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Celiac And Relations To Other Diseases

Guest memoryofaspyn

By Guest memoryofaspyn
in Related Issues & Disorders

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Guest memoryofaspyn
Guest memoryofaspyn
Posted

2 years ago my oldest daughter passed away from a genetic condition called mitochondrial disease, ( I miss her so much!!) and with it she had a condition called lactic acidosis. Since this condition is genetic, it was at first thought that I to had the condition and passed it on to my daughter. I have had sever muscle aches, especially in my legs and lower back all of my life. just recently i have gone to the doctor to try and get some answers about my own health I asked the doctors to run the lactic acid test, that is when they decided to also test me for celiac.

I have been searching high and low to find out if my daughter may have also had celiac, she was 8 months old when she passed away, and she only weighed 11 lbs, but with Mitochondrial disease it is common for children not to gain weight, but I am wondering since I was nursing and didnt know I had celiac, was she getting all the nutrition she needed?

Did my celiac add to her already severe condition and make it worse? Sorry about the rambling, but I am searching for answers, I miss her terribly, and want to know all I can. We have another baby now who has a 1 in 4 chance of having the same condition, and I want to make sure we are doing everything we can to make sure she will be fine. if anyone is interested you can visit my daughter Aspyn's website at www.aspynblock.com Thank you all for reading this, and if you have any information, or anything to share, please do so. Thank you again.

  • 3 weeks later...
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tarheel Newbie
tarheel
Posted

I have probably had gluten intolerance all my life, but didn't find out until my children (two boys) were grown.

I nursed both of them until they were 12 months and 9 months respectively. This is probably the best thing you can do for your children. Today neither of them have health issues, though I've urged them to be tested for gluten intolerance. I did have one stillbirth before I had them, and before that, lost one child to a brain tumor at age 2 1/2. I was not successful nursing her. Gave up too easily.

Just pay close attention to your nutrition, take vitamins your obgyn recommends and nurse your babies for as long as you can.

My heartfelt good wishes are with you.

Tarheel.

Guest jhmom
Guest jhmom
Posted

Stacy,

I have no advise to offer you regarding your questions :( but I wanted to say I am truly sorry for your loss, she is a beautiful baby girl.

God Bless you and your family

  • 4 months later...
Guest memoryofaspyn
Guest memoryofaspyn
Posted

Tarheel, and Stacie,

Thank you so much for your reply, and for your kind words, it is much appreciated.

Tarheel, I am so sorry to hear about your daughter, thank you for sharing with me.

Stacy Block

www.aspynblock.com

anerissara Enthusiast
anerissara
Posted

I don't have any words of wisdom, but I wanted to say that I am so sorry for your loss. She was a beautiful baby, and was clearly so bright and happy...I said a prayer for you and for your family, I can only imagine how hard it must be. I am glad your second daughter is healthy, and will keep her in my prayers as well.

Tarheel, I am sorry for you loss, too...I am going to go in and give my little ones an extra hug tonight, and say a prayer for these little angels.

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