Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Do You Know If You Are Healing?


goldyjlox

Recommended Posts

goldyjlox Contributor

I have been gluten free since August, I have been doing good at it I think. I have not been sick yet so I must be doing something right, right?? I used to have a huge bloated belly all the time, looked like I was pregnant, and I was always constipated...that was my problem, hardly ever D but always constipated. Now, I have lost my bloated belly (now its just baby fat!!) My face has colour so I dont look like the ealking dead, I have regular bowel movements, more energy, the tinglying feeling has left my fingers and toes, and those painful little bumps are not on my fingers anymore. So this would sound like I am healing right?? Here I thought that I would lose some weight by not eating the junky foods and become healthier but instead I have gained weight!!!! I am hardly eating much!!

I have not had any gluten that I know of, I have cheated a bit on the dairy....I am only off it for 3 months...but I never got any reaction to any that I have had.

So how do you tell if you are healing?? I would assume that eating gluten-free and not getting sick would be a good indication but I was never a sick person so I am a bit confused on how I should feel.

Sorry If I dont make any sense.

Jess


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



blueeyedmanda Community Regular

For me, other than the GI symptoms going away. I had more energy and my overall personality was going back towards normal. I was not moping around and sad. I suddenly felt like a new person again....my old self :)

It does vary person to person though.

Vykt0r Rookie

I would imagine you'd also have less of an appetite considering the fact that celiac causes malaborption and therefore constant hunger in a lot of people.

Gemini Experienced
I would imagine you'd also have less of an appetite considering the fact that celiac causes malaborption and therefore constant hunger in a lot of people.

I think it's actually the opposite in most people. When I was eating gluten, I was never as hungry as I am now because all the bloating makes you feel full all the time. I would like a bird and feel full. Plus, with all the inflammation going on, hunger was not an issue. When you start to heal and your food is being absorbed like it should, you begin to realize what hunger really feels like. Things are working normally.

Malabsorption just means you are not absorbing your nutrients from food and has little to do with actual hunger pains themselves.

How does a person know they are healing? By all the things you described above. That's a really good sign. The weight gain can surprise people but it's common sense. You are absorbing calories and even though you may not be eating junk food anymore, a calorie is a calorie is a calorie! If you take in more than you burn off, you will gain weight. With each passing decade of life, your metabolism slows down and you have to less and less or move around more to compensate.

I snack on fruit and veggies all day to offset this as not only did I discover I had celiac disease, I went through menopause at the same time. Talk about a metabolism killer! :huh:

If your symptoms are disappearing and your color is good and you have energy, trust what your body is telling you.....you are doing a good job!

VioletBlue Contributor

I think the food issues have to do with where you were when you were diagnosed. I was always hungry and I had gained significant weight in the years prior to diagnosis. Now hunger is no longer the constant issue it once was, and even when I am hungry it no longer has the urgent do or die attitude to it that used to exist.

So I have lost weight since going gluten free. But I also don't eat much of any grains or special gluten free foods. I eat mostly whole foods now including dairy which I've never had a problem with. Prior to diagnosis I ate breads and pastas and cookies and cakes and frozen and pre-packaged foods all of which were bound to be higher in calories. So I think it depends on where you were prior to diagnosis and how you choose to pursue the gluten free diet as to what effect the diet has on your weight.

For me the most obvious immediate signs of healing were that the acid reflex and the diarrhea went away. My mood and outlook also improved significantly. And my nails have finally begun to grow again. I think any significant change along those lines is an indication of healing. But then we all express the disease differently, so healing is different for all of us.

It also takes time. A couple months is just the beginning. I've been gluten free since last December and my nails have just only begun to reflect that. All the other things that are secondary like the vitamin and mineral deficiencies take months and months and sometimes years to reverse themselves.

Violet

goldyjlox Contributor

Thanks. I am glsd to know that I am going about this right, the dietition said that I really did not need alot of her help as it sounds like I am doing a great job. My nails seem to grow more now also, I used to have a horrible time with my nails....constant nail biter. I do notice that I am more hungry now, I guess I have room in there besides air. Butr I have to work on eating a bit better and then at least I will feel better.

Thanks again.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Lotte18 commented on Scott Adams's article in Diagnosis, Testing & Treatment
      9

      A Future Beyond the Gluten-Free Diet? Scientists Test a New Cell Therapy for Celiac Disease (+Video)

    2. - knitty kitty replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Accuracy of testing concerns

    3. - trents replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Accuracy of testing concerns

    4. - McKinleyWY posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Accuracy of testing concerns

    5. - trents replied to Teaganwhowantsanexpltion's topic in Introduce Yourself / Share Stuff
      4

      A little about me and my celiac disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,241
    • Most Online (within 30 mins)
      7,748

    Lectinfreetxn
    Newest Member
    Lectinfreetxn
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Welcome to the forum, @McKinleyWY, For a genetic test, you don't have to eat gluten, but this will only show if you have the genes necessary for the development of Celiac disease.  It will not show if you have active Celiac disease.   Eating gluten stimulates the production of antibodies against gluten which mistakenly attack our own bodies.  The antibodies are produced in the small intestines.  Three grams of gluten are enough to make you feel sick and ramp up anti-gluten antibody production and inflammation for two years afterwards.  However, TEN grams of gluten or more per day for two weeks is required to stimulate anti-gluten antibodies' production enough so that the anti-gluten antibodies move out of the intestines and into the bloodstream where they can be measured in blood tests.  This level of anti-gluten antibodies also causes measurable damage to the lining of the intestines as seen on biopsy samples taken during an endoscopy (the "gold standard" of Celiac diagnosis).   Since you have been experimenting with whole wheat bread in the past year or so, possibly getting cross contaminated in a mixed household, and your immune system is still so sensitized to gluten consumption, you may want to go ahead with the gluten challenge.   It can take two years absolutely gluten free for the immune system to quit reacting to gluten exposure.   Avoiding gluten most if the time, but then experimenting with whole wheat bread is a great way to keep your body in a state of inflammation and illness.  A diagnosis would help you stop playing Russian roulette with your and your children's health.      
    • trents
      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases of testing, the blood antibody tests and the endoscopy with biopsy.  There is the option of genetic testing to see if you have one or both of the two genes known to provide the potential to develop celiac disease. It is not really a diagnostic measure, however, as 30-40% of the general population has one or both of these genes whereas only about 1% of the general population actually develops celiac disease. But genetic testing is valuable as a rule out measure. If you don't have either of the genes, it is highly unlikely that you can have celiac disease. Having said all that, even if you don't have celiac disease you can have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not involve and autoimmune reaction that damages the lining of the small bowel as does celiac disease. Both conditions call for the complete elimination of gluten from the diet. I hope this brings some clarity to your questions.
    • McKinleyWY
      Hello all, I was diagnosed at the age of 2 as being allergic to yeast.  All my life I have avoided bread and most products containing enriched flour as they  contain yeast (when making the man made vitamins to add back in to the flour).  Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat gluten free bread with yeast and have no reactions.  Obviously, we have come to believe the issue is gluten not yeast.  Times continues to reinforce this as we are transitioning to a gluten free home and family.  I become quite ill when I consume even the smallest amount of gluten. How will my not having consumed breads/yeast/gluten for the better part of decades impact a biopsy or blood work?  I would love to know if it is a gluten intolerance or a genetic issue for family members but unsure of the results given my history of limited gluten intake.   I appreciate the input from those who have gone before me in experience and knowledge. Thank you all!
    • trents
      I know what you mean. When I get glutened I have severe gut cramps and throw up for 2-3 hr. and then have diarrhea for another several hours. Avoid eating out if at all possible. It is the number one source of gluten contamination for us celiacs. When you are forced to eat out at a new restaurant that you are not sure is safe, try to order things that you can be sure will not get cross contaminated like a boiled egg, baked potatos, steamed vegies, fresh fruit. Yes, I know that doesn't sound as appetizing as pizza or a burger and fries but your health is at stake. I also realize that as a 14 year old you don't have a lot of control over where you eat out because you are tagging along with others or adults are paying for it. Do you have support from your parents concerning your need to eat gluten free? Do you believe they have a good understanding of the many places gluten can show up in the food supply?
    • Peace lily
      Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.