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Are There Any Cd Cruises Planned For 2005?

scudderkidwell

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scudderkidwell Rookie
scudderkidwell
Posted

Hi everyone,

Just checking to see if anyone out there knows if there's any celiac disease Cruises planned for 2005 or any celiac disease conventions planned in the Southeast? We live in Orlando, FL and would really like to go. It would be nice to have a celiac disease only Cruise and not worry about what you're eating. Also have cooking classes and exchange receipes. It would be worth almost any cost. :unsure:

Thanks, Jean (Wife of a Celiac)

  • 2 months later...
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glen4cindy Apprentice
glen4cindy
Posted

Well, we booked thru Hotwire, and we booked just a couple of days ago for a cruise leaving tomorrow.

We are cruising out of Orlando with Carnival Glory ship. Hotwire was supposed to let Carnival know that I need a gluten-free diet, and I was told that would not be a problem. I am going to make sure I see the Head Waiter to make sure that everything is under control.

I have several snacks in my lugage, so, if necessary, I can eat those things if there are not many choices on board. With so many choices for food, I would think that I can survive!

I would be very interested in a celiac disease cruise! This is our first time in Orlando. Actually the 2nd, but, the first, we didn't even have to change planes. 26 minutes of flight time from Ft. Lauderdale, and like 4 hours on the highway!

Anyway, we are here in the Raddison and can see the cruise yard from our window, out in the lovely Cape Canaveral.

Glad I checked here before we embark on our ship. I was on a curise last April, but, was not aware that celiac disease was why I always got sick after eating. I never had this before a couple of years ago. My MD had said to lay off bread, but, I didn't even consider or realize that this meant anything breaded, crackers, pasta, etc. etc. So, my last cruise, I spent part of it really sick in the bathroom. Now I know why, and hopefully, this cruise will be a better one.

Maybe we should all get together and write some curise companies to see if some sort of "food allergy" specialty cruise could be arranged.

Carriefaith Enthusiast
Carriefaith
Posted

WOW! What I thought... A worry free vacation B)

I didn't know celaic cruises existed.

angel-jd1 Community Regular
angel-jd1
Posted

Here are some travel links: Bob and Ruth's Has cruizes and traveling I know they are going to africa or something like that soon!!

Bob And Ruths gluten-free Travel Club

Open Original Shared Link

Disney Vacations (gluten free)

Open Original Shared Link

Inn Seekers

find gluten-free lodging

Open Original Shared Link

Lotus Tours

Plan vacations with special things such as gluten-free meals, kosher meals, etc.

Open Original Shared Link

USA Natural Food Stores and Vegetarian Restaurants

listing of health food stores in the US...great for travel!!

Open Original Shared Link

Hope that helps you out. I have those on the links section on my yahoo group that I own. Enjoy!!

-Jessica :rolleyes:

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    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
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    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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