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Any Doc's In Saginaw, Mi?

whitball

By whitball
in Doctors

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whitball Explorer
whitball
Posted

Well, I've had it with my Dr. I'm ready for another who is willing to spend time with me and answer my questions. I had my six month endoscopy in July. I continue to have significant inflammation. He placed me on Nexium because my insurance refuses to pay for Protonix. So after he gave me the results of the edoscopy, he doubled my dose of nexium, thinking that maybe I only have GERD, not Celiac. Mind you, I have had serious side effects from being glutened, you know, the runs, cramping, my blood work was positive, etc. I really thought that I was doing well on the gluten-free diet, but I still felt horrible. I assumed that the dr. knew what he was prescribing and that it was gluten free, so I did not look it up. The apothocary shop down the street informed me yesterday that Nexium contains lots of gluten. I've had 2 conversations with this guy, after both endoscopies, and he is supposed to be treating me. I guess I want to speak face to face with an interested specialist and to have someone who knows what they are prescribing. Am I expecting too much? Anyone know of someone in Mid Michigan who knows this disease?

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Guest AutumnE
Guest AutumnE
Posted

I know of the flint area dr's. I cant refer you to any of the gi dr's around here. They dont know squat about it. But Dr sattar is very open to things, he is treating me for gerd and makes sure they do not have gluten even though I have no testing showing I have celiac disease yet, he is internal medicine. I wish I could help more.

panda Newbie
panda
Posted
Well, I've had it with my Dr. I'm ready for another who is willing to spend time with me and answer my questions. I had my six month endoscopy in July. I continue to have significant inflammation. He placed me on Nexium because my insurance refuses to pay for Protonix. So after he gave me the results of the edoscopy, he doubled my dose of nexium, thinking that maybe I only have GERD, not Celiac. Mind you, I have had serious side effects from being glutened, you know, the runs, cramping, my blood work was positive, etc. I really thought that I was doing well on the gluten-free diet, but I still felt horrible. I assumed that the dr. knew what he was prescribing and that it was gluten free, so I did not look it up. The apothocary shop down the street informed me yesterday that Nexium contains lots of gluten. I've had 2 conversations with this guy, after both endoscopies, and he is supposed to be treating me. I guess I want to speak face to face with an interested specialist and to have someone who knows what they are prescribing. Am I expecting too much? Anyone know of someone in Mid Michigan who knows this disease?

I just spoke to Astra Zenecz...they manufacture Nexium. They told me that all of the suppliers of the inactive ingredients certify their products to be gluten free and there fore the drug itself is certified as gluten free. I thought this was the case..I have been taking nexium for some time. I think its your phamacist that needs to be more cautious. Not only does it NOT contain lots of gluten--it doesnt contain any!! Hope this helps you and all the other forum members who take Nexium..

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      Although sensitivity to gluten varies between individuals, multiple research studies suggest that consuming up to 10 mg of gluten a day is safe for most people with coeliac disease. Wheat flour contains approximately 10% gluten by weight, so this is equivalent to 100 mg of flour, or a piece of wheat bread the size of a small pea. There is a case report of farmers with coeliac disease developing symptoms from inhaling gluten containing dust from cattle feed but that is an extreme example and they were exposed to very high concentrations of airborne gluten over a long period of time. In a domestic situation, unless someone is making dough and putting a lot fo flour into the air, I don't think you will get significant airborne exposure. The thing to watch out for is making sure work surfaces, cutlery and utensils are clean. If you have to share a toaster, get some toasting pouches.
    • Fabrizio
      Kan-101

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      So? What do you think it will go ahead? Did you partecipate to this trial? what's the result for yuo? Thanks a lot for your answers!
    • trents
      symptoms.

      By trents · Posted

      You might look into wearing an N95 mask when others are creating baked goods with wheat flour in your environment.
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      symptoms.

      By Rebeccaj · Posted

      @trents thank you for that information. My parents feel that cooking flour in toaster isn't a thing as its already cooked product before made? but Airbourne particles is my fear. Like I have had symptoms from 6 meters away had to leave massive migraine. 
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      symptoms.

      By knitty kitty · Posted

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