Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutened... But No Idea How And When?

shimo

By shimo
in Coping with Celiac Disease

Recommended Posts

shimo Rookie
shimo
Posted

Hi there,

I guess I've been glutened because my symptoms have somewhat restarted lightly (D, few cramps and big time irritability).

I haven't had anything new, really. I have been extra careful with everything I eat.

The only things I have added to my diet are cookies from Schar, and also a few other things from them such as pasta (I used Glutano only until now and was feeling fine).

Any idea? I did not have anything not gluten free, seriously. Actually I do not have anything at home that is not gluten free. I got rid of everything. Plus I do not eat out at all. I only drink coffee outside.

My doctor also prescribed me a few vitamins and as he believes I might also have bacterial overgrowth, I'm taking pills to oxygenate the whole digestive system, digestive enzymes and a few others that I really do not know what they are for (i take 8 pills per meal total). Now I presume he knew what he was doing, most of those pills say they are fine for celiacs and those that have no information on that whatsoever say that they are free of allergens...

Can one of those pills be doing this?

What has been the most stupid anti-gluten reaction you have had? I heard we can get a reaction without even eating it, is this true? I just want to know what to avoid...

Thanks a lot!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


wowzer Community Regular
wowzer
Posted

It wouldn't hurt to check the medication and make sure that it is gluten free. The pharmisist can do it for you or you can check www.glutenfreedrugs.com

loco-ladi Contributor
loco-ladi
Posted

I would check the pills yes, but also concider even if you only are drinking coffee outside home that still poses some risk, those little doughnut crumbs that everyone else left go everywhere. Also check shampoo, hand cream, lotions, toothpaste........ you may have done this before however someone may have changed their "recipe" I would concintrate on any "new" bottles you have opened recently.

FootballFanatic Contributor
FootballFanatic
Posted

I'm going to have to half-disagree with what wowzer said. Don't call your pharamacist, sure, some may go out of their way to call the manufacturer, but I called my pharmacist who said everything I was taking was gluten free, I have found out in the past week that 2 of those drugs are for sure not gluten free but only from calling the manufacturer.

I am about to make a posting about this in the "Post-Diagnosis" section....Since it's the weekend the pharmacutical companies and the doctor's offices are closed (so I have to wait for tomorrow to find an alternative for mine) I'm feeling crappy due to not taking it, but I know it's not safe so I'm calling first thing in the morning.

darlindeb25 Collaborator
darlindeb25
Posted

I had a pharmicist tell me he had no idea what gluten free was and that he didn't have the time to bother finding out. His boss reprimanded him for that attitude and told me from now on I would never have trouble with him again, yet now, I do not trust him. I will never use that pharmacy again. I would never trust him to actually find out if the product was safe for me. I have a different pharmacy now and he is very good with me, always very helpful, yet I do always research the medicine myself first. It is our responsibility to take care of ourselves and if we truly want to be safe, then we need to check with the maker of the drug. It's sad, but sometimes people will tell you anything, just to get you to pay and leave, they just do not understand the seriousness of the situation. Even your doctor probably has no idea if the medicine he is giving you is safe, unless he is a celiac doctor.

wowzer Community Regular
wowzer
Posted

I have had great luck with my pharmacist checking. I had her check 2 different ones. They told her they couldn't guarantee they weren't gluten free on one which I quit taking. The other was a cream that I was using for the itching and they said it wouldn't matter being a cream. The pharmacist checked further and did find out that it was safe to use.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scatterbrain
      - Scatterbrain replied to Scatterbrain's topic in Sports and Fitness
      3

      Feel like I’m starting over

      Thanks to those who have replied. To Cristina, my symptoms are as follows: Dizziness, lightheaded, headaches (mostly sinus), jaw/neck pain, severe tinnitus, joint stiffness, fatigue, irregular heart rate, post exercise muscle fatigue and soreness, brain fog, insomnia. Generally feeling unwell. To Trents, We didn’t do any of the construction but did v...
    2. Kirita
      - Kirita replied to Kirita's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Recovery from gluten challenge

      Thank you so much for your response! I have a follow-up appointment with her pediatrician next week, and also an appointment with her pediatric GI Dr. Your message gives me some ideas for questions to ask the doctors. My daughter went strictly gluten-free in January following her first endoscopy so I’m guessing her diet is pretty solid. She is compliant b...
    3. Scott Adams
      - Scott Adams replied to Kirita's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Recovery from gluten challenge

      While the positive endoscopy confirms the diagnosis, it's important to be skeptical of the idea that your daughter will simply "bounce back" to a pre-challenge state. The gluten challenge was essentially a controlled, prolonged exposure that likely caused significant inflammation and damage to her system; it's not surprising that recovery is slow and that...
    4. Scott Adams
      - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Brain fog

      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium. Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend...
    5. trents
      - trents replied to Scatterbrain's topic in Sports and Fitness
      3

      Feel like I’m starting over

      Were you doing any of the new home construction yourself? Drywall compounds and adhesives used in construction have been known to cause problems for some celiacs.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,285
    • Most Online (within 30 mins)
      7,748
    Kenny Waites
    Newest Member
    Kenny Waites
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scatterbrain
      Feel like I’m starting over

      By Scatterbrain · Posted

      Thanks to those who have replied.  To Cristina, my symptoms are as follows: Dizziness, lightheaded, headaches (mostly sinus), jaw/neck pain, severe tinnitus, joint stiffness, fatigue, irregular heart rate, post exercise muscle fatigue and soreness, brain fog, insomnia.  Generally feeling unwell. To Trents, We didn’t do any of the construction but did visit the job site quite often.  While getting the old house ready we stirred up a lot of dust and I’m sure mold but haven’t been back there for over a month.
    • Kirita
      Recovery from gluten challenge

      By Kirita · Posted

      Thank you so much for your response! I have a follow-up appointment with her pediatrician next week, and also an appointment with her pediatric GI Dr. Your message gives me some ideas for questions to ask the doctors. My daughter went strictly gluten-free in January following her first endoscopy so I’m guessing her diet is pretty solid. She is compliant but also reliant on others to make her food (at school and home) but she didn’t have this problem prior to the gluten challenge when she went strictly gluten-free. It really makes sense to me that the gluten challenge inflammation hasn’t healed and I will be asking her doctors about nutritional issues. I ask for anecdotal stories because the research surrounding the gluten challenge seems to be inconsistent and inconclusive (at least what I’ve been able to find!). Thank you so much for your response!
    • Scott Adams
      Recovery from gluten challenge

      By Scott Adams · Posted

      While the positive endoscopy confirms the diagnosis, it's important to be skeptical of the idea that your daughter will simply "bounce back" to a pre-challenge state. The gluten challenge was essentially a controlled, prolonged exposure that likely caused significant inflammation and damage to her system; it's not surprising that recovery is slow and that a subsequent exposure hit her so hard. The persistent fatigue is a major red flag that her body is still struggling, potentially indicating that the initial damage hasn't fully healed or that her system is now in a heightened state of reactivity. Rather than seeking anecdotal timelines from others, her experience underscores the critical need for close follow-up with her gastroenterologist to rule out other nutrient deficiencies commonly caused by celiac flare-ups, like iron or B12, and to consult with a dietitian to scrutinize her diet for any hidden sources of cross-contamination that could be perpetuating her symptoms. The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs.      
    • Scott Adams
      Brain fog

      By Scott Adams · Posted

      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Brain fog, like other celiac disease symptoms, does improve after you to 100% gluten-free, and supplementation will also help.      
    • trents
      Feel like I’m starting over

      By trents · Posted

      Were you doing any of the new home construction yourself? Drywall compounds and adhesives used in construction have been known to cause problems for some celiacs.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.