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TrixieMom

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TrixieMom Rookie
TrixieMom
Posted

Hi my youngest son was diagnosed at 14 months (two months ago) with celiac via a biopsy. I had blood work done (Igg TTg something like that) on my older children. One had two negatives and the other one positive and one negative result. Has anyone had any experience with this. I have a call in to the GI dr. and our family doctor is supposed to contact him as well. I suspect they'll do a biopsy. What are the chances it will be positive? Any experiences? My youngest had classic symptoms but not this child. She has had problems with constipation but not major.?!

Thanks, Trixie

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Mom22 Apprentice
Mom22
Posted

Hi Trixie,

Our son age 9 was diagnosed via biopsy in March 2004. His ONLY symptom was constipation. Our pediatrician was very diligent and tested for all types of things which included the TTG,IGA, IGA. All were elevated and off to the GI specialist we went. After his biopsy was positive, we had the bloodwork done on our 4 year old daughter, who had no symptoms whatsoever. Her bloodwork numbers were double those of our son's. Off to the GI specialist we went. After her biopsy was inconclusive, we had her biopsy slides sent to the University of MD and Dr. Fasano read them and concluded she did indeed has celiac. Since the celiac is genetic, we had our daughter tested and my husband is seeing Dr. Fasano in September as his blood work is borderline positive/negative, however, we did have the HLA blood typing done and my husband has the DQ 2 & DQ 8. You may want to consider having the HLA done to see if your children have the genes for celiac and maybe discuss that further with your specialist. Just passing along our experiences and I'm no expert, but hope it helps.

Mom 2 2 celiac children

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