Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Depressed....

FootballFanatic

Recommended Posts

Offthegrid Explorer
Offthegrid
Posted

Re: weddings. We are getting married in February, and we are having the reception at a fire hall to save money. Well, guess what -- they don't put anything on the meat, so that's already gluten-free. The salad will just have croutons on the side, and I will have a box of gluten-free croutons for me, my brother and my aunt. We have a gluten-free cake maker. Virtually everything there will be gluten-free! I believe we may still serve rolls, but I will make sure they have a butter only for my brother and aunt (they will be at different tables) so that their butter doesn't get contaminated.

Now, onto people saying it's "easy" ....

I had people tell me it would be easy, and that was maddening. Absolutely maddening. I know they were trying to be helpful, but it was so infuriating because I just wanted to rattle off all the foods I could no longer have. Yeah, I'd like to see any one of my friends volunteer to do gluten-free for even a week to see what it's *really* like.

I was just miserable for months. The sight of someone else eating a cookie was make me want to cry at times.

But I'm finally getting over it. I mean, I know how to make delicious gluten-free cookies. I can cook. My world isn't over. And there's still gluten-free goodies I can eat.

Hang in there. We're all listening and we all know what it's really like. No one else can. And if someone tells you it's easy, challenge them to go gluten-free for one week.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lilypad23 Explorer
lilypad23
Posted
I don't think that I have been glutened but I just got hit hard with depression. I have been under very much pressure lately, so I think I was letting it build up and now that my life is slowing down reality is sinking in.

I just feel so much like this disease has taken over my life, every aspect of it, and outwarly I try to pretend like I see the positives, but I still feel bad, there is no way I'm still taking in gluten, and I just hate that I am going to have to be so careful for the rest of my life...

I don't know what to do to get myself out of bed anymore, I've ruined my friendships, I'm a million miles from home in school, and I don't even feel like going back anymore because it's full of memories I'll never get back.

I'm tired of pretending like this is easy...I don't want people to tell me it's easy anymore, I don't want to be compared to others anymore. The people who try to understand me, try by asking people that they know with Celiac Disease, and while it is a nice gesture I would like them to ask me, and listen to the things that I do say.

I want my old, convenient, fun life back.

From your signature, it looks like you found out about this in July. That's when I found out about this too. It really is hard right now, but I know that eventually it will get better. Right now, I'm feeling about what your post describes. Its hard but we do have to remind ourselves of the positives and know that we will get through this. Just know that you're not alone in this and I hope that you start to feel better. :)

Rya Newbie
Rya
Posted

Ah the wedding. My boyfriend is great in my life as well and is also very supportive. I had thoughts about who my bridesmaids would be at my wedding only six months ago and couldn't think of a one. Now I could name five or six. You never know what turns life will take. And if neither of you have that, then more attention on the two of you! Take your mom to have a spa day before the wedding and indulge. Who needs tradition?? I've seen weddings with no bridesmaids or groomsmen. It is about the two of you and your love for each other, nothing else.

My boy and I also thought about cakes and such. Before I realized CC was such an issue we thought about doing the top layer gluten-free, now that is a no-go. It will be on a separate table with a no-touch sign :P . But I only need that first bite he feeds me, you know?

And there is always eloping... :D

If you need any help with things to eat or recipes feel free to PM me, I will give you anything I can. I have a great chocolate chip cookie recipe I make when I cry looking at the bakery some days. Let me know if you want it!

Chin up? :) You can always try the chin up in a couple of days if you don't feel like it at the moment too. Baby steps.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,951
    • Most Online (within 30 mins)
      7,748
    SY8
    Newest Member
    SY8
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jacki Espo
      Covid caused reoccurrence of DH without eating gluten

      By Jacki Espo · Posted

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
    • DebJ14
      Does anyone here also have Afib

      By DebJ14 · Posted

×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.