Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Going To The Dermatologist

little d

By little d
in Dermatitis Herpetiformis

Recommended Posts

little d Enthusiast
little d
Posted

Hello all

I am going to the Dermatologist on 6/29 for a possible case of DH. I do have some blisters which Im sure that they will go away by then and they do itch sometimes really bad. I do have potential spots acting up as well so I guess we will see. I have had this for 2 weeks going on my 3rd week I have had this before too many times to count at least once a year sometime twice, for as long as I can remember. I am going to the Derma office because since I work with babies, I have to make sure that it is not contagious and so I can cover my butt when someone sees like the employee health that I have to deal with, they freak when something like this, they will automatically will asume that it is MRSA something that I don't want to have by any means, thats an automatic cause to go on Leave, can't afford that. BUt anyway what should I ask when I go, Im afraid that they will say that it is exzama and send me on my way, I will be seeing the phycian assistant instead of the Doctor because it will be on Friday and docs dont see on Fridays, I chose friday because that is payday. I know that they are capable and all but will she be able to know what she is looking at not saying that she is dumb or anything well maybe I just hope she knows what Celiac is when I tell her that I could possibly have celiac disease

Donna

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


DebNC84 Apprentice
DebNC84
Posted
Hello all

I am going to the Dermatologist on 6/29 for a possible case of DH. I do have some blisters which Im sure that they will go away by then and they do itch sometimes really bad. I do have potential spots acting up as well so I guess we will see. I have had this for 2 weeks going on my 3rd week I have had this before too many times to count at least once a year sometime twice, for as long as I can remember. I am going to the Derma office because since I work with babies, I have to make sure that it is not contagious and so I can cover my butt when someone sees like the employee health that I have to deal with, they freak when something like this, they will automatically will asume that it is MRSA something that I don't want to have by any means, thats an automatic cause to go on Leave, can't afford that. BUt anyway what should I ask when I go, Im afraid that they will say that it is exzama and send me on my way, I will be seeing the phycian assistant instead of the Doctor because it will be on Friday and docs dont see on Fridays, I chose friday because that is payday. I know that they are capable and all but will she be able to know what she is looking at not saying that she is dumb or anything well maybe I just hope she knows what Celiac is when I tell her that I could possibly have celiac disease

Donna

Donna,

I have what I suspect as DH - I've not any positive blood screenings and have not had a biopsy yet - BUT I did go gluten free and the symptoms went away - But mine was chronic - all over - and for about 8mos I was in and out of a dermatologist office - allergy specialist - general practioner... no one could figure it out and then I found a site on the internet about Celiacs - just so you know a PA at the last dermatologist was searching very aggressively for the cause - after a long time Derma doc gave me an ecxema diagnosis... telling me "bathe less - use dove unscented" and "sorry - this is something you'll have to live with" I was going nuts!! I've been gluten free mostly for the last 3 weeks and have slipped up once by accident and the other time because I got weak ( I had to have the brownie) both times the rash came back and took about 2 days for the itching to stop. My advice to you is to go gluten free and see - then the people on here would probably tell you to go to a GI specialist -

may I add that since I've been gluten free other things that I didn't know at the time were related have gone away as well - gas, bloating, facial acne, joint pain and swelling, leg cramps, it has made me feel great!!

little d Enthusiast
little d
Posted
  • Author

DebNC84

Hi i have been biopsyed negative, blood work negative, Pillcam Negative, but because I work in healthcare and if the employee health knows that I have any kind of rash I have to get it looked at so if I have to get it looked at I might as well go to a dermatolgist, my family doc didn't know what it was except for eczama.

donna

little d Enthusiast
little d
Posted
  • Author

Ok so I went to the Dermatologist friday, She barely looked at my wrist and said that I could be DH but she did not see any blisters and said if it was DH it would have blisters I told her that it did have and then she procedded to tell me that the irriatates in my daily life because I wash my hands alot that will dry out out skin and can't keep any moister in your skin, I already know all that because I have to keep loation on hand because of that. She gave me a prescription for something that was a topical cream clobox so something like that and a sample of some kind of wash kit to use instead of work soap. I used the stuff twice and put it up and I lost the prescriptions somewhere in my car. told me to come back in 1 - 2 weeks I don't think that I will, I just might I don't know. After my appointment I went to Whole foods and meet the lovely lady sorry I don't remeber her name, but we talk for a little because she had her hands on the Gluten free stuff that was made and put into the frezzer section, asked her if all that was good and she said yes, anyway we started talking and she asked me this and that and asked me if I any any blisters DH I said yes I just came from the Derma office she looked at it and said yes that looks like DH, so went talked alittle more until my daughter had to go potty and we left her, this wonderful lady is from Utah she was down her for some medical stuff and so I hope that she does well and hope that I run into her again.

Donna

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,917
    • Most Online (within 30 mins)
      7,748
    kls888
    Newest Member
    kls888
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Help I’m cross contaminating myself,

      By knitty kitty · Posted

      I followed the Autoimmune Protocol Diet which is really strict for a while, but later other foods can be added back into your diet.  Following the AIP diet strictly allows you digestive system to heal and the inflammation to calm down.  Sort of like feeding a sick baby easy to digest food instead of spicy pizza.   It's important to get the inflammation down because chronic inflammation leads to other health problems.  Histamine is released as part of the autoimmune response to gluten.  High histamine levels make you feel bad and can cause breathing problems (worsening asthma), cardiovascular problems (tachycardia), and other autoimmune diseases (Hashimoto's thyroiditis, diabetes) and even mental health problems. Following the low histamine version of the AIP diet allows the body to clear the histamine from our bodies.  Some foods are high in histamine.  Avoiding these makes it easier for our bodies to clear the histamine released after a gluten exposure.   Vitamin D helps regulate the immune system and calm it down.  Vitamin D is frequently low in Celiacs.  The B Complex vitamins and Vitamin C are needed to clear histamine.   Supplementing with essential vitamins and minerals boosts your intestines' ability to absorb them while healing.   Keep in mind that gluten-free facsimile foods, like gluten-free bread, are not enriched with added vitamins like their gluten containing counterparts are.   They are empty calories, no nutritional value, which use up your B vitamins in order to turn the calories into fuel for the body to function.   Talk to your doctor or nutritionist about supplementing while healing.  Take a good B Complex and extra Thiamine in the form Benfotiamine (shown to promote gut health).  Most B Complex vitamins contain thiamine mononitrate which the body cannot utilize.  Meats and liver are good sources of B vitamins.   Dr. Sarah Ballantyne wrote the book, the Paleo Approach.  She's a Celiac herself.  Her book explains a lot.   I'm so glad you're feeling better and finding your balance!
    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure!
    • knitty kitty
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By knitty kitty · Posted

      Some people prefer eating gluten before bed, then sleeping through the worst symptoms at night.  You might want to try that and see if that makes any difference.   Several slices of toast for breakfast sounds okay.  Just try to work up to the Ten grams of gluten.  Cookies might only have a half of a gram of gluten.  The weight of the whole cookie is not the same as the amount of gluten in it.  So do try to eat bread things with big bubbles, like cinnamon rolls.   Yeah, I'm familiar with the "death warmed over" feeling.  I hope you get the genetic test results quickly.  I despise how we have to make ourselves sick to get a diagnosis.  Hang in there, sweetie, the tribe is supporting you.  
    • Clear2me
      Gluten free nuts

      By Clear2me · Posted

      Thank you, a little expensive but glad to have this source. 
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      @knitty kitty  Thank you very much for the advice. I did the exam this morning, my doctor actually suggested me to take something called "Celiac duo test" in which I first do the genetic test and if it's positive, then I'll have to do the antigen blood test. I have to attend 1 month until my results are ready, so I have some weeks to increase the amount of gluten I eat daily. It will be hard because my health is not the best right now, but I also did a blood test to cheek my nutritional deficiencies. The results will arrive on Tuesday, so I can ask my doctor what should I do to control my symptoms and blood levels during this month. For now I'm resting and paying attention to what I eat— at least I don’t look like a vampire who just woke up, like I did yesterday. I'm still scared because is the first time I've felt this sick, but this is the right moment to turn things around for the better.  I realized that if I eat gluten at lunch I cannot finish the day properly, I become severely tired and sometimes my stomach hurts a lot - let's not talk about the bloating that starts later. Do you think is it ok to eat gluten just in the morning, like some cookies and slices of bread for breakfast? 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.