Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Next?


ramsfan1

Recommended Posts

ramsfan1 Rookie

To make a long story short, i was diagnosed with IBS a few years ago. About a year ago i started to get red itchy skin on my face and was diagnosed with a form of eczema. The eczema has never truly gone away and i had no idea about allergies cause my doctor, dermatologist, GI specialist never mentioned it whatsoever. I got a flare up with my stomach like 7 months ago and it sucked. I couldn't leave the house. Well it eventually got better, but fast forward to a few weeks ago and its even worse now. Excess gas, bloating, constipation, heart burn that i've never even had before. At this point, my Eczema is almost as bad as its ever been. Now that i've discovered food allergies i am very suspicous that i could have celiacs disease or an allergy. I am almost positive i am allergic to wheat, soy, or milk. Either that or i have celiacs. Let me sum this up:

My symptoms:

Constipation

Heart Burn

Eczema(seborreac dermatitis)

Excess gas

Bloating

Canker Sores

Runny nose(may be unrelated)

Bad memory

Anxiety

What I think i might have:

Celiacs

Milk Allergy

Soy Allergy

Wheat Allergy

So i really really think all of these symptoms are related to each other and its taken me 5 years to figure this out and doctors are worthless. Where do i begin? Do i get a blood test for Celiacs, or take the stool test from enterolab? I'm also a poor college kid and very impatient, and i know this could take weeks or months to diagnose and its killing me. I'm afraid i'm gonna spend all that money to take a test and it could be negative, and be right back where i started. Also, the elimination diet will be extremely hard cause everything in my house has wheat in it practically and i can't really cook. Any suggestions on where to start first? My mind is saying just take the test and find out for sure. EDIT- i meant to put this in pre-diagnosis.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eKatherine Apprentice
So i really really think all of these symptoms are related to each other and its taken me 5 years to figure this out and doctors are worthless. Where do i begin? Do i get a blood test for Celiacs, or take the stool test from enterolab? I'm also a poor college kid and very impatient, and i know this could take weeks or months to diagnose and its killing me. I'm afraid i'm gonna spend all that money to take a test and it could be negative, and be right back where i started. Also, the elimination diet will be extremely hard cause everything in my house has wheat in it practically and i can't really cook. Any suggestions on where to start first? My mind is saying just take the test and find out for sure. EDIT- i meant to put this in pre-diagnosis.

It looks like it is highly probable that you've got it. Testing is not necessary. You can test yourself with the diet...BUT...

As you say, your house is full of gluten and you don't cook. These things will both need to change. You need to sit down and figure out what you can eat and plan your diet around that. Rice is good and really cheap. Get yourself a sack of plain rice and a rice cooker - much cheaper than a blood test - then learn how to use it. With the internet as a research source, you can figure out how to prepare just about anything. Set yourself a goal of learning to fix something new on a regular basis.

You know what you need to do.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,164
    • Most Online (within 30 mins)
      7,748

    VGL
    Newest Member
    VGL
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...