Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Constipation


lilleroy family

Recommended Posts

lilleroy family Rookie

First off I am very embarrassed :unsure: by this question but since I have been gluten free since March after blood antigens said I was 96% positive for Celiac and a biospy later fully diagnosed me I have now started to have severe constipation to the point that it is painful, I don't even have bowel movements on a regular basis either its like maybe once or twice a week and are all extremely painful and then also there is some blood in the stool, I don't know if its from a hemorroid that I have from child birth or what and I am so embarrassed to talk to my doctor face to face about this, I am a new patient of his as we just relocated to this area and even though he is familiar with celiac and very knowledgeable its embarrassing. I have even contemplated over the counter laxatives to lessen the constipation, I drink tons of water, and eat lots of fresh vegetables and fruits and all so I just don't get it I go from having loose stools to now this. Any suggestions on what to do or how to broach this topic with the doctor? <_<


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GEF Explorer

I can understand your embarrassment on the issue.... gastro-intestinal problems are not the easiest thing thing to talk about... especially face-to-face with someone. You'd be amazed at how compassionate and caring of a response you'd receive from your doctor... probably because he would be able to help rule out some things for you and offer pro-active treatment. Maybe just express to him that it's difficult for you to talk about "those things".... if you get choked up, perhaps you can ask for a list of symptoms that you can circle or check-off on a piece of paper.

Sometimes it helps to know you're not the only who suffers with this.. I had to tell my doctor that I saw blood recently... I think it was because my system was so used to loose stool that when it was solid one day, it hurt and probably did some tearing. Kinda gross... I know. But even for that instance, he wanted to make sure that nothing else was going wrong.

I wish I could offer some advise on the constipation... usually if I have that problem I drink some coffee (I goes right through me). There are many people here who I'm sure could offer some helpful advise on it though.

Good luck with your doctor!

Gretchen

tarnalberry Community Regular

Given that you're doing the obvious things, PLEASE schedule an appointment with your doctor. Blood in/on the stools is nothing to mess with.

I had a similar problem (turned out the be a hemmhroid), and I'm only 25, so was also embarassed about this. I told my GP that when I got there, and she said "I see this every day." When I stopped to think about it, it made me much less embarassed to have to have that bit examined once in ... my life, I think, at the least, not very often, but she may have to look at one after another every single day! Made me feel a bit better... ;-)

burdee Enthusiast

Hi Lilleroy: My undiagnosed celiac symptoms since early childhood included constipation, steatorrhea, and bloating. I was only diagnosed with celiac disease recently, after 50 years of symptoms <_< . However, longterm constipation influenced my developing hemorrhoids which hurt and bled when I passed hard, painful stools. If you had hemorrhoids before, constipation can always exacerbate those to swell up, bleed and hurt.

There are many OTC salves for hemorrhoids (including Preparation H), but the BEST, simplest solution for shrinking hemorrhoids and reducing pain is a sitz bath. That doesn't mean sitting in the bathtub in hot water, which can dry your skin and not even effect the hemorrhoids, depending on your tub position. You can buy sitzbath bowls which attach to a toilet seat at a hospital supply store. You just fill them with hot water, as hot as you can comfortably stand without burning yourself :o , and sit on the toilet with your buns immersed in that hot water for 5-10 minutes or whenever the water is too cool to help. Do that 5-10 minutes after every bowel movement and before bed, until your hemorrhoids heal enough to stop bleeding. That soothes pain, shrinks hemorrhoids and helps them heal. Unfortunately I didn't learn about the sitz bath device until AFTER I had hemorrhoid surgery which followed a botched, banding procedure. Your doctor might prescribe a salve (I used a xylocaine salve successfully until my hemorrhoids got really bad) or even prescribe a sitzbath.

As far as resolving constipation, I was misdiagnosed with IBS and used wheat bran for years to cope with constipation. Obviously that exacerbated my celiac symptoms and made my constipation WORSE. Meanwhile drinking liquids and eating lotsa produce fiber didn't help, but I started taking Magnesium supplements to draw the fluid into the stool. Nevertheless, avoiding gluten helped to resolve some of my constipation. However, eliminating DAIRY (since I have casein intolerance) helped the most to resolve my constipation. Unfortunately that was 5 years AFTER that painful hemorrhoid surgery.

I suspect many celiacs who had diarrhea for years preceliac diagnoses, now experience more constipation, because they never had to focus on eating enough fiber for regularity. Without celiac induced diarrhea, some may now have to cope with constipationHowever fiber is good for both constipation and diarrhea, but not the OTC pill or drug forms. The safest fiber comes from gluten-free grains, fruit, vegies and nuts, without any added chemicals. However I've found taking Vitamin C and Magnesium also helps for regularity.

BURDEE

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      High TTG-IgG and Normal TTG-IgA

    2. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      High TTG-IgG and Normal TTG-IgA

    3. - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    4. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    5. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,868
    • Most Online (within 30 mins)
      7,748

    yooperjb
    Newest Member
    yooperjb
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Currently, there are no tests for NCGS. Celiac disease must first be ruled out and we do have testing for celiac disease. There are two primary test modalities for diagnosing celiac disease. One involves checking for antibodies in the blood. For the person with celiac disease, when gluten is ingested, it produces an autoimmune response in the lining of the small bowel which generates specific kinds of antibodies. Some people are IGA deficient and such that the IGA antibody tests done for celiac disease will have skewed results and cannot be trusted. In that case, there are IGG tests that can be ordered though, they aren't quite as specific for celiac disease as the IGA tests. But the possibility of IGA deficiency is why a "total IGA" test should always be ordered along with the TTG-IGA. The other modality is an endoscopy (scoping of the upper GI track) with a biopsy of the small bowel lining. The aforementioned autoimmune response produces inflammation in the small bowel lining which, over time, damages the structure of the lining. The biopsy is sent to a lab and microscopically analyzed for signs of this damage. If the damage is severe enough, it can often be spotted during the scoping itself. The endoscopy/biopsy is used as confirmation when the antibody results are positive, since there is a small chance that elevated antibody test scores can be caused by things other than celiac disease, particularly when the antibody test numbers are not particularly high. If the antibody test numbers are 10x normal or higher, physicians will sometimes declare an official diagnosis of celiac disease without an endoscopy/biopsy, particularly in the U.K. Some practitioners use stool tests to detect celiac disease but this modality is not widely recognized in the medical community as valid. Both celiac testing modalities outlined above require that you have been consuming generous amounts of gluten for weeks/months ahead of time. Many people make the mistake of experimenting with the gluten free diet or even reducing their gluten intake prior to testing. By doing so, they invalidate the testing because antibodies stop being produced, disappear from the blood and the lining of the small bowel begins to heal. So, then they are stuck in no man's land, wondering if they have celiac disease or NCGS. To resume gluten consumption, i.e., to undertake a "gluten challenge" is out of the question because their reaction to gluten is so strong that it would endanger their health. The lining of the small bowel is the place where all of the nutrition in the food we consume is absorbed. This lining is made up of billions of microscopically tiny fingerlike projections that create a tremendous nutrient absorption surface area. The inflammation caused by celiac disease wears down these fingers and greatly reduces the surface area needed for nutrient absorption. Thus, people with celiac disease often develop iron deficiency anemia and a host of other vitamin and mineral deficiencies. It is likely that many more people who have issues with gluten suffer from NCGS than from celiac disease. We actually know much more about the mechanism of celiac disease than we do about NCGS but some experts believe NCGS can transition into celiac disease.
    • SamAlvi
      Thank you for the clarification and for taking the time to explain the terminology so clearly. I really appreciate your insight, especially the distinction between celiac disease and NCGS and how anemia can point more toward celiac. This was very helpful for me.
    • Jsingh
      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.