Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glad I Found The Boards! Any Help Would Be Great.

daron5780

Recommended Posts

daron5780 Newbie
daron5780
Posted

hello,

so many queistions!im glad to have found this board.

i recently went to my doc wanting to be checked out for three things; candida, parasites, and gluten intolerance. he was quick to rule out the first two, but had sent me for bloodwork for celiac disease. this was on a monday, but i had already started eating dairy-gluten-sugar free for 2-3 days. so i got my bloodwork that morning done, and had just recieved word now (a week later) that it was negative. i fugred it would be, after reading that it may not show up if you have stopped gluten. Is this true?

I am not one that has stomach problems, everything is mostly in my head or physical. i am 27, and for most of my life i have had a down, not really with it depressed feeling, tired, weak, achy body/joints, get sick or injured easily, social anxiety, concentration/focus is not on, and irritable, vitamins dont work. i feel like i am suffering. i have been diagnosed with add and social anxiety, but i dont think its that. i have a hunch that it is gluten allergy. even things such as dehydration( i crave cold drinks often), strong food cravings, lumbar pain, night blindness, and i also read your bones can become weaker ( i seem to always get contusions from rollerhockey) are symptoms i suffer from. also, i seem to have problems with having to urinate badly throughout the night, but this is not explained by anything i have read...so if you get this too, please let me know!

so after research, i stopped eating dairy, sugar, gluten. i really started to feel really good;' something good was happening, or about to happen. one day, i totally did not feel good. i think you call it "glutened". i found out the next day that my mother had used flour for a gravy the previous night. i really felt terrible. but at least i was learning. a day later, still feeling terrible, i had some soup, thought nothing of it. until i found out the next day the soup contained chicken stock whch contained gluten. this was 4 days ago, and i feel horrible. for some reason, my throat is so sore and dry. my head feels like a mess; like i got hit by a truck. feeling drunk almost.

i was hoping i could get an opinion. should i get bloodwork redone by my regular doctor? should i eat gluten before i redo my bloodwork? or should i see a GI doc? i have a feeling i am onto something; i am not functioning 100% by any means, maybe like 50-60%. my mother had bad stomach problems, and my grandmother, who passed away recently, was known for being a hypochondriac all her life. i want to find the problem. i know that it is not in my head and that something is wrong, and would like to lead a normal life.

thanks for any help in advance!!!

-dave

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest j_mommy
Guest j_mommy
Posted

Welcome Dave!!!!

You have to be eating gluten for the tests to be correct! I would eat gluten for a couple of weeks and then have them redone since you have not been off gluten that long.

Some are advocates for just teh dietary response and if you are ok with that....then just go gluten free now! I wanted teh testing done so I did it...you could also ask for a biopsy!

Another option is to see if you have an allergy and not celiac....they can do a simple test to find that out and you don't have to be eating gluten for that....but you'd wnat to see an allergist for that! That test will not determine celiac as it's not an allergy!

Good Luck to you!

daron5780 Newbie
daron5780
Posted
  • Author

yes, i was wrong in calling celiac an allergy. thank you for replying, i will definitely consider your suggestions! i would really hate to go back on the gluten, but i would like an official diagnosis...

Guest j_mommy
Guest j_mommy
Posted

Yup it won't be fun...not going to lie! But if you want the offical DX then that's the the best way to go! Atleast it was for me!!!

gfpaperdoll Rookie
gfpaperdoll
Posted

You can also test thru enterolab.com & not have to go back on the gluten.

I have a friend that gets a cough from gluten & her throat swells up. It is good to go out to eat with her, because one bite & she can tell if it contains gluten, I do not think she even has to swallow... she also cannot tolerate dairy. I think that she has a wheat allergy in addition to a gluten problem. You can have both...

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    2. Ello
      - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results. Thank you
    3. trents
      - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to...
    4. Ello
      - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response.
    5. trents
      - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,832
    • Most Online (within 30 mins)
      7,748
    Duhgirl
    Newest Member
    Duhgirl
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.