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Support Buddy In Albany Ny Area?

DawnE8199

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DawnE8199 Newbie
DawnE8199
Posted

Hello everyone. I am very new to this as I just found out yesterday that I have celiac disease. I'm interested in finding someone in the area or maybe not in the area to talk to. It's a very scary thing to have and I am very confused. Any help would be wonderful! Hope to talk to someone soon!

~DawnE8199

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GEF Explorer
GEF
Posted

Hello Dawn and welcome to the forum! Sorry, I'm way down here in VA, but here are some support groups in NY that might be of some (local) help to you. We're pretty fun here and can perhaps offer you much help, so feel free to share and ask any questions you might have.

Good luck to you!

Gretchen

New York

Central NY Celiac Support Group (Syracuse)

R. Wyman, President

315.463.4616

Mailing Address: 263 Roxbury Rd, Syracuse, NY 13206

Jwyman1@twcny.rr.com

Gluten Free in WNY (Buffalo)

M. Lodico, Manager

716.695.4302

Mailing Address: PO Box 24, North Tonawanda, NY 14120

glutenfree@adelphia.net

Suffolk County Celiacs (Long Island)

L. Doti, Manager

631.724.6651

Mailing Address: 18 Sesame St, Kings Park, NY 11754

ldoti@optonline.net

New York

Westchester Celiac Sprue Support Group (Montrose)

M & C Spreitzer, Contacts

914.737.5291

info@westchesterceliacs.org

celiac3270 Collaborator
celiac3270
Posted

I live in NY, also............but a few hours away from you; in NYC.........I find that the board is enough support for me........I also talk to a few people here off the boards via e-mail or instant message. It doesn't really matter where they live, as long as they're someone else to talk to

Alexolua Explorer
Alexolua
Posted

Also in NY here. But I'm to your west over near Syracuse.

Ditto to what Coutler said. I don't know anyone in real life, actually really haven't talked to anyone by IM or email either.. but found this board to be very very helpful with the confusion and such. Just look around, use the search function to find things. And if you can't find something, start a new post asking about it. =)

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      Celiac disease symptoms

      By Churro · Posted

      Thanks for your input. 
    • trents
      Celiac disease symptoms

      By trents · Posted

      If you have hemorrhoids 1x weekly I don't see how you have time to heal from one episode before you experience another one, unless each one is a very minor event. Have you consulted a physician about your hemorrhoid issue? It's not normal to be having an episode every week unless it is really one episode that is not completely healing between weekly flareups.
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      Celiac disease symptoms

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      No I haven't had one since 2021. I rarely have more than 1 per week. 
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      Sorry, I see that now as I reread your original post. You say you have hemorrhoids "only once a week" now. When I develop hemorrhoids, which is once every few years now, it generally takes 3-4 days for healing to take place. So, it doesn't seem like you could have much relief time between episodes if you have them weekly. Have you had a lower GI scoping done recently?
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      Celiac disease symptoms

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      Everyday I eat a medium to large apple in the morning and a large banana at night. I eat a cup of oatmeal in the evening. The ezekiel wheat bread I eat has a good amount of fiber. I haven't dealt with constipation for at least a year. Most of the time my feces are soft. 
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