemia and low albumin & calcium levels. Also am a type 1 diabetic with Hashimoto's (autoimmune thyroid). Had digestive probs like hell for 3 years or more now and asked docs in America (Seattle area) repeatedly to please test for Celiac and none would because I'm overweight and "you'd lose weight if you had celiac"! Argh! "You probably have irritable bowel". You know how it goes. Well, I just moved here to Germany & they immediately found my anemia & wanted to test for Celiac. Go figure!

I'm trying to research the genetic suseptibility as I had my HLA DR and DQ alleles written down from a diabetes study I was in a few years ago. They gave me the info in a different format, though. Is there a genetics whiz among you who can make sense of this? I know I don't have one of the classic celiac DQs, but what do I have? I can't figure it out! DQ3? DQ1? Help!

This is what I was given in the diabetes study:

HLA DR-

a 0301

b 0901 (which I interpret as having HLA-DR3 and HLA-DR9)

HLA DQ-

a 0201

b 0303 (I think the 2nd one is DQ3, but what is the first one? Are the subtypes only knowable if you have the test through Enterolab?)

If you can help, that would be so cool! I've been going crazy searching for explanations of this!

Thanks,

Debbie in Germany

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