Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mouth Sores

tmk

Recommended Posts

tmk Explorer
tmk
Posted

Hello!

For those of you who get mouth sores as symptom of gluten ingestion -- what exactly are they like? I've been getting these blister looking things in the back of my throat mainly, but have also popped up a couple of other places in my mouth. They will "go away", but as soon as I eat, they flair up (enlarge) for a while, then will go back down. I've read that mouth sores are a symptom of Celiac, but wasn't sure if it was more the cold sore type mouth sores or something like I am experiencing. Just wondering if it's related to gluten or something entirely different. I'm still ingesting gluten, unfortunately, am feeling worse and worse, but my EGD isn't until Aug. 23rd -- so two more weeks! Anwyays -- if anybody has any experience w/ this, please share.

Thanks in advance!!! :)

Trudy

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Janeti Apprentice
Janeti
Posted

HELLO, I GET MOUTH SORES WHEN I ACCIDENTLY GET GLUTENED. I WORK IN A HOSPITAL, MONDAY AND TUESDAY, BOTH DAYS I INGESTED GLUTEN...I HAVE BEEN SO SICK ALL THIS WEEK, PLUS ONE WHOPPING SORE IN MY MOUTH. THIS ONE FEELS LIKE I BIT THE SIDE OF MY CHEEK. I'M NOT SURE WHY IT HAPPENS. JUST TODAY THE SORE FINALLY WENT AWAY. NOW I JUST HAVE TO WAIT FOR THE DIZZINESS, STOMACH GURGLING, CRAMPING AND FATIGUE TO GO AWAY. FROM NOW ON, I HAVE TO BRING MY OWN FOOD...ITS NOT WORTH IT.

juliela Rookie
juliela
Posted

Hi-

I usualyy get moth sores when I eat gluten and they can appear anywhere from an hour or two to the next morning. They are always on my cheeks, they feel like a bad cheek bite. Before diagnosis, when I was eating a lot of gluten- they were also on the roof of the mouth- toward the back- almost felt like a burn.

Sometimes I rinse with warm salt water, but they usually go away in a day or so.

I would avoid any alcohol-based mouthwashes when they are present, because it irritates it further.

Julie

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,602
    • Most Online (within 30 mins)
      7,748
    Victor bowden
    Newest Member
    Victor bowden
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Potential celiac need advice

      By Wheatwacked · Posted

      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
    • trents
      Potential celiac need advice

      By trents · Posted

      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      Potential celiac need advice

      By Ben98 · Posted

      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      Unusual bright yellow but odourless discharge

      By Wheatwacked · Posted

      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      How long does it take to gain weight?

      By cristiana · Posted

      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.