Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Can't Figure Out How She Got Gluten

dandelionmom

Recommended Posts

dandelionmom Enthusiast
dandelionmom
Posted

We were out of town all weekend but we were so careful! She definitely had a gluten reaction.

What do you do when you can't pin point the problem?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


celiac-mommy Collaborator
celiac-mommy
Posted
What do you do when you can't pin point the problem?

If you were eating out at all, figure out where you went and maybe not go there again. All it takes is for someone not to wash hands thoroughly and that's it. Otherwise, help her through her reaction, do what you can to relieve her symptoms and move on. There will be wonderful, positive experiences along the way, and more than likely, unless you are in 100% control (like NEVER eating out again--which is unlikely and unrealistic) it is likely to happen again.

I feel your pain!

lillybug Newbie
lillybug
Posted

My daughter has celiac and we hesitate to eat out with her very often but, of course, there are times when you have no choice. I find that the only way, in most cases, my daughter won't consume gluten in a restraunt is to always ask for the manager. Explain every little detail about what has to happen in order for your daughter to not get a cross contamination from others preparing her food. They need to wash their hands, prepare the food on a serface that has not had bread of any kind on it, put gloves on, and also make sure you know if there are any hidden gluten in what is being prepared. If you have to even ask for the chef because the wait staff really most of the time look at you like you are nuts and think you are being a huge inconvienence. But it is better to be an inconvienence than to have your daughter get sick. There have been occasions when we have ordered chicken and relized that the chicken had been marinated in a sauce that had gluten in it prior to them cooking the chicken. Carmel color and modified food startch are the biggest hidden ingridents to look out for. They are in so many things that you wouldn't think that they would be in. And our rule of thumb is if we are not 100% sure of the ingrediants or how it will be prepared our daughter can not have it, no matter what.

Hoped that helped.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,703
    • Most Online (within 30 mins)
      7,748
    Shenaz
    Newest Member
    Shenaz
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Help needed

      By knitty kitty · Posted

      @nanny marley, Have you been taking any vitamins or mineral supplements besides Vitamin D? What are you eating?  Do you eat processed gluten free foods?   You said your symptoms included fatigue, body hair loss, low vitamin d,  Restless Leg Syndrome, Raynaud's Syndrome, contact dermatitis, rhinitis, body aches, TMJ, heart palpitations, sleep issues, vomiting,  dizziness, frequent bowel movements. There's eight B vitamins and Vitamin C that are water soluble.  When one has diarrhea for extended periods of time, those water soluble essential vitamins are flushed out of the body easily, and there's little time to absorb any more water soluble vitamins or fat soluble vitamins from food moving through that fast.   It's easy to become vitamin deficient with diarrhea.   Deficiency in Vitamin B1, Thiamine, can result in Gastrointestinal BeriBeri which can also cause diarrhea, fatigue, and abdominal pain.  Deficiency in Vitamin B3, Niacin, can cause diarrhea as well as skin rashes, and sleep issues.  Deficiency in Vitamin B12, Cobalamine, can cause diarrhea and Restless Leg Syndrome.  Deficiency in Vitamin C can cause diarrhea and skin rashes. Thiamine deficiency can also cause heart palpitations, sleep issues, and vomiting.  Have you had your thyroid checked?  Hypothyroidism can cause body hair loss, as can iron deficiency.   I've experienced serious nutritional deficiencies which my doctors did not recognize as such and blamed me for making stuff up.  I've experienced these nutritional deficiencies.  I earned a degree in Microbiology after studying nutrition because I wanted to know what vitamins were doing inside the body.  Vitamins are special organic compounds that our bodies cannot make, so we must get them from food or supplements.  Without these vitamins, our bodies cannot function well. Talk to your doctor and nutritionist about supplementing with vitamins and minerals that are lacking on the gluten free diet.  Blood tests for deficiencies in the B vitamins are not accurate.  Taking a B Complex and looking for health improvement is best.   I've got serious vision problems and would really appreciate punctuation.  Thanks P.S.  I take a combination of Thiamine, Cobalamine B12 and Pyridoxine B6 for back pain from crushed vertebrae.  I understand back pain.  These vitamins together relieve pain. 
    • nanny marley
      Help needed

      By nanny marley · Posted

      I ment nan not van 🤗
    • nanny marley
      Help needed

      By nanny marley · Posted

      Ii wasn't asked about that she just said if you can't tk the gluten diet have colonoscopy to check for cancer has my van had it and because I'd had naproxen for stomach ulcers but I stopped that a  while back but I've been very ill this week with the back issues so I can't have the colonoscopy too someone said ask for the virtual one it's much easier for people who have body issues too but I'm not sure I can request that if she doesn't think I need that she was basically saying IBS because Ive suffered since age 25 but that's Wen the back started too and I'm sure high calprotein isn't with IBS I've been low in iron Wen I was jounger and I'm always low in vitamin d I take my own supplement for that now there is definitely something going off its been too long a drawn out problem with added symptoms so I i will keep investigating 
    • Sanna King
      Any bad experience with King Arthur Gluten-free bread flour

      By Sanna King · Posted

      King Arthur Gluten-free bread flour contains wheat starch, but has had the gluten removed. According to the FDA, it meets the FDA's gluten-free standard of less than 20 parts per million (ppm) of gluten. Has anyone here tried to bake bread from this? If yes, did you have a reaction? Thank you in advance for your time and attention. 
    • Gliadingoaway
      Biopsy confirmed no celiac, low gliadin igg but high gliadin iga?

      By Gliadingoaway · Posted

      Thank you!
×
×
  • Create New...