Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

So Depressed!


feedjake92

Recommended Posts

feedjake92 Rookie

I posted in April wondering if I have celiac disease. My son is on a gluten free casein free diet due to allergies and intolerances. I went to the doctor in April with mouth sores and complaining of GI problems. Since I was there I decided to also mention that I was having muscle spasms in my upper back. I didn't mention how many ibuprophen I had been taking for the back pain, didn't think of it until later. Anyway, he ran a CBC then told me to take vitamins for three months and repeat the blood test. He never checked my back only told me to buy a new mattress and ignored me when I said I had already done that. Anyway, about a month later, I went back with severe pain in my upper back and shoulder, a few days later numbness in my fingers. I have since had surgery for a herniated disc in my neck and have been out of work for about three months. I gave up trying to eat the gluten-free diet since it was all I could do to see that my son stayed on his diet. I ate whatever was easy. Several other things have also happened this summer...my son got stitches in his foot, broke up with a boyfriend, had my well pump go out, dog hit by a car ($200 vet bill), still having back pain after surgery, ...sure there is more. Anyway, it has been an extremely stressful summer. I weighed 124lbs in April. When I saw the doctor in May for my back, I weighed 118. I had been eating gluten-free but not trying to diet at all. I now weigh 107lbs and am so weak! I look emaciated! I am 5'2". I tried to take an antidepressant that I got the orthopedic doc to order, but I got so nauseated, I couldn't eat for two days! I am having a lot of trouble just dealing with life! I can't stop crying.

Can celiac disease cause this depression? I really feel that it is more than all the stress of the past few months.

Any words of advice or encouragement would be appreciated.

Connie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

It can, but the stress can too. If you think you may be celiac disease, and there's a nontrivial chance you are, since your son is, I would encourage you to stick to the diet for a while and see if it helps. There may be other things causing your back problems as well, but if you are gluten intolerant, you need to stop eating gluten. Fill your home with things that are easy to eat and gluten free. Make a large pot of rice and keep the leftovers - reheats in three minutes. Keep gluten-free corn tortillas around instead of flour. Keep plenty of eat-out-of-hand fruits and vegetables and bean dips (gluten-free, of course) around that you can eat in a snap. And get rid of any non-gluten-free stuff that you can. It's perfectly healthy to eat gluten-free (though, there is a suggestion to take a vitamin as gluten-free flours, if you used to be a big bread eater, are not enriched) and won't hurt anyone in the family. ;-) (And might make it easier for your son, since there won't be anything in the house he'd be denied.)

Almost forgot: have you been seen by a physical therapist for your back? That's one of the first things a doctor should do for you. If your GP hasn't suggested it, I urge you to see an orthopaedist.

feedjake92 Rookie

I start physical therapy for my neck this week. The doctor wasn't really thrilled about my going back so soon after my surgery, but I am in a real bind with money.

I was pretty much eating what my son eats until I had so much problems with my neck and back. I had a hard time with all the cooking I generally do. It seems cheaper to me to make my own stuff rather than try to find gluten free foods in the stores. There are no health food stores or any of those nice big chain grocery stores that carry the gluten free foods anywhere near me. I usually order the stuff or buy a lot when I make a trip to a health food store. I couldn't do any of those things for a while, because I wasn't able to drive. I think most of my trouble started when I stopped eating the gluten free foods. That's why I think it's celiac disease, but I didn't realize that could be what caused the depression to get so bad.

Thanks for your response.

Canadian Karen Community Regular

I would say that depression is actually a major symptom of celiac disease.... Not only because of the malnutrition and malabsorption, but secondly because each time I get "glutened", it puts me on an emotional roller coaster. Also, another reason that depression is common with celiacs is because many celiacs also have hypothyroidism (like me) and depression is related to that auto-immune disease also.....

Karen

j9n Contributor

I am so sorry you are having such a rough time. I think just feeling ill so much can cause depression. I am having a hard time fighting it.

About your back pain, have you had test for others things to rule out? I have a hiatal hernia and GERD which causes me back spasms sometimes. I think my whole digestive system is a mess. I also get right shoulder pain which is why I am convinced I have something else going on such as pancreatitis or gallbladder, been to an orthopedic surgeon, mri etc.

As far as food goes I try to keep certain canned foods on hand. gluten-free fat free chicken broth, canned veggies, canned tomatoes, etc for a quick and healthy soup. I buy bulk rice and potatos. Canned beans, hamburger in the freezer or turkey for a quick chili.

I hope this helps!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.