Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

The Long Awaited Appointment Is Near

GEF

Recommended Posts

GEF Explorer
GEF
Posted

After about a 2 month wait, my appointment with the highly recommended celiac specialist is on Friday (10/8). Yeah!! I met him during a local GIG meeting and spoke with him for a few. He's a GI spec and is head of nutrition at one of our leading hospitals. He'll be running the HLA tests (gene typing) and will probably repeat the endoscopy (since I got it 2 years ago and only 3 samples were taken). I've been in gluten limbo for all this time, so it will be nice to get all these tests done and possibly get some answers. I've been reading much and feel well-prepared by the forum community.. so my thanks.

PS... anyone in doubt of whether they should change their current doctor should request a copy of their medical records. :lol: My previous doctor totally lied about continuing tests and made it out like I didn't want to do them... he's the one that suggested I not.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Happycat Rookie
Happycat
Posted

Good Luck and I hope all goes well. Please let us know how it goes on friday.

Lisa :)

GEF Explorer
GEF
Posted
  • Author

I must say that I'm very pleased with my visit to the doctor... he was extremely thorough. I spent over an hour in his office speaking with him about everything I knew and why I was there... I didn't leave out a thing! I even mentioned my recent vertigo spells (which haven't occured in a while). They drew about 4 vials of blood and he is re-running the thyroid (because I'm very cold intolerant), a complete metabolic panel w/ sed rate, will check for b12 & some other common deficiency which I can't remember, he'll also re-check my liver (because my ind. bilirubin is always high), re-run some celiac tests, check for intestinal inflamation and here's my favorite and the most anticipated... the HLA (gene typing)!! It will be a couple of weeks before these results come back. In the meantime, he gave me his card with his e-mail address and told me if I had any questions or concerns that he'd be sure to get back with me asap.

My anti-gliadin antibodies are positive, but low-positive... he's wanting to make sure that celiac is not down the road for me.

I like this doctor and the downtown trip was certainly a pain in the butt... but so worth it.

Gretchen

GEF Explorer
GEF
Posted
  • Author

I received a call from my doctor today (less than a week from the test date!!). Anyway, it's good news! He performed the HLA (gene typing) and I'm negative for both DQ2 & DQ8. Apparently I will never develop full blown celiac.

After the wedding sometime (which is 11/6), he might want to perform the ELISA testing to see if that's where the cause of my symptoms are coming from.

Gretchen

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Francis M
      - Francis M replied to Francis M's topic in Gluten-Free Restaurants
      2

      The Happy Tart review

      When my wife attempted to open the online card in the store with a cashier, it would not work. We then showed the owner the link to the card, the online receipt that I got upon purchase, and even my bank statement confirming the purchase. That did not satisfy her, since she said she needed the link to open to reveal the gift ID num. They even admitted they...
    2. trents
      - trents replied to Francis M's topic in Gluten-Free Restaurants
      2

      The Happy Tart review

      Was the card itself lost or just the record or both?
    3. Francis M
      - Francis M posted a topic in Gluten-Free Restaurants
      2

      The Happy Tart review

      We were flabergasted that the owner would not acknowledge a $50 e-gift card I purchased for my celiac wife. My wife tried to open it in the store and was informed there had been a system change and they could not find the record. No worries, she was told, just talk to management. Six months later, and numerous absurd back and forths, and the owner literally...
    4. trents
      - trents replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Ibuprofen

      Yes, some people do get withdrawal from gluten but gluten withdrawal doesn't usually cause gut pain. Maybe more like general body aches and discomfort. We have articles on gluten withdrawal on this forum. You might do a search for them. Applesauce is very acidic and some brands have added vitamin C (ascorbic acid) which makes them more acidic. This can...
    5. Colleen H
      - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Ibuprofen

      Do you or anyone know alot about ibuprofen I wasn't sure if I was eating too much apple sauce. Something is making my pain so much worse I'm referring to the intense pins and needles in my feet and lower legs. Jaw actually has tardive dystonia and muscle spasms throughout my back Almost like an opposite effect that a pain reliever...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,851
    • Most Online (within 30 mins)
      7,748
    Nano1181
    Newest Member
    Nano1181
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Francis M
      The Happy Tart review

      By Francis M · Posted

      When my wife attempted to open the online card in the store with a cashier, it would not work. We then showed the owner the link to the card, the online receipt that I got upon purchase, and even my bank statement confirming the purchase. That did not satisfy her, since she said she needed the link to open to reveal the gift ID num. They even admitted they had a systems problem around that time.
    • trents
      The Happy Tart review

      By trents · Posted

      Was the card itself lost or just the record or both?
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      We were flabergasted that the owner would not acknowledge a $50 e-gift card I purchased for my celiac wife. My wife tried to open it in the store and was informed there had been a system change and they could not find the record. No worries, she was told, just talk to management. Six months later, and numerous absurd back and forths, and the owner literally informs me there have been "bad actors", so she can't make good on this lost gift card. In other words, she accused me of lying and committing fraud... over $50! Please be careful with your orders and purchases here.
    • trents
      Ibuprofen

      By trents · Posted

      Yes, some people do get withdrawal from gluten but gluten withdrawal doesn't usually cause gut pain. Maybe more like general body aches and discomfort. We have articles on gluten withdrawal on this forum. You might do a search for them. Applesauce is very acidic and some brands have added vitamin C (ascorbic acid) which makes them more acidic. This can damage the stomach lining if you eat it too often. Especially if your stomach lining is already compromised. Ibuprofen inhibits the body's ability to rebuild the stomach's protective mucosal lining. That's why it can cause peptic ulcers. As strange as it may sound, low level irritation/inflammation stimulates the body to rebuild the stomach lining. There are two steps in this rebuilding process known as COX 1 and COX 2. Ibuprofen represses both COX 1 and COX 2. Celecoxcib, a prescription anti inflammatory, inhibits only COX 2, making it less likely to cause damage to the gut lining.
    • Colleen H
      Ibuprofen

      By Colleen H · Posted

      Do you or anyone know alot about ibuprofen  I wasn't sure if I was eating too much apple sauce.   Something is making my pain so much worse  I'm referring to the intense pins and needles in my feet and lower legs.  Jaw actually has tardive dystonia and muscle spasms throughout my back Almost like an opposite effect that a pain reliever would do. I'm fairly new to this. Whatever is going on seems to be worsening  Do people get a withdrawal effect from gluten?  It's extremely painful 😖  I'll post that question or research on the site  Thank you everyone for responding 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.