Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

When To Test Sibling Of A Celiac?

aerickson8

Recommended Posts

aerickson8 Newbie
aerickson8
Posted

My 5 yr old was dx with Celiac at age 2 and has grown wonderfully and lived a healthy gluten-free life.

Her little sister who is 2.5 has mostly been gluten-free but in recent months I've slacked. The pediatrician (whom i completely trust), told me a couple of weeks ago that I should start regularly giving her a little gluten every day and test her at her 3rd birthday which is at the end of March. I notice that she is more frequently complaining of tummy aches and tonight was in a lot of pain after a trip to the ice cream store where she ate an entire gluten filled cone. I'm wondering if I have to wait 2 more months to have her blood tested, or if I could test her now instead? I don't want to wait and watch her go through any pain if she is in fact celiac.

Do I run the risk of having to draw blood again at the end of March and have her tested now even if the results come back inconclusive? What would you if you were me? I just don't want to see her in pain. I want to know!!

Any advice is appreciated!

Thanks,

Alicia in Mill Creek, WA

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


2Boys4Me Enthusiast
2Boys4Me
Posted

If it were me, I'd have her tested now. It's not as though age three is the magic time where blood tests become definitive proof. If she has to have her blood drawn again in a couple of months, then so be it. I don't mean to be unsympathetic, but if you don't make a big deal of the blood draw and distract her during it, then it probably won't be a big deal. Some M&Ms after wouldn't hurt either.

Many people here will tell you that both blood tests and biopsy in young children is notoriously unreliable. My son had overwhelmingly positive blood results and a positive biopsy at 5 1/2 years old. His older brother had definitely negative results. Neither of my children complained of symptoms, though. We intend to test big brother every couple of years.

Good luck.

Irishlass Rookie
Irishlass
Posted

My dd had a negative blood test, but her symptoms disappeared as soon as we took the gluten out of her diet.

Your dd's body is definitely telling you something- do you need a positive blood test to confirm what you probably already know?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,543
    • Most Online (within 30 mins)
      7,748
    Carol Zimmer
    Newest Member
    Carol Zimmer
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jsingh
      Protein or fat?

      By Jsingh · Posted

      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      High Cost of Gluten-Free Foods

      By Chanda Richard · Posted

      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      That sounds so very likely in my case! I will absolutely ask my doctor on my next bone check coming up in March... Thanks a lot! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.