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My Seven Year Old Hates His Diet

GraceA

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natalie Apprentice
natalie
Posted

Hi Everyone,

I was so happy to read this post... I just posted about a family problem of my own.

My daughter has just gotten very sensitive (emotionally) as well. It is a tough one to deal with.

I mostly cook gluten-free foods. I keep regular bread for my son's lunches but that is about it.

We all love the gluten-free pancakes ( El Peto mix is great). Tinkinyada pasta is awesome. At a birthday celebration recently I made this chicken recipe. It was one we made prior to Celiac. Well I made it gluten-free and no one even knew. It was awesome.

I love being able to make Allison feel "normal" at home. I agree with another poster, don't make it seem like a big chore to your son ( even though it can be at times); it will help his attitude.

Good Luck

Natalie

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    • lizzie42
      Confusion about my son's results

      By lizzie42 · Posted

      But yes seeing all those negatives does give me a bit of doubt! I feel confident but those results give me a seed of doubt. Especially since it's a lifelong diet for him! 
    • lizzie42
      Confusion about my son's results

      By lizzie42 · Posted

      When I originally posted I hadn't talked to the pediatrician yet and didn't realize about the budosinide. Now I feel pretty confident. I was concerned that all of the tests didn't come back positive - that seemed kind of ambiguous to me. I didn't realize that was common. Do a lot of people on here have a positive tTG but negative other tests? I thought the EMA was pretty "gold standard."  And yes I do now wonder about the asthma! I hope being gluten free will improve that! 
    • trents
      Confusion about my son's results

      By trents · Posted

      @lizzie42, So, I'm confused with what you are uncertain about. Do you really have any doubt that your 5 year-old son has celiac disease? Is it because he isn't exhibiting anemia and the rash as did your daughter? The genes are certainly there and the antibody testing certainly indicates celiac. And given the fact that he was on a reduced gluten diet and on a steroidal medication (which would likely suppress immune responses) do you really have any doubt? If you can't afford the GI consult with endoscopy/biopsy, why would you consider a gluten challenge after removing the remainder of the gluten from his diet? Have you considered that his asthma and "sickness" may be tied to celiac disease?
    • lizzie42
      Confusion about my son's results

      By lizzie42 · Posted

      These are my sons results. My daughter was high positive on everything and maxed out the tests in addition to being anemic, bad rash, etc.  Yes, he has been eating mostly gluten free (not completely). He was also on a high dose of budosinide at the time of testing due to some asthma and sickness. I didn't realize that affects the results.  This test along with my daughter being so sick with it prompted the pediatrician to diagnose him. We can always do a gluten challenge in the future. We will do that with our 1 year old. We will have her eat school lunch when she goes to prek and then test after a couple months. 
    • trents
      Confusion about my son's results

      By trents · Posted

      @lizzie42, Are the results you posted above for your daughter or for your son? If these are for your 5 year-old son, they are strongly positive and definitely suggest celiac disease. The ttg-iga is the centerpiece of celiac disease antibody testing and at 59 it is a strong positive. If you are wondering why some of the other tests are negative, you need to know that is normal. Seldom are all the antibody tests positive on a complete celiac panel.
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