Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help Me, New At The Diet Again!

mckaylaslove

Recommended Posts

mckaylaslove Newbie
mckaylaslove
Posted

Well what can i say, to make a long story short... i was completely normal until after i had my first child, them whammmmyyyy celiac hit me like a brick wall with the pain with foods i had always eaten. I was told when your body goes through childbirth or a surgery or illness allergies can come out. Well 2 years later i gradually went back to a normal diet and i was fine. I now have a 6 week old son, and right after i had him the same thing happened so here i am back on the diet. Please email me if you are in the same situation, and with any food ideas, websites or information... Just went to 4 grocery stores and no gluten free foods except the normal fruits, veggies, meats and dairy,,,,, help!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Luisa2552 Apprentice
Luisa2552
Posted

Hello and welcome. Were you diagnosed as having celiac disease? celiac disease never goes away. It is not an allergy. Maybe you have a wheat allergy which is very different than celiac disease. For a celiac, the diet is a life long thing. Symptoms or not if you have be diagnosed with celiac disease you are doing harm to yourself by eating gluten.

For me, meats, fruits and veggies were the easiest thing on my system when I first went gluten-free. Check the site index of this site and you will find a wealth of information you are looking for, including online gluten-free products. If there is a Whole Foods near you they carry many gluten-free products you may be looking for- pastas, bread mixes, etc.

mckaylaslove Newbie
mckaylaslove
Posted
  • Author

Well im confusted!! My bloodwork said i have it, and my biopsy showed no damage! I went to a specialist in The University of Maryland. He said since the villi werent damaged i didnt have it. The bloodwork could show positive because its just a wheat allergy. Do you agree????

JNBunnie1 Community Regular
JNBunnie1
Posted
Well im confusted!! My bloodwork said i have it, and my biopsy showed no damage! I went to a specialist in The University of Maryland. He said since the villi werent damaged i didnt have it. The bloodwork could show positive because its just a wheat allergy. Do you agree????

No, if your bloodwork says you have Celiac, then you have Celiac, period. There are no false positives. Just because they happened to take samples from currently undamaged portions of your intestinal lining is no reason to discount your positive diagnosis. How long ago did you get this blood work?

Luisa2552 Apprentice
Luisa2552
Posted
No, if your bloodwork says you have Celiac, then you have Celiac, period. There are no false positives. Just because they happened to take samples from currently undamaged portions of your intestinal lining is no reason to discount your positive diagnosis. How long ago did you get this blood work?

Yes that's true. What blood work was done? I've done lots of reading on this to get it clear in my head. We have 5 different immunoglobulins. IgA, IgD, IgE, IgG and IgM. IgA and IgG are specific to celiac disease and if these are elevated then you have celiac disease. IgE is the one that would be elevated if you have wheat allergy and is the test they run to check for food allergies. Many of those with celiac disease have gone through these 'allergy' tests and come back negative because celiac disease is not an allergy. People CAN have elevated IgE AND IgA, IgG but that is not too common.

Hope this makes sense. Do a wheat allergy search on this site and I'm sure you'll get more info.

Post your tests and results here and maybe we can help.

mommyagain Explorer
mommyagain
Posted

I had a similar situation with my symptoms. My severe symptoms (big D, abdominal pain, gas, bloating, etc) started shortly after I became pregnant with my 1st child. Symptoms continued through the pregnancy and for another almost 3 years while I was on Depo-Provera. My symptoms pretty much disappeared when I stopped the Depo. Over the last couple of years, my gi issues have been cyclic, worse at "that time of the month", but never debilitating. A little over 2 months ago, they came back full force. It turns out I'm 12 weeks pregnant, so my symptoms seem to be directly related to hormones.

I have never been tested for celiac, or a wheat allergy. I don't know which I have. But, I feel so good now (tons better than I did even when not symptomatic), I don't know if I'll ever go back to eating anything with gluten. Maybe after the baby is born and weaned, I'll consider doing a challenge, because my husband would like for me to have a formal diagnosis... but it will depend on how severe my symptoms are when I reintroduce it.

As far as shopping goes, a lot of grocery stores now put their gluten-free stuff in a "health-food" section. So, if you go to the pasta section, you won't see gluten-free pasta. But, if you go to the health food section, the gluten free pasta will be there... usually right next to the whole-wheat pasta (aack!). There are a couple of pasta brands that are pretty good, and a lot that are not. Use the experience of the people on this board, it's great for weeding out the "yucky stuff". If your local grocery does not carry the items you want, you may be able to get them to special order it, or start stocking it as a regular item. Make sure you ask for specific brands, or you may end up with the pasta that turns into gluey mash...

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,210
    • Most Online (within 30 mins)
      7,748
    BJ OConnor
    Newest Member
    BJ OConnor
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Scott Adams · Posted

      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      CT with contrast.

      By Scott Adams · Posted

      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      New labs are now very elevated

      By Scott Adams · Posted

      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.