Parents: Feeding Your Suspected Cd Kid Gluten?

[sashabetty]

My 2 yr old is a suspected Celiac, and she was gluten-free for 9 months, and has been eating gluten again for almost 3 months.

So far the blood tests are inconclusive and she has one gene. She is getting an endoscopy later this month.

Since going back on gluten she has been cranky and clingy, but also has meltdowns where she can't stand to be picked up and yet she really wants to be held. Her belly is bloated, which makes her belly button stick out like the "done" button on a turkey. Her stools had been smelly but inconsistent, and in the past week they are runny, frequent (2-3 day average) and mucousy or nothing but mucous, and she seems to be feeling worse. I want to do the endo and get her back eating gluten-free, but it's going to be harder to go back to gluten-free, I really do dread it now.

How are other kids coping with gluten eating?

[Guest Libbyk]

I don't know much at all about the gluten test, but I wanted to let you know that when I was really sick, one of my symptoms was that all my skin would hurt. I could never expain it, but I felt like a cat being pet the wrong way, only WAY worse. Even clothes hurt me. The thing that always made that particular thing better was a bath.

anyhow, I thought that if your daughter felt in any way like that, it could be why she both wants to cuddle and can't stand to be pciked up. I Have to say, when things were really bad for me (at age 23) I felt just like your 2 year old. Poor thing. Hope you are ablt to wrap up your testing phase quickly.

Lib

[azedazobollis]

LIBBY!!! Oh my goodness! My daughter was the same way until we omitted gluten from her diet! I didnt even relate that as a symptom! She has always had clothing issues that I never related to her physical discomfort. I just assumed my kids only liked soft cotton clothing. lol. In fact as a baby, I cloth diapered Zobey because she would cry in disposbles. hmmm. Interesting.