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I Got Glutened....

GFinChicago

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GFinChicago Rookie
GFinChicago
Posted

So I was at a friends house tonight and since she was so afraid of cooking for me, we decided to order in instead. We ordered Chinese for her and Sushi for me which I figured would be a save choice. Nope... because I am sitting here now, horrible stomache cramps, bloated and I feel like I am going to explode any second. And the worst part is, I am supposed to meet some friends in a bit for a drink since today is my only day off this week :( I don't even want to leave the house now. Aaahhh... and I even skipped the soy sauce with the sushi and used my own stuff which said "Gluten Free"

It has only been three weeks now since I found out about celiac disease but I already feel like it's ruining my life :(

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Guest j_mommy
Guest j_mommy
Posted

What kind of sushi did you have???? some things in Sushi are dipped in soy sauce...also immitaion crab is not gluten-free! Atleat most brands!

GFinChicago Rookie
GFinChicago
Posted
  • Author
What kind of sushi did you have???? some things in Sushi are dipped in soy sauce...also immitaion crab is not gluten-free! Atleat most brands!

oh well, there we go.... I had the california roll with cucumber, crab stick and avocado :angry:

zarfkitty Explorer
zarfkitty
Posted

Hang in there. I glutened myself in an even sillier way during my first two weeks. I went to PF Changs, ordered off the gluten free menu, asked the waitress intelligent questions, etc. etc. etc.

Then when the meal was over, I went on autopilot and ate the stupid fortune cookie that came with the bill.

Things are definitely not perfect for me yet, but I do feel like I'm starting to get the hang of it. I continue to find "hidden gluten" even though I could already tell most dieticians their business.

Feeling sick sucks, especially on your only night off. Try to stay hydrated and do something relaxing. And come here to vent as much as you want. :-)

GFinChicago Rookie
GFinChicago
Posted
  • Author

What a night :( I really have no clue how much sleep I got but I am so exhausted this morning. Thank god I don't have to go to the restaurant till 2pm but I actually wanted to go to the gym and work out. And I also have real bad joint pains today. My wrists hurt really bad and so does my right ankle.

I will never eat Sushi again! Never! (and i work at a Seafood - Steak - Sushi Restaurant :rolleyes: )

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    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      If lectins were my problem, I would react to wheat germ (the highest source of wheat lectins) and beans. I don't. I only react to bread and pasta, which are the highest sources of gluten. Therefore, my issue is wheat-specific (Gluten/ATIs), not a general lectin issue.   I have eaten a supposedly high lectin diet (I say supposedly because lectin content in these foods is greatly reduced by proper cooking and I eat very few of those foods raw, and even then, rarely!!) for years. My health has improved greatly on my whole foods plant forward diet. I have asked all my drs and a registered dietician about my diet, asked if eating such a high amnt of fiber might interfere with the digestion of any other nutrients and the answer has always been NO.     while doing the gluten challenge I did not eat ANY wheat germ (since it doesn't have hardly any gluten, and I was too sick from the bread and pasta to want to eat much anyway) I will NOT put that poison in my body again. That was a horrific experience and if this is what most celiac patients have to deal with, I am very sorry for them I don't care if I have celiac or NCGS I won't intentionally cause myself that much pain and suffering it's not worth it.  
    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
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    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
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