Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Weight Loss With Cd?


EddieJP125

Recommended Posts

EddieJP125 Explorer

I have been losing weight consistently and for a long time...since last year i have lost almost 20lbs.

well i having been keepin in shape or anything, but shouldn't that mean that i should be gain weight?...

what should i do


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



azza Apprentice

Hello,

I seem to lose weight too!! I lost about 10.5 kilos (about 23 :P lbs) in about 4 months... Too much huh? :huh: I don't even know if it is usual because I am still losing more and more weight! So I seem to share my problem with others! :P

SteveW Rookie

Before I was diag. I lost around 35 lbs.

Now I've gained back 8-10 lbs but I'm having a hard time keeping it on.

I'm not under weight or starving just a lot smaller in stature than before.I've even been lifting weights and my strength in almost where it was before I got really sick but my weight doesn't move.

EddieJP125 Explorer
Before I was diag. I lost around 35 lbs.

Now I've gained back 8-10 lbs but I'm having a hard time keeping it on.

I'm not under weight or starving just a lot smaller in stature than before.I've even been lifting weights and my strength in almost where it was before I got really sick but my weight doesn't move.

i've always had that same problem too...always worked out hard and just got really strong, but my body never got anywhere...i always thought that it was my metabolism was too fast, but now i kow that its b/c i have celiac disease.

Dwight Senne Rookie

For about the first 9 months after going gluten-free, I slowly lost weight. Not much, maybe 5 - 10 lbs. My doctor was very concerned about this and ran all the tests for small bowel lymphoma. Fortunately, the tests were negative, and now I am slowly gaining.

I don't mean to be an alarmist, but you should follow through with your gastroenterologist. It could be serious and you want to catch that early. If you're ok, then maybe you can be referred to a nutrionist to address the issue from a dietary standpoint.

Also, keep in mind that the gluten-free diet is very similar to the low carb diet that is all the craze right now for losing weight!

rattaway Newbie

I have hit a plateau myself and would like to lose another ten lbs. I am not sure that it is possible though. I would be happy to take suggestions on how.

Rian

EddieJP125 Explorer
For about the first 9 months after going gluten-free, I slowly lost weight. Not much, maybe 5 - 10 lbs. My doctor was very concerned about this and ran all the tests for small bowel lymphoma. Fortunately, the tests were negative, and now I am slowly gaining.

I don't mean to be an alarmist, but you should follow through with your gastroenterologist. It could be serious and you want to catch that early. If you're ok, then maybe you can be referred to a nutrionist to address the issue from a dietary standpoint.

Also, keep in mind that the gluten-free diet is very similar to the low carb diet that is all the craze right now for losing weight!

is it a low carb diet?...and thought it was high b/c of all the rice?...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Dwight Senne Rookie

Sorry for the confusion about the carbs, Eddie. You're right, rice has lots 'O carbs, but they are considered "good" carbs - kinda like the "good" cholesterol!

My reference was that the success behind diets like Atkins, is the almost complete elimination of "bad" carbs like white bread - which we do too! :D

EddieJP125 Explorer
Sorry for the confusion about the carbs, Eddie. You're right, rice has lots 'O carbs, but they are considered "good" carbs - kinda like the "good" cholesterol!

My reference was that the success behind diets like Atkins, is the almost complete elimination of "bad" carbs like white bread - which we do too! :D

yea i know wat u mean now...i asked my girlfriend who's a student nurse and she told me the same thing...= )

i started again to take Nitro Tech, itz a protein supplement for weight gaining for people who work out...i read the ingredients throughly and none of it has anything that contains gluten...so i'm hoping that with me workin out and takin this stuff will help me to gain some weight, and of course get a nicer body..= )

Dwight Senne Rookie

Good luck on your workouts and weight gaining! I'm 45 and have been thin all my life (well, thin compared to most Americans!!!). Many years ago, I worked out pretty regular, but never gained any weight. Of course, that was before I was on the diet. Now I'm too old, too lazy, and too indiferent to care! :P

gf4life Enthusiast

Rice might be considered a good carb, but if you eat any of the gluten-free breads, cakes, cookies, and other goodies then you certainly couldn't call those good carbs or low carb!

Despite the fact that I do eat gluten-free rice bread a couple of times a week and the same for the gluten-free sweets, I have lost 20 lbs in the last 8 months! :D I have 30 lbs more to go to be in the high end of my ideal weight range, and then I will be so happy. This is the first time I have lost weight eating whatever I want (ie: not counting calories, carbs, fat grams, etc!) in the past 10 years! It seems my body just wasn't healthy enough to want to let go of any of the food I WAS able to digest, so it turned it all into fat. Now I am absorbing properly I can loose the extra weight now.

I do feel bad for those of you who do NOT want to lose any more weight. I would suggest either checking your diet to make sure that you are not accidently getting gluten in that would cause you to keep loosing weight (like before going gluten-free), or else maybe add in some more calories to your diet. Healthy choices are always the best when adding more calories, nuts are good, since they add calories, protein and healthy fat to your diet.

God bless,

Mariann

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lil-oly replied to Jmartes71's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Gluten tester

    2. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    3. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    4. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,155
    • Most Online (within 30 mins)
      7,748

    Beccad611
    Newest Member
    Beccad611
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • JudyLou
    • knitty kitty
      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
    • trents
      And I agree with Wheatwacked. When a physician tells you that you can't have celiac disease because you're not losing weight, you can be certain that doctor is operating on a dated understanding of celiac disease. I assume you are in the UK by the way you spelled "coeliac". So, I'm not sure what your options are when it comes to healthcare, but I might suggest you look for another physician who is more up to date in this area and is willing to work with you to get an accurate diagnosis. If, in fact, you do not have celiac disease but you know that gluten causes you problems, you might have NCGS (Non Celiac Gluten Sensitivity). There is no test available yet for NCGS. Celiac must first be ruled out. Celiac disease is an autoimmune disorder that damages the lining of the small bowel. NCGS we is not autoimmune and we know less about it's true nature. But we do know it is considerably more common than celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.