Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hotel Living Making Me Sick...


redharmony

Recommended Posts

redharmony Newbie

I feel bad saying this but...it makes me so happy to hear you have numbness too! The numbness REALLY freaks me out. I'm so sorry for everything you had to go through. Yes, sometimes I look at all I've done in the past 6 months and I can't believe it. I am woman - hear me roar!

We put our house on the market at the end of January, the real estate market in CA had *just* started to slow down and I was terrified I was going to be living there for at least 10 months trying to sell our house. Somehow, we sold it (over price even!) in 2 days. But by the time you go through escrow and inspections and packing, it still feels like an eternity. I can't imagine what you went through! I mean, I imagined it, but I don't think I would have made it through. When is corporate America going to *get* that what they do to people is not ok! and is damaging families in this country! Sorry....I digress.... I've heard our story more times now than I can count.

I still feel VERY fatigued, but not "spacy" which is a HUGE improvement. My heart is not racing and the weakness is still there but not quite as debilitating. I am also peri-menopausal, and many women in menopause have these same symptoms, but I *know* the gluten is making me sick, so if I can get that out of my system, then I'll know for sure that whatever is left over is menopause. I wonder how many of the menopausal women I know are celiac's and just don't know it? I also have horrible insomnia which is menopause related but I also know that when I don't eat gluten, I sleep. The gluten in my diet is not a question mark for me, so, first things first.

I keep hearing from celiac's and from menopausal women that the numbness is totally common, but NEVER that a doctor will admit they are connected!! It seems that 200 people can line up with exactly the same diagnosis and symptom and the doctors still won't admit that there might be a connection. Why is that?

Has anyone ever had a doctor who admitted that the numbness is related at all? Of course...which came first....the numbness or the anxiety?? When I get numb, I get more anxious which makes me numb.... It feels vaguely like novacaine wearing off.

Went our for breakfast today - at Ihop of all places! Celiac HELL. Husband and son had pancakes.... and I had a T-bone steak and steamed broccoli! The difference in how I feel afterwards is enough to make a believer out of anyone. I am also extremely calm and almost never lose my temper without gluten It's so nice.

The better I feel, the easier it gets to stick to it!!

Thanks everyone!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JNBunnie1 Community Regular

Way to go! I think I can hear that roar all the way up here!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,893
    • Most Online (within 30 mins)
      7,748

    Sgp
    Newest Member
    Sgp
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
    • trents
      You state in an earlier post that you don't have celiac disease. Here in this post you state you will "be doing another test". What will this test be looking for? What kind of celiac disease testing have you had done? If you have used a Entero Labs it sounds like you have had stool testing done for celiac disease which is not widely accepted as a valid celiac disease diagnostic testing method. Have you had blood antibody testing for celiac disease done and do you realize that for antibody testing to be valid you must have been eating generous amounts of gluten for a period of weeks/months? 
    • Gigi2025
      No, I've not been diagnosed as celiac.  Despite Entero Labs being relocated to Switzerland/Greece, I'll be doing another test. After eating wheat products in Greece for 4 weeks, there wasn't any reaction.  However, avoiding it here in the states.   Thanks everyone for your responses.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.