Would These Resuls Make It Almost Certain?

[JennK]

Hi, all...

We just got results from my 8yo daughter's celiac antibody profile. The doctor said her AGA is 70 (he said normal is <20), but the other two tests were normal. At the time of the bloodwork, she'd been gluten-free for five weeks (her twin brother is on the autism spectrum, and we'd gone Gluten-free Casein-free to help his issues).

I'm waiting to hear back about a referral to a pediatric GI, but in the meantime, I was wondering if this result means she almost definitely has celiac disease or if there's still any doubt. Would the other two antibodies be within normal range because of the Gluten-free Casein-free diet? If this isn't celiac disease, what could it be? She's always been slow to gain weight, has almost-daily nosebleeds, and suffers from patchy hair loss, as well as having had months of diarrhea and stomach pain/headaches she'd never told us about until we started the Gluten-free Casein-free diet.

Thanks!

Jenn

[CarolynM]

Jenn

Did her GI symptoms improve once starting the Gluten-free Casein-free diet? Most of us here consider that a test in itself. You could also do a gluten challenge.

[JennK]

She's still getting nosebleeds, but she hasn't had diarrhea since about 4 days after going gluten-free. She's also not complaining of headaches and stomach aches anymore.

If we're going to do a challenge, I'm going to try to work out the timing with the pediatric GI so they do the biopsy at the same time. My daughter does NOT want to go back on gluten (or casein) because she's feeling so much better without it.

Jenn

[jendenise]

Well it sounds like it's making her feel better, it's great that you know about the benefits of being gluten-free to help autism. If you do a challenge you're right on with timing them together. And, if she decides to be gluten-free anyways at least you are already knowledgeable about gluten-free foods.