Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Support Buddy In Albany Ny Area?


DawnE8199

Recommended Posts

DawnE8199 Newbie

Hello everyone. I am very new to this as I just found out yesterday that I have celiac disease. I'm interested in finding someone in the area or maybe not in the area to talk to. It's a very scary thing to have and I am very confused. Any help would be wonderful! Hope to talk to someone soon!

~DawnE8199


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GEF Explorer

Hello Dawn and welcome to the forum! Sorry, I'm way down here in VA, but here are some support groups in NY that might be of some (local) help to you. We're pretty fun here and can perhaps offer you much help, so feel free to share and ask any questions you might have.

Good luck to you!

Gretchen

New York

Central NY Celiac Support Group (Syracuse)

R. Wyman, President

315.463.4616

Mailing Address: 263 Roxbury Rd, Syracuse, NY 13206

Jwyman1@twcny.rr.com

Gluten Free in WNY (Buffalo)

M. Lodico, Manager

716.695.4302

Mailing Address: PO Box 24, North Tonawanda, NY 14120

glutenfree@adelphia.net

Suffolk County Celiacs (Long Island)

L. Doti, Manager

631.724.6651

Mailing Address: 18 Sesame St, Kings Park, NY 11754

ldoti@optonline.net

New York

Westchester Celiac Sprue Support Group (Montrose)

M & C Spreitzer, Contacts

914.737.5291

info@westchesterceliacs.org

celiac3270 Collaborator

I live in NY, also............but a few hours away from you; in NYC.........I find that the board is enough support for me........I also talk to a few people here off the boards via e-mail or instant message. It doesn't really matter where they live, as long as they're someone else to talk to

Alexolua Explorer

Also in NY here. But I'm to your west over near Syracuse.

Ditto to what Coutler said. I don't know anyone in real life, actually really haven't talked to anyone by IM or email either.. but found this board to be very very helpful with the confusion and such. Just look around, use the search function to find things. And if you can't find something, start a new post asking about it. =)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,070
    • Most Online (within 30 mins)
      7,748

    mike.carp22
    Newest Member
    mike.carp22
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
    • Scott Adams
      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
    • Colleen H
      Hi everyone  This has been a crazy year so far... How many people actually get entire sensory overload from gluten or something similar ?  My jaw is going nuts ..and that nerve is affecting my upper back and so on ...  Bones even hurt.  Brain fog. Etc  I had eggs seemed fine.   Then my aid cooked a chicken stir fry in the microwave because my food order shorted a couple key items .   I was so hungry but I noticed light breading and some ingredients with SOY !!! Why are we suffering with soy ? This triggered a sensitivity to bananas and gluten-free yogurt it seems like it's a cycle that it goes on.  The tiniest amount of something gets me I'm guessing the tiny bit of breading that I took one tiny nibble of ...yikes ..im cringing from it .. Feels like my stomach is going to explode yet still very hungry 😔  How long does this last?! Thank you so much 
    • Scott Adams
      This is an older article, but may be helpful.  
    • gfmom06
      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.