Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Experience

RavenFeather

Recommended Posts

RavenFeather Newbie
RavenFeather
Posted

It all started around April of '04 with Pancreatitis. That was just cause my bile duct was connected too high up inside my body. I had and ERCP, the doctors fixed that by putting in a stint and a tube to help drain the bile. I had another ERCP to remove those stints and too put in a smaller one. But as those pain went away others came into play. The doctors finally checked my liver enzymes to find out that those were elevated. Around the month of July we were informed of Celiac Disease and the Gluten-Free Diet, so we tried it. But we soon found out that there are so many hidden sources of gluten.

Over the past 6 months I have had 3 ERCPs, over 25 blood test and over 10 doctor visits or check-ins for the hospital. I've lost over 50 pounds while being sick. For the beginning of my life I didn't have celiac disease, it was to believe to be triggered by the pancreatitis.

I am a 14 counting down to 15 in a few months (2/14), I attend High School and the school Marching Band. I want to know if anyone else was unusually diagnosed with celiac disease and if anyone lives in the Raleigh, North Carolina area.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,246
    • Most Online (within 30 mins)
      7,748
    Lilypad22
    Newest Member
    Lilypad22
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • RMJ
      High Deamidated Gliadin Abs, IgA after being gluten-free for 6 months

      By RMJ · Posted

      It can take longer than 6 months for antibodies to drop to the normal range,  My DGP IgA took a few years as I got stricter and stricter about being gluten free  But having symptoms again could also mean you’re getting some gluten in your diet.
    • TexasCeliacNewbie
      High Deamidated Gliadin Abs, IgA after being gluten-free for 6 months

      By TexasCeliacNewbie · Posted

      Hi, I just had my 6 month check after being diagnosed Celiac 6 months ago.  All of my panel numbers were normal except: Deamidated Gliadin Abs, IgA (It is 31 with high being over 30)  I have also been having symptoms again. Am I not actually being as careful as I think I am or does it take longer than 6 months for this particular test to come back down?  I can't get ahold of my doctor this week as she is out.     Thank you!
    • Scott Adams
      Diagnosis and further testing Celiac

      By Scott Adams · Posted

      That is very strange, because it looks to me like two very different test results, but for the same test! It's definitely time to contact your doctor for clarity on this.
    • Redanafs
      Diagnosis and further testing Celiac

      By Redanafs · Posted

      Same day which is strange to me. 
    • JForman
      7yo struggling!

      By JForman · Posted

      Scott, thank you SO MUCH for this!! She has been through so much in the last three years as we've tried to track down answers. This language will definitely help me help her to reframe.
×
×
  • Create New...