Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blood Test

Niteyx13

Recommended Posts

Niteyx13 Explorer
Niteyx13
Posted

Hi all! It has been at least a month since I have posted in here. I have been back on the gluten diet for almost 2 months, and I am utterly misearable! I had my blood test today, and I should have my results by friday. If they are positive ::praying they are because I am sick and tired, and I just want to know what is wrong with me once and for all:: I am going to assume I am a celiac - without the endoscope. My son is having tummy troubles, and his dad has said he will accept a blood test diagnosis from me, and has agreed that we can get our son tested if that is the case. Yay!

Wanna know something scary? I read an article on Ovarian cancer, and the symptoms are almost exact to celiac disease (and of course all the other diseases that celiacs are mis-diagnosed with). It was very scary, but I realize that I have had these problems far too long; I would be dead by now if it were cancer. But, I really hope awareness is raised on celiac disease AND ovarian cancer - since there are so many ongoing problems from celiac disease, and since Ovarian cancer is very hard to find in the early stages.

Anyway, hope all is going well with everyone! God Bless! :P

Deanna

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarolynM Newbie
CarolynM
Posted

Deanna

Praying for your physical and mental health - hope you get some answers. Have you returned to a Gluten-Free diet - maybe some relief?

Niteyx13 Explorer
Niteyx13
Posted
  • Author

I am going gluten-free again after the weekend. My husband is taking me out to my favorite italian restaurant, and I am entertaining some friends tonight. I am actually excited to get back gluten-free again, and even if my blood test is negative I will stay gluten-free. Thanks!

Deanna

:)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jhona's topic in Introduce Yourself / Share Stuff
      18

      Does anyone here also have Afib

      I know I'm late to the party, but I thought these articles are very interesting. Doctors don't recognize vitamin deficiency symptoms. Thiamine deficiency is linked to Long haulers syndrome, too. I had palpitations that only resolved with thiamine Vitamin B 1 supplementation. Association of vitamin B1 with cardiovascular diseases...
    2. knitty kitty
      - knitty kitty replied to ohmichael's topic in Super Sensitive People
      16

      Curious if I should quit my job

      @ohmichael, Have you tried contacting your state's Employment Services? There should be job opportunities and training programs especially for previous service members and veterans. Look into trade schools. Some offer training programs which provide scholarships and housing, and possible employment after completion. Some scholarships are funded...
    3. knitty kitty
      - knitty kitty replied to badastronaut's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Still unsure.....

      @badastronaut, I'm so glad you got your folate and zinc up! I'm a big fan of Benfotiamine. It's a form of thiamine that promotes intestinal healing. I take 250 mg Benfotiamine with the first two meals of the day along with a B 50 Complex. The B vitamins all work together so taking a B Complex with Benfotiamine is great. I also take a form of...
    4. knitty kitty
      - knitty kitty replied to nanny marley's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Help needed

      @nanny marley, I had great improvement by supplementing with a B Complex and extra thiamine in the form Benfotiamine which promotes intestinal healing. I followed the AutoImmune Protocol Diet developed by a doctor with Celiac Disease herself, Dr. Sarah Ballantyne. The AIP diet removes everything from the diet that can be irritating or hard to digest...
    5. cristiana
      - cristiana replied to Redlima's topic in Related Issues & Disorders
      3

      SSRI stopped working after gluten free diet due to Celiac diag

      Hi @Redlima My anxiety hit before diagnosis, and in fact it was anxiety which led me to see a doctor who put me on the road of various blood tests which revealed iron deficiency, raised globulin levels and borderline B12. At first my GP suspected a type of cancer, and didn't really know what else to make of it until about six months down the road when...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,712
    • Most Online (within 30 mins)
      7,748
    SB04
    Newest Member
    SB04
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      I know I'm late to the party, but I thought these articles are very interesting.   Doctors don't recognize vitamin deficiency symptoms.   Thiamine deficiency is linked to Long haulers syndrome, too. I had palpitations that only resolved with thiamine Vitamin B 1 supplementation.   Association of vitamin B1 with cardiovascular diseases, all-cause and cardiovascular mortality in US adults https://pmc.ncbi.nlm.nih.gov/articles/PMC10502219/   Vicious cycle of vitamin B1 insufficiency and heart failure in cardiology outpatients https://pmc.ncbi.nlm.nih.gov/articles/PMC11579856/   Micronutrient deficiencies and new-onset atrial fibrillation in a community-based cohort: data from PREVEND https://pmc.ncbi.nlm.nih.gov/articles/PMC11772465/   Spontaneous Recovery of Isolated Advanced Heart Block in Patient with Celiac Disease by Starting a Strict Gluten Free Diet: A Case Report and Review of the Literature https://pmc.ncbi.nlm.nih.gov/articles/PMC10482138/   The Efficacy of Vitamins in the Prevention and Treatment of Cardiovascular Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC11432297/   Thiamine deficiency disorders: a clinical perspective https://pmc.ncbi.nlm.nih.gov/articles/PMC8451766/   Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/#:~:text=Benfotiamine (Fig.,]%2C [62]].   Recovering from Long Covid with Thiamine https://hormonesmatter.com/recovering-from-long-covid-with-thiamine/ https://hormonesmatter.com/covid-19-thiamine-interview-with-dr-derrick-lonsdale/
    • knitty kitty
      Curious if I should quit my job

      By knitty kitty · Posted

      @ohmichael, Have you tried contacting your state's Employment Services?   There should be job opportunities and training programs especially for previous service members and veterans.   Look into trade schools.  Some offer training programs which provide scholarships and housing, and possible employment after completion.  Some scholarships are funded by employers looking for specifically trained employees. Choose a career path in something you enjoy doing.   I agree with @Scott Adams.  Play your cards close to your chest.  Get your ducks in a row before discussing leaving the gluten aisle where you work now.  Managers can and will fire you really easily, like Scott said.   Prayers and Best Wishes sent.  Keep us posted on your progress!
    • knitty kitty
      Still unsure.....

      By knitty kitty · Posted

      @badastronaut, I'm so glad you got your folate and zinc up! I'm a big fan of Benfotiamine.  It's a form of thiamine that promotes intestinal healing.  I take 250 mg Benfotiamine with the first two meals of the day along with a B 50 Complex.  The B vitamins all work together so taking a B Complex with Benfotiamine is great.  I also take a form of thiamine called TTFD (tetrahydrofurfuryl disulfide) which helps immensely with brain function, anxiety and depression.  Start off with small doses (50 mg) and increase doses as long as you see improvement.     https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/#:~:text=Benfotiamine (Fig.,]%2C [62]].
    • knitty kitty
      Help needed

      By knitty kitty · Posted

      @nanny marley, I had great improvement by supplementing with a B Complex and extra thiamine in the form Benfotiamine which promotes intestinal healing.  I followed the AutoImmune Protocol Diet developed by a doctor with Celiac Disease herself, Dr. Sarah Ballantyne.  The AIP diet removes everything from the diet that can be irritating or hard to digest.  After a period of time to heal, other foods are slowly added back into the diet if tolerated.   For more stories of my journey, read my blogs by clicking on my name and choosing activities in the dropdown menu.
    • cristiana
      SSRI stopped working after gluten free diet due to Celiac diag

      By cristiana · Posted

      Hi @Redlima My anxiety hit before diagnosis, and in fact it was anxiety which led me to see a doctor who put me on the road of various blood tests which revealed iron deficiency, raised globulin levels and borderline B12.  At first my GP suspected a type of cancer, and didn't really know what else to make of it until about six months down the road when I started to get diarrhea and was losing weight.  That then led another GP to do more tests and coeliac disease was the culprit. Clinical anxiety can be very scary indeed and I suffered with a horrible, irrational phobia at that time, too.  I could hardly think straight.  My GP put me onto citalopram but also, thankfully, I found a couple of books that helped me to get through this time and I always mention them on this forum, at the risk of repetition, because they were a huge help to me. Paul David's 'At Last a Life' book (and his forum), as well as Dr Steve Llardi's 'The Depression Cure' book which looks at things which we neglect in modern life, such as physical exercise, omega-3 fatty acids,  natural sunlight exposure,  restorative sleep,  social connectedness and  meaningful, engaging activity.  These things can really make a difference.   At the same time, my vitamin and mineral deficiencies were addressed.  Have you had your levels checked, particularly B12 and iron?  These are particularly important as deficiencies can really affect people's mental health.  If they are low or low normal, get your doctor to prescribe some supplements, but at the same s/he needs to keep an eye on iron going forward, as too much in the blood is dangerous.  I found B12 incredibly helpful in feeling better in the early stages of my recovery - sometimes, it was almost like night and day just a few hours after taking it.  (Someone on this forum recommended Solgar sublingual tablets, they are great.) My anxiety started to get a lot better after a few weeks but there were setbacks which made me at times think I'd not recovered, or perhaps ever would.  But like a jagged line on a chart, which has ups and downs but over all has an upward trajectory, I did get better in the end.  I hope that you will find the same, and that perhaps some of this story has helped.  
×
×
  • Create New...