Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To This...

javamama

Recommended Posts

javamama Newbie
javamama
Posted

Hi everyone,

My dad was diagnosed this past week. The first thing I did was go on-line to do alittle research, and then bought a book. My dad lives alone (66 years old). He was diagnosed with colon cancer 15 years ago, and had a colostomy done. Thank-god he has been cancer free ever since! To me this is another blow that he has to live with. I want to help him in any way that I can. He is a very healthy active person. Any suggestions for someone that is new to this? He is also Italian. Loves his pasta and bread! I guess we will be going to the health food store real quick! Thanks for all of your help. Angie :rolleyes:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest jhmom
Guest jhmom
Posted

Hi Angie, you are very sweet for looking out for your dad, I am sure he appreciates it! That is wonderful news about the cancer being gone! This disease may be overwhelming at first but eventually will become second nature to him. You should also be tested as it is genetic (even if you do not have symptoms).

As far as the bread and pasta, he can still have them they just have to be gluten-free (gluten-free). :) I recently bought some gluten-free bread online and it was actually pretty decent, better than what I found in the stores. :D As far as the pasta I like corn pasta better than rice. My local grocery store carries it in their health food section, so I don't have to travel far for it.

Here are some link that have been helpful to me:

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link - this is where I ordered the bread from

www.glutenfreeinfo.com

I hope this helps you and your father out. Keep visiting the site, it is very helpful!

gf4life Enthusiast
gf4life
Posted

Hi Angie,

I like the Tinkyada brand Brown Rice Pastas the best. The corn pasta is good. I DO NOT recommend any of the De Boles brand of pastas. None of us in the family liked them.

As for bread, most of the store bought gluten free breads I've tried are just not worht the small fortune that you have to pay for a loaf. They just don't taste very good, and usually the testure is not too good.

Your dad would probably do best just eating the normal meats, veggies, fruits, white rice, brown rice, corn bread (as long as it does not have added wheat flour) and other foods that he is used to and just relace his pasta with rice or corn pasta, he may just want to skip the bread for a while, and watch out for sauces and gravies.

Some good websites for shopping online are Open Original Shared Link , and Open Original Shared Link , and Open Original Shared Link .

You should ba able to find many good choices of pasta in the health food store, as well as gluten free flours if you want to make some breads for your dad.

Good luck. Your dad is very blessed to have you there for him right now.

Being gluten free should decrease his chance of his cancer ever coming back.

God bless,

Mariann :)

angel-jd1 Community Regular
angel-jd1
Posted
Hi I DO NOT recommend any of the De Boles brand of pastas. None of us in the family liked them.

I personally think the DeBoles are good. I like their sghetti. :D

-Jessica :rolleyes:

gf4life Enthusiast
gf4life
Posted

Hi Jessica,

I'm glad you like De Boles, ^_^ it goves you another choice when you are pasta shopping. We couldn't stand it. Yuck. On the top of my shopping list is "NO DE BOLES PASTA", so I don't accidently forget and buy another package. :rolleyes:

I figured somebody must like it, since they sell it at all the health food stores I've been to.

Mariann :)

KAthyB Newbie
KAthyB
Posted

Hi Angie! My 18 year`old daughter was just diagnosed and used to live on pasta. I tried about five brands before I found one she would eat. It is Bi-Aglut, imported from Italy and she likes it. I cook it according to package directions with a dash of olive oil and rinse it in a colander before adding the sauce. I've also used it for mac n cheese and with oil, butter and parmesean cheese. If you use it for soup it is better to cook the pasta in water first and rinse it as it clouds the broth.

If your dad can read Italian, have him check out the website at Bi-Aglut.com. I can only understand a little and I don't think you can order direct. I can't find the egg pastas but you can get a few items at www.gluten-free.com and dietaryshoppe.com. I went to the Dietary Shop yesterday, as it is in my area and found they had more varieties of the pasta then the brochure lists so you might want to call and asked. I made the Ditalini today in Swanson gluten-free chicken broth and it was good. The downside, it's expensive.

Good Luck!

Kathy :D

javamama Newbie
javamama
Posted
  • Author

I just wanted to thank all of you for your input. I really appreciate it! :)

Angie

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


HSWade Newbie
HSWade
Posted

javamama, I think my wife would get along with you based on username. :lol: Two cups before she speaks to anyone but the dogs...

We use Tinkyada rice pastas. We undercook them slightly, just a bit more al dente than we would a wheat pasta, dump them into a colander and rinse them thouroughly with cold water, transfer the pasta to a plastic bowl and then zap it in the microwave for 60 seconds to heat it back up and finish the cook.

We make a variety of sauces, in the summer we grow our own edible herbs in strawberry pots on the deck. Fresh herbs, minced garlic, and extra virgin olive oil with anything else you want to add(salmon chunks, or shrimps, we live on the coast), broccoli, sausages, or whatever, sauteed while the noodles cook is then poured onto the noodles and quickly stirred in and served.

A big bottle of red wine... :P

I am not gluten intolerant, but I eat my wife's diet almost every meal at home except for the occasional breakfast bagel.

These pastas are really quite good. I am still looking for a good gluten-free lasagna noodle...

seeking-wholeness Explorer
seeking-wholeness
Posted

HSWade, do you find Tinkyada's lasagna noodle has problems? I don't make lasagna very often because I can't have dairy either, so what's the point? But I have been considering attempting a vegan lasagna anyway....

gf4life Enthusiast
gf4life
Posted

Sarah, if you find a good recipe for lasagna without cheese, let me know. I have some Tinkyada lasagna noodles, but just have no idea what to use in place of the cheese to make it taste"right".

Mariann

tarnalberry Community Regular
tarnalberry
Posted

try looking for vegan recipes, but really, you don't need anything to replace the cheese.

just layer the noodles, tomato sauce, and veggies, and enjoy!

alexa11219 Newbie
alexa11219
Posted

Hi Angie. It is hard from the beginning. But your Dad's gone through such an ordeal! He'll be a winner in this situation also.

Since I was diagnosed with gluten intolerance, every grocery shopping is like going to a library - I carefully read each label, all the info on packages, boxes, cans. Time spent is worth it. I learned a lot from gluten-free cooking books, their introductory articles were useful to me. From those books I learned that we should not use preground pepper for it usually contains (and it's never mentioned on the label!) wheat flour to keep it powdery. Blue cheese is prohibited as well as beer. I had a very bad reaction after eating processed meats, like ham, sausages, franks and similar, later I learned it also contains gluten. Actually, canned food is also prohibited. Watch for MSG for it's not only cancerous but in addition is not gluten-free. You should eliminate any product containing modified food starch. Dry wine is good, but some other liquors are not, since I'm not such a drinker, I don't remember which ones.

I always loved pizza. Well, now I use mexican tortillas instead, three of them, layered with gluten-free pizza sause, cheese, mushrooms, some other stuff. Bake it in a toaster oven. Of course, it's not a real pizza, but it'll do, at least for me. I tried gluten-free pizza crusts and bagels, they are not worth the money.

You may find a lot of good stuff in oriental food markets, Chinese, Korean, Thai. Prices there are low.

Let us know how your Dad is doing if it's not such a problem for you.

Good luck.

Alexa

alexa11219 Newbie
alexa11219
Posted

Hi Angie. That's Alexa again. I want to warn you to be very careful with your Dad's meds. Lots of them have gluten in one or another form and it's never mentioned in the ingredients. Doctors sometimes forget to keep it in mind. So, it's you who have to keep track.

Guest jhmom
Guest jhmom
Posted
Doctors sometimes forget to keep it in mind

Yes and some doctors have NO clue what meds are gluten free, just had my family doctor tell me that after giving me an antibiotic for strep throat. <_<

  • 1 year later...
angel-jd1 Community Regular
angel-jd1
Posted
Well, now I use mexican tortillas instead, three of them, layered with gluten-free pizza sause, cheese, mushrooms, some other stuff. Bake it in a toaster oven.

I tried this sort of thing tonight. I took a mission white corn tortilla put it on a Pam'ed baking sheet. Sprinkled some cheese over it, topped it with another tortilla, pizza sauce on the top of that one then toppings (hamburger, pepparoni, mushrooms, onions, green peppers) and then more cheese on that. Baked at 450 for about 10 min.

It was REALLY good. It reminded me of a cross between thin crust pizza hut pizza and those little english muffin pizzas I used to make all before the gluten free days.

I would definately try this again, maybe next time with ham and pineapple mmmm

-Jessica :rolleyes:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    2. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      how much gluten do I need to eat before blood tests?

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in...
    3. SilkieFairy
      - SilkieFairy posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash...
    4. catnapt
      - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

      learned I had a high PTH level in 2022 suspected to be due to low vit D got my vit D level up a bit but still have high PTH I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption
    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      how much gluten do I need to eat before blood tests?

      I am on day 13 of eating gluten and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748
    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash vegetables. I noticed my stools were suddenly formed, if a bit narrow. I knew then that the diarrhea was probably food related not medication related. I tried following the fodmap diet but honestly it was just too complicated, I just lived with pooping 8x a day and wondering how I'd ever get and keep a job once my children were in school.  This past December I got my yearly bloodwork and my triglycerides were high. I looked into Dr. William Davis (wheat belly author) and he recommended going off wheat and other grains. This is the first time in my life I was reading labels to make sure there was no wheat. Within 2 weeks, not only were my stools formed and firm but I was only pooping twice a day, beautiful formed Bristol #4.  Dr. Davis allows some legumes, so I went ahead and added red lentils and beans. Nervous that the diarrhea would come back if I had IBS-D. Not only did it not come back, it just made my stools even bigger and beautiful. Still formed just with a lot more width and bulk. I've also been eating a lot of plant food like tofu, mushrooms, bell peppers, hummus etc which I thought was the cause of my diarrhea before and still, my stools are formed. In January I ran a genetics test because I knew you had to have the genes for celiac. The report came back with  DQ 2.2 plus other markers that I guess are necessary in order for it to be possible to have celiac. Apparently DQ 2.2 is the "rarer" kind but based on my report it's genetically possible for me to have celiac.  I know the next step is to bring gluten back so I can get testing but I am just not wanting to do that. After suffering with diarrhea for years I can't bring myself to do it right now. So that is where I am!   
    • catnapt
      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

      By catnapt · Posted

      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.