Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Am I At The Right Place?


district519

Recommended Posts

district519 Newbie

recently i have been getting these itchy spots on me, pretty proportional on the body ( 3-4 on left arm ) ( 3-4 on right arm ) and so on... itchy guys, annoying!

Cant sleep at night untill really really late 4-5am

when i do sleep i wake up every 2-3 hours find my self wide awake doing whatever, eating, music, tv, going for a ciggaret.... pissing me of really....

the craziest part is every now and then i get some f'en messed up dreams very real! like i'm being killed by demons, satan pretty creepy, usualy wake up pray and fall asleep.

I learned to control the dreams when i was younger i got dreams like this with demons and satan, and screamed really loud, but learned to control them.

Sometimes i sleep walk, for instance my mom said i went in her room while she was sleeping took her blanket off her and i asked her what she was doing? she said she tried talking to me and nothing, and that i really creeped her out.

i do eat corn, starch anything that includes gluten.... could this be why?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

I would go to a sleep clinic to find out what's going on.

Have you seen a doctor about this?

district519 Newbie
I would go to a sleep clinic to find out what's going on.

Have you seen a doctor about this?

nope havent seen anyone, i made an appoitment for tomorrow... ill let you know what he sais

district519 Newbie

well he said it not celiac, he didnt do any blood tests or nothing, i know from research on my own it has to be celiac..

he gave me meds something called APO-CEPHALEX / CEPHALEXIN 205mg / ORNG/OBL

he said if these itchy dots dont stop growing by monday to go see him again.mmmm

  • 2 weeks later...
byrmanson Rookie

If it were me, I would do the gluten free diet correctly for a few weeks and see if you find positive results. That or seek out your own tests from a lab. However, start with the obvious... go to a sleep lab if this continues?

YoloGx Rookie
If it were me, I would do the gluten free diet correctly for a few weeks and see if you find positive results. That or seek out your own tests from a lab. However, start with the obvious... go to a sleep lab if this continues?

I have trouble sleeping too. Have all my life. Getting to sleep is rough. I figured out years ago to just keep busy til I drop. Of course this makes it hard to deal with the "real" world. Great for doing art. However I do both worlds since I manage a business--though by being the boss it means I don't have to always be there in the morning. Believe it or not having this condition has made me emphasize getting down to practicalities as quick as I can as well as using and developing my imagination. I am very good at creating strategies and figuring out problems. Probably from all that time I spent being ill. It gave me plenty of time to think about things and get down to basics.

I want to try the melatonin and see if it works. Definitely for me taking vitamin D (cod liver oil) and especially important co-enzyme B vitamins and L-glutamine with water on an empty stomach does wonders. Also anti scarring stuff like nattokinase and/or bromelain/papain combos really help. The co-enzyme B-vitamins stopped most of the leg twitching and pain. However due to an old injury I also do the nattokinase bromelain/papain plus if its bad hatha yoga which calms the mind and body.

An anti gluten diet is a matter of course. I didn't realize though that such small amounts like being around gluten cat food could cause a sleep disturbance. I will definitely have to check on this. Currently I don't touch the stuff but do pour it and then mix in some brewers yeast/garlic stuff with a spoon.. Its hard to always get completey gluten free cat food. Any suggestions?

I have found that taking herbs too like dandelion root and yellow dock root alternated with oregon grape root help the body detox. I think celiac creates a condition that leads to general toxicity which is hard on the liver as well as the intestines and downwind the kidneys. Toxicity creates bad dreams believe you me. As well as ear ringing and having visions. I used to have bad ear ringing but for me using detox herbs and change of diet plus exercise made it go away. It took the co-enzyme b vitamins however to help feed my nervous system and deal with digesting basic carbs and proteins--without which I was rapidly deteriorating despite all my best efforts with diet and herbs etc.

About the ear ringing--change the diet and detox yes. But for some its also caused by a wax build up. Not my problem though it is for a friend of mine who also has celiac.

Things that soothe and heal the gut lining are also good--like marshmallow root and slippery elm and pao de arco (this last also a good anti fungal).

Eat early in the evening too rather than late.

Doing art of course is great. Sounds like you could use something to focus your imagination on. Poetry has also helped me. I often write or do art inspired in the night especially if life will permit or even when it doesn't. You can direct what you decide to focus your imagination on.

Jungian psychology and even re-evaluation co counseling have been of great help to me too. Needless to say having gluten intolerance just doesn't often spring up out of nowhere. Often the family and forebears are involved having created a whole line of possible crazy intolerant behaviours and fears out of ignorance of this condition. So the psychological and emotional effects need to be dealt with as well as the physical food.

Doing protective grounding also sounds like it might possibly be valuable. It has been so for me. There are books on psychic protection that are useful. Also things like the Berkely Psychic Institute could help. Simply imagining a grounding cord from your lowest chakra to the center of the earth and letting all anxieties and all that is not you (other people's energy or entities etc.) go down the grounding cord to get burned up by the great mother earth's core and released to the universe. Similarly imagine a silver cord going from your highest chakra to the universe and pulling in clean energy from All That Is or whatever it is you believe in as Positive Light Energy. Ditto with pulling in the Clean Earth Energy from the lowest chakra. Imagine all that energy cleaning out and filling your auric field and then let the excess go down your grounding cord. Then imagine protective roses or whatever keeping guard at the edge of your auric field and then periodically do the grounding again. I often do this when I am driving but sometimes do it at night. Really I find it helps. You might too. That over developed imagination is usually good for something I find after all.

Hope some of this helps!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748

    Tara M
    Newest Member
    Tara M
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.