Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Advice Please


CoolCat1

Recommended Posts

CoolCat1 Rookie

I lost weight,had anemia for months, diarrhea/bloating for years and finally had a biopsy in July. I have been on sick leave from May till this month.I started working half time mornings after much flack/opposition (I was working afternoons teaching for years and my principal didn't want to let me change to mornings until I got my federation to help me). I am feeling so tired I'm wondering if my iron level is way down again. In April/ May, I got 13 iron injections. By the time I saw my GI (August)he told me my iron level was now low normal. I find that odd since I should have been higher. Now, I'm working again and I'm so tired in the afternoons. The school board said they would only have me work mornings until May. I will also be getting another job evaluation done. This is also stressful to me. I am dreading that they may force me to go back to afternoons or transfer to another school. This too will be stressful. I have only one more year till I can retire after this year. There are still other stresses...my husband's depression, environmental allergies, my teenage kids etc. Will it do me any good to go back to the GI or will he just say I'm tired because my body isn't absorbing iron and forget about it? I've been thinking I should go to the head of Human Resources and ask to be kept on mornings. :unsure:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



judy04 Rookie

CoolCat.

Were you diagnosed with celiac disease? If you have a definite diagnosis then

I think your workplace would have to accomadate you, there is something

about that in the American Disabilities Act about that. Can someone

help me out here?

lovegrov Collaborator

I think we need more info. Do you have celiac? Are you gluten-free? Have you considered possible bacterial overgrowth and tried a probiotic? If you weren't diagnosed as celaic and haven't gone gluten-free, have you considered going gluten-free anyway?

If you have been diagnosed and are gluten-free, I know that two months after my diagnosis I was still physically incapable of returning to work. It was 4-5 months before I could even do a full day.

WARNING: I am not a lawyer or ADA expert. If you have a definite diagnosis, the ADA might help as far as transferring to a.m. teaching as that might be seen as a reasonable accommodation. It won't help if somebody just too sick to function.

Hang in there and keep trying. You need that one more year.

richard

CoolCat1 Rookie

Yes I was told during my Endoscopy on June 28 that I had celiac disease and when I went to my office visit on Aug. 4 ths GI told me my small intestine was severely damaged with completely flattened villi and no ridges. I have been gluten-free since June 28 with a few errors. I had a medicial certificate from my doctor saying I have celiac disease and I had a severely damaged intestine and that I needed a work change because of my physical condition and also stress. He said he couldn't definitely sayI needed to work mornings because of law suits relating stress to celiac disease. I made a deal to stay mornings until May 05 with the help of my union. There was no way I wanted a transfer and luckily there wasn't one available. I guess I'm worried if they tell me I need to go to the afternoons in June and stay there the following year and I just don't know if I could cope with the stress. Last year's teaching was just awful with me having anemia, fatigue,stress from my class, which had at least half of them with emotional problems/ADHD etc. and my husband's depression. I also couldn't sleep because of bloating and I'm still having problems with sleeping and am now taking half a sleeping pill at night. Labour laws in Ontario, Canada say I should be accomodated but I hesitant to make waves because of the control freak principal I work for.

judy04 Rookie

Dear CoolCat,

I don't know anything about Canada for which I'm sorry, but do you have anything

like Social Security Disability for which you could apply? I know it is hard to get in the USA, although some people seem to get it. The fact that you are under so much

stress and you have a cooperative physician might help. Is there anyway that

they could accomadate you by changing to another job, perhaps behind a desk

to get you through the year. I know how a controlling boss can be, I still have nightmares about mine and I haven't been around her for several years. Please

let us know how you are doing.

CoolCat1 Rookie

Thanks for trying to help. I doubt if I can get Long Term Disability because my GI said that I could be better in a matter of weeks to months. I have another biopsy scheduled in February. I suppose I could always take sick days but if they occur more than 3 days I would need a doctor's certificate. I guess I should take another blood test to see if my iron is lower. My allergies are bad too right now. Could it be allergies that make me so sleepy? Will allergies get better once I'm healed up? lovegro, I think I do need more than up to May next year. I guess I better get some more medical evidence first before I see the head of Human Resources. He should be able to overide what my control freak principal wants.

tarnalberry Community Regular

Oh yes, allergies can definitely make you sleepy.

They may or may not improve on a gluten-free diet - depends on what you're allergic to.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CoolCat1 Rookie

Thanks, Tiffany. It seems as if I'm better today but my allergies(environmental: grasses,pollens) are better today and I'm not at work either. I guess I'll see tomorrow with increased stress whether that's the problem. I think I'll see how tired I am this week and if its bad I'll phone my gastrologist up and ask to see him.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - marlene333 replied to Grace Good's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Bee balm lipbalm not gluten free

    2. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues

    3. - Scott Adams replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

    4. - catsrlife replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

    5. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,263
    • Most Online (within 30 mins)
      7,748

    Elyn Joy
    Newest Member
    Elyn Joy
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • marlene333
      To play it safe, use Vasoline Lip Therapy. No questions as to it containing gluten.
    • Mari
      jmartes, Thank you for sharing  more information with us. Most of us Celiacs whose problems do not clear up with in a few years have to decide what to do next. We can keep seeing DR.s and hope that we will get some  medication or advice that will improve our health. Or we can go looking for other ways to improve our health. Usually Celiac Disease is not a killer disease, it is a disabling disease as  you have found out. You have time to find some ways to help you recover. Stay on your gluten-free diet and be more careful in avoiding cross contamination . KnittyKitty  and others here can give you advice about avoiding some foods that can give you the gluten auto immune reaction and advice about vitamins and supplement that help celiacs. You may need to take higher doses of Vit. B12  and D3.  About 20 years before a Dr. suggested I might have Celiac disease I had health problems that all other Dr said they could not identify or treat. I was very opposed to alternative providers and treatments. So many people were getting help from a local healer I decided to try that out. It was a little helpful but then, because I had a good education in medical laboraties she gave me a book  to read and what did I think. With great skeptism I started reading and before I was half way through it I began using the methods outlined in the book. Using those herbs and supplements I went from hardly able to work to being able to work almost fulltime. I still use that program. But because I had undiagnosed celiac disease by 10 years later some  of my problems returned and I started to loose weight.    So how does a person find a program that will benefit them? Among the programs you can find online there are many that are snake oil scams and some that will be beneficial. by asking around, as I did. Is there an ND in your area? Do they reccomend that person? If you would like to read about the program I use go to www.drclark.net   
    • Scott Adams
      It's unfortunate that they won't work with you on this, but in the end sometimes we have to take charge of our own health--which is exactly what happened to me. I did finally get the tests done, but only after years of going down various rabbit holes and suffering. Just quitting gluten may be the best path for you at this point.
    • catsrlife
      My doctor didn't take the time to listen to anything. I don't even think she knows what it means. She is more concerned about my blood pressure that is caused by her presence than anything else and just wants to push pills at me. The so-called dermatologist wouldn't do a skin test. she prescribed all of these silly antihistamine skin meds. This lady didn't even know what she was talking about and said "they never turn out as celiac, they usually just say it's dermatitis so here's your meds," just like my regular quack. I'm trying to change insurance companies at the moment and that has been a battle because of red tape, wrong turns, and workers having wrong phone numbers. What a joke! The allergy blood days say I have a wheat allergy of .31. Hopefully it's just that and until I find a decent doctor and dermatologist, I'll just lay off the wheat anyway, since it gives me asthma, high blood sugar, and joint pain. So frustrated at this point. The rash on my back of arms/elbows is mostly gone. Both calves and chest have started up. smh. It comes and goes. It fades faster now, though, although my forearms still produce one or two bumps on each side. The itching has calmed down a lot except for the bump area. I have dry skin to begin with so anything affecting it just makes it crazy. i'm never going to eat wheat again. I don't care if they need it to produce results or if it is just an intolerance, allergy, or celiac. It gives me hell.
    • Jmartes71
      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from sciatica or sibo, ibs or hidden gluten. Im in disability limbo and I should have never been a bus driver because im still suffering and trying to heal with zero income except for my husband. This isnt fare that my health is dictating my living and having ti beg for being revalidation of my disregarded celiac disease. Its an emotional roller coaster I don't want to be on and the medical made it worse.New pcp new gi, exhausted, tired and really fed up. GI doctor NOT girl..
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.