Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Do You Know If You Are Healing?


goldyjlox

Recommended Posts

goldyjlox Contributor

I have been gluten free since August, I have been doing good at it I think. I have not been sick yet so I must be doing something right, right?? I used to have a huge bloated belly all the time, looked like I was pregnant, and I was always constipated...that was my problem, hardly ever D but always constipated. Now, I have lost my bloated belly (now its just baby fat!!) My face has colour so I dont look like the ealking dead, I have regular bowel movements, more energy, the tinglying feeling has left my fingers and toes, and those painful little bumps are not on my fingers anymore. So this would sound like I am healing right?? Here I thought that I would lose some weight by not eating the junky foods and become healthier but instead I have gained weight!!!! I am hardly eating much!!

I have not had any gluten that I know of, I have cheated a bit on the dairy....I am only off it for 3 months...but I never got any reaction to any that I have had.

So how do you tell if you are healing?? I would assume that eating gluten-free and not getting sick would be a good indication but I was never a sick person so I am a bit confused on how I should feel.

Sorry If I dont make any sense.

Jess


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



blueeyedmanda Community Regular

For me, other than the GI symptoms going away. I had more energy and my overall personality was going back towards normal. I was not moping around and sad. I suddenly felt like a new person again....my old self :)

It does vary person to person though.

Vykt0r Rookie

I would imagine you'd also have less of an appetite considering the fact that celiac causes malaborption and therefore constant hunger in a lot of people.

Gemini Experienced
I would imagine you'd also have less of an appetite considering the fact that celiac causes malaborption and therefore constant hunger in a lot of people.

I think it's actually the opposite in most people. When I was eating gluten, I was never as hungry as I am now because all the bloating makes you feel full all the time. I would like a bird and feel full. Plus, with all the inflammation going on, hunger was not an issue. When you start to heal and your food is being absorbed like it should, you begin to realize what hunger really feels like. Things are working normally.

Malabsorption just means you are not absorbing your nutrients from food and has little to do with actual hunger pains themselves.

How does a person know they are healing? By all the things you described above. That's a really good sign. The weight gain can surprise people but it's common sense. You are absorbing calories and even though you may not be eating junk food anymore, a calorie is a calorie is a calorie! If you take in more than you burn off, you will gain weight. With each passing decade of life, your metabolism slows down and you have to less and less or move around more to compensate.

I snack on fruit and veggies all day to offset this as not only did I discover I had celiac disease, I went through menopause at the same time. Talk about a metabolism killer! :huh:

If your symptoms are disappearing and your color is good and you have energy, trust what your body is telling you.....you are doing a good job!

VioletBlue Contributor

I think the food issues have to do with where you were when you were diagnosed. I was always hungry and I had gained significant weight in the years prior to diagnosis. Now hunger is no longer the constant issue it once was, and even when I am hungry it no longer has the urgent do or die attitude to it that used to exist.

So I have lost weight since going gluten free. But I also don't eat much of any grains or special gluten free foods. I eat mostly whole foods now including dairy which I've never had a problem with. Prior to diagnosis I ate breads and pastas and cookies and cakes and frozen and pre-packaged foods all of which were bound to be higher in calories. So I think it depends on where you were prior to diagnosis and how you choose to pursue the gluten free diet as to what effect the diet has on your weight.

For me the most obvious immediate signs of healing were that the acid reflex and the diarrhea went away. My mood and outlook also improved significantly. And my nails have finally begun to grow again. I think any significant change along those lines is an indication of healing. But then we all express the disease differently, so healing is different for all of us.

It also takes time. A couple months is just the beginning. I've been gluten free since last December and my nails have just only begun to reflect that. All the other things that are secondary like the vitamin and mineral deficiencies take months and months and sometimes years to reverse themselves.

Violet

goldyjlox Contributor

Thanks. I am glsd to know that I am going about this right, the dietition said that I really did not need alot of her help as it sounds like I am doing a great job. My nails seem to grow more now also, I used to have a horrible time with my nails....constant nail biter. I do notice that I am more hungry now, I guess I have room in there besides air. Butr I have to work on eating a bit better and then at least I will feel better.

Thanks again.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Son's legs shaking

    2. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    3. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    4. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    5. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,850
    • Most Online (within 30 mins)
      7,748

    Cindy Shreve
    Newest Member
    Cindy Shreve
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.