Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can It Really Be This Simple?


JerryK

Recommended Posts

lonewolf Collaborator

Jerry - I hope you get a positive test result. It seems that you need it for your peace of mind. But what happens if you are like many of us here and don't have Celiac Disease, "just" gluten intolerance. You've already proved to yourself that gluten-free is immensely helpful, so will you go back to gluten if you are among the ranks of the non-Celiac gluten intolerant?

I definitely understand wanting to walk into a doctor's office and telling them a thing or two. I'd love to go see the rheumatologist who told me I'd never run again. I actually thought about wearing my first triathlon T-shirt and finishers medal into his office and showing him how wrong he was. I didn't take a single pill of his toxic medications. He wouldn't listen the time that I did go in, all excited about how much better I was doing on my restricted diet. He told me I would "be back begging for a prescription" and it was all in my head that I was feeling better.

The second doctor that wouldn't listen is a kidney specialist who just said, "I've never heard of this at any conference" and wanted me to try a new medication, even though the disease was in remission and I was really there to make sure I was as fine as I felt.

I really do hope you get the answer you're looking for, but be prepared to do this just because YOU know it makes you feel better.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CMCM Rising Star

It's definitely NOT in the interests of big pharma that people find simple, nutritional solutions to medical problems. Just go spend a morning sitting in a doctor's waiting room..... There's a steady stream of pharma reps coming in to push various drug solutions and give samples (and mostly like incentives) to the doctors to get them to prescribe them.

Hormone treatment drugs for menopausal women was one of THE BIGGEST money makers in the pharmaceutical industry, but they lost that revenue stream so now they've got to make it up other ways. Drugs for indigestion and heartburn are HUGE money makers. Drugs to lower cholesterol are also strongly advertised and pushed. Drug companies don't want people to be persuaded to change their diets so they don't need these drugs...they want dependency on the drugs to assure a huge revenue stream. PLUS....doctors have minimal nutritional training (if any at all) in med school, so they simply are not trained or oriented towards thinking of nutritional solutions.

We are often brought up to think the doctor gods know everything about everything. THEY DON'T. And I sure get the feeling from my own experiences that the whole art of diagnosis has been lost. Just treat the symptoms with drugs, that's the current emphasis in most cases. Never delve down and discover underlying causes so that drugs are not needed....NOOOOO, that's not what they do. Not any more. Just pop the drugs and shut up.

Do I sound negative about doctors? You bet I am. I won't go into that any further, but let's just say I've figured out more thru my own research efforts than I ever have with any doctor! <_<

JerryK Community Regular
Jerry - I hope you get a positive test result. It seems that you need it for your peace of mind. But what happens if you are like many of us here and don't have Celiac Disease, "just" gluten intolerance. You've already proved to yourself that gluten-free is immensely helpful, so will you go back to gluten if you are among the ranks of the non-Celiac gluten intolerant?

Absolutely NOT. I have learned how horrible Gluten makes me feel. I'm hoping to hang on for a couple more weeks, so that I can educate a few doctors. In no way do I plan on continuing eating gluten...I feel awful! It takes about 48 hours of gluten-free before my mood picks up, BUT NOW I KNOW WHAT IS DOING IT, and knowledge is power.

Part of the problem is we've had drilled into us, from day 1, that wheat is good for you. It sounds absurd to be told this healthy food is making you feel bad..UNTIL YOU EXPERIENCE IT FOR YOURSELF.

Sort of like seeing a UFO or Sasquatch....tough to believe until you actually see one.

When I was prescribed trials of various anti-depressants, I was eating an apple fritter every morning... by 10:00 I felt all weepy and anxious. I have that dramatic of a reaction and I had no idea......

I believe it now, finally and I will do what makes me feel best.

I Beeeeeelllliiiieeeevveeee he says in an evangalistic tone ;) Jerry

nikki-uk Enthusiast
I believe it now, finally and I will do what makes me feel best.

I Beeeeeelllliiiieeeevveeee he says in an evangalistic tone ;) Jerry

:lol::lol::lol:

Well glad you do Jerry!!!

Y'know it took my hubby a LONG time after being dx with celiac disease (biopsies - so it wasn't in doubt) to believe that gluten actually gave him ALL of his symptoms and made him SO ill.

He thought the docs had 'missed' something - 'it couldn't possibly be gluten doing that to me'..etc

It wasn't until I found this site that I was able to say to him

''See!!!....All these people get those symptoms too!!''

It IS hard to get your head round - seems wrong somehow - as you say we are taught that 'wholegrain' and suchlike is good for us :blink: ...but at least you know you WILL be able to feel normal again :D

lonewolf Collaborator
I believe it now, finally and I will do what makes me feel best.

I Beeeeeelllliiiieeeevveeee he says in an evangalistic tone ;) Jerry

I'm so glad you're fully convinced. Now you understand why we all encouraged you to give it a try!

Guest lorlyn
It really is that simple. My doctor said that the diet is obviously working so what more do I really need to know? According to her the only thing an "official" diagnosis is going to do is put a pre-existing condition on my medical records and make it difficult if not impossible to get any kind of insurance in the future.

I have had the same thoughts about my husband. My daughter was diagnosed in November and we are sure he has it also. My husband and I are self employed and do not need a pre-existing condition on his medical records.

tarnalberry Community Regular
I believe it now, finally and I will do what makes me feel best.

I Beeeeeelllliiiieeeevveeee he says in an evangalistic tone ;) Jerry

:lol: yay! I'm glad you believe too!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to NCalvo822's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Newly Diagnosed

    2. - knitty kitty replied to Rebeccaj's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      symptoms.

    3. - Rebeccaj replied to Rebeccaj's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      symptoms.

    4. - knitty kitty replied to CeliacPI's topic in Related Issues & Disorders
      8

      Lymphocytic Colitis with Celiac

    5. - knitty kitty replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Finding gluten free ingredients


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,507
    • Most Online (within 30 mins)
      7,748

    PattiDonald
    Newest Member
    PattiDonald
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Hello, @NCalvo822, Blood tests for Celiac Disease test for antibodies our bodies make in response to gluten exposure.  These Tg IgA 2 antibodies mistakenly attack our own bodies, causing problems in organs and tissues other than just the digestive tract.  Joints can ache, thyroid problems or the pancreas can develop.  Ataxia is just one of over two hundred symptoms of Celiac Disease. Some people with Celiac Disease also make tTg IgA 6 antibodies in response to gluten exposure.  The tTg IgA 6 antibodies attack the brain, causing ataxia.  These tTg IgA 6 antibodies are also found in people with Parkinson's disease, though they may not have Celiac Disease.  First degree relatives (parents, siblings, children) of those diagnosed with Celiac should be tested as well.  Celiac is genetic.  Your mom and sister should be tested for Celiac, too!   Definitely a good idea to keep to a gluten free diet.  
    • knitty kitty
      @Rebeccaj,  When you smell toast or pasta cooking, that means that particles of that food are floating around in the air.  Airborne gluten can then be inhaled and swallowed, meaning the food particles get into your digestive tract.   If you're careful to avoid gluten and are still having symptoms, those symptoms could be caused by vitamin deficiencies.  
    • Rebeccaj
      ok thanks for your advice. But my question was what happens when someone you know in a house is cooking pasta or toast that's flour  Airbourne without eating.?
    • knitty kitty
      Do discuss this recent article with your doctors.  Thiamine Vitamin B 1 is important to intestinal health.  Thiamine deficiency can occur in Celiac Disease due to malabsorption.  Supplementing with a B Complex, Benfotiamine, and Vitamin D can help symptoms.   Thiamine deficiency aggravates experimental colitis in mice by promoting glycolytic reprogramming in macrophages https://pubmed.ncbi.nlm.nih.gov/39890689/#:~:text=Our mechanistic study revealed that,necessary to protect against colitis. "Conclusion and implications: Our study provides evidence linking thiamine deficiency with proinflammatory macrophage activation and colitis aggravation, suggesting that monitoring thiamine status and adjusting thiamine intake is necessary to protect against colitis."
    • knitty kitty
      Do keep in mind that most gluten free flours are not enriched nor fortified with vitamins and minerals like gluten containing flours are required to do.   Consuming a diet high in carbohydrates without sufficient B vitamins to digest and process them into energy can lead to High Calorie Malnutrition and weight gain. Deficiency symptoms of B vitamins resemble gastrointestinal symptoms when after eating gluten.  Gastrointestinal Beriberi is a form of Thiamine deficiency.   Do talk to your doctors about supplementing with essential nutrients while on the gluten free diet, especially if you're consuming processed foods.
×
×
  • Create New...