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Help! Worse All Of A Sudden!

trishydee

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trishydee Rookie
trishydee
Posted

Hi Everyone,

I don't know what's going on with me, I'm hoping you can help!

I've been strictly gluten-free for over 6 years. (I was dx'ed by both labs & biopsy) For the past few months, I've had MAJOR episodes of D, with horrible abdominal pain, bloody stools (sometimes it looks like pure blood), sweats, etc. The episodes last at least 24 hours and they usually happen a few times a week to once a week. :o Immodium helps a little.

I haven't felt this bad in years. What could be going on? I had a colonoscopy in Oct 06 and it was fine.

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gfpaperdoll Rookie
gfpaperdoll
Posted

I would go back for medical tests, complete blood work up, first thing to rule out cancer or anything else...RIGHT AWAY

Then I would look at what you are eating. Have you added in anything new, or you eating replacement grains? oats? Then I would go grain free & also dairy free.

I would immediately go to your "safe" foods, & soft foods, cut out all nightshade foods, & eat a limited diet of things like (for me) cooked carrots, rice, chicken soup with cabbage, tuna or whatever protein suits you best ( not beef) etc etc oh, Baked sweet potatoes are good...

mftnchn Explorer
mftnchn
Posted

That really sounds awful. Have you had any testing done for something else that might be going on?

I am assuming that you have eliminated any problem foods, like "oldies" that you buy without checking labels that have switched ingredients?

Perhaps checking to see if you have developed an allergy? What I understand is that soy can also flatten the villi if you are intolerant. So an elimination process perhaps? My allergist said to first of all check the grains because they are notorious to cross react. (include checking cane sugar, which is a "grass" like the other grains). Then check legumes, and third check night-shades. Other big allergens are eggs and milk. The milk casein protein is apparently very similar to gluten.

Check by totally and strictly eliminating for at least 5 days and then not more than 10 days, then challenge the food.

Keep us posted on how you are doing, please!

Teacher1958 Apprentice
Teacher1958
Posted
Hi Everyone,

I don't know what's going on with me, I'm hoping you can help!

I've been strictly gluten-free for over 6 years. (I was dx'ed by both labs & biopsy) For the past few months, I've had MAJOR episodes of D, with horrible abdominal pain, bloody stools (sometimes it looks like pure blood), sweats, etc. The episodes last at least 24 hours and they usually happen a few times a week to once a week. :o Immodium helps a little.

I haven't felt this bad in years. What could be going on? I had a colonoscopy in Oct 06 and it was fine.

First, as another message recommended, make an appointment immediately to have this checked, then check and re-check the labels on absolutely everything you're eating, even those foods you have always assumed were gluten free. You could even put the list on here in case someone has some ideas as to what the problem might be. There has to be an explanation.

Take care. I hope you feel better soon.

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    • trents
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