How Frequent Are Your Symptoms?

[Antonia Foster]

Hello,

I'm new to the forum and while I've been reading for a while and utilizing the search function, I couldn't find this specific question: "How Frequent Are Your Symptoms?". If I missed it along the way, I do apologize for redundancy.

I am waiting for results on my second endoscopy (the 1st biopsies were destroyed) and while I'm not sure what the problem is, I find myself wondering if it is all in my head. I feel fantastic today. I ate wheat this morning and I have no gas problems, no abdominal pain, and at this time, no D or C. I am starting to wonder if it is in my head, yet I know I've struggled with problems off and on for a few years.

Anyhow, do your symptoms come and go within a week? Do you have D & C or other symptoms every single day? I have other, less prominent symptoms, but the gas, pain, and D & C are the main ones.

Any insight and any type of response to the initial question about the frequency of your symptoms is appreciated. I do understand that everyone varies and not all of us have been diagnosed (yet).

Thanks.

[Guest cassidy]

When I was eating gluten I didn't feel crappy everyday. I get intestinal issues and migraine type headaches, but I didn't always have them. I didn't even realize that I had intestinal issues because it just seemed normal to me. The headaches were worse at certain times, I remember when I first went to college they were very bad and maybe during times of stress, but certainly not everyday. Reflux is another symptom I have when glutened. I had surgery for it when I was 10 and took medicine on and off but I would go years without refluxing when I was eating gluten.

So, I can't tell you exactly how frequently I feel bad, especially when I didn't know I felt bad because I was so used to it, but having a good day doesn't mean that you don't have a problem with gluten. You may think you feel good today, but you might not even know what feeling good is. Someone mentioned a while ago about colds. I used to catch many colds and now being gluten-free I really don't get sick. I thought colds were normal so it is hard to say how many things like that were really due to gluten and and how bad it really made me feel.

Now, when I'm glutened it all hits me at once - the intestinal issues, headaches, reflux, brain fog and it takes a good 3 weeks for me to feel good again.

I don't know your specific situation, but I doubt any of this is in your head, even if the biopsy is negative. If people have come here it is usually because they have had a long road of sickness and the diet usually helps. If you haven't tried the diet, why not give it a try and see if you feel better? Hope you get some answers.

[Antonia Foster]

Thank you for your understanding and support, Cassidy. I guess I feel/felt as if I should be feeling awful everyday, but you make an interesting point that I may not even know what feeling good is like.