Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How To Write To A Company.


angel-jd1

Recommended Posts

angel-jd1 Community Regular

Here is the letter that I use when I write to companies to find out the gluten status of things. I thought it might help some of the newbies out there who are just beginning their research.

-Jessica :rolleyes:

The letter comes from this site: Open Original Shared Link

Dear ,

I have celiac disease and am unable to eat foods with gluten in them. Gluten can be found in wheat, rye, barley and oats and their byproducts. Celiacs do not have problems with corn, rice, tapioca or potatoes. Can you list for me foods that you make which are gluten free? Things to look out for and consider are foods containing any kind of:

whole grain wheat, rye, barley or oats

regular flour (white, unbleached or whole wheat)

rye flour

oats or oat flour

malt

I also need to be concerned about ingredients which may have a variety of sources, like:

modified food starch (can your supply come from wheat, rye, barley or oats?)

natural flavors (if HVP is included it may come from toxic grains)

spices (which often use flour as an anti-caking agent without listing the flour)

vinegar (if its source is one of the forbidden grains, we prefer to avoid it)

alcohol (same as vinegar)

caramel coloring

Finally, another concern is the environment in which the food is manufactured and packaged. We need to know if a food is produced on the same line as any other item which contains any of the above problem foods, since even trace amounts of gluten damage a celiac's body, and cross-contamination would be an issue in this situation.

Thank you in advance for your careful research of these issues, and I look forward to hearing from you!!

Sincerely-

  • 2 years later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ms-sillyak-screwed Enthusiast

I found this post at the last page of this thread. I'm going to reread this cause it's a great idea.

I just found an alarming fact about Roche drug company.

The last few days I've been calling around to different drug companies to find gluten dairy soy corn free drugs. I was shocked when ROCHE told me they can NOT guarantee that their drugs [with dies in them] colored pills are not cross contaminated with gluten. She told me the companies they buy the dies from run the same lines that have gluten on them. She used words like strong prob·a·bil·i·ty!

So it really makes me wonder about quality control of things as simple as our pills. And yes, they are to clean the lines between products but we no longer live in the 'OLD AMERICA' before 2000 when life was different and the truth was told and people did their jobs with pride.

If your pills are colored and from Roche and you question your gluten intake, it might be where it's coming from.

I'd like to send this letter to some of the drug companies and find the truth. If anyone has a list of the big drug companies we can begin a list here.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,175
    • Most Online (within 30 mins)
      7,748

    Chels22
    Newest Member
    Chels22
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Heatherisle
      Daughter has started gluten free diet this week as per gastroenterologists suggestion. However says she feels more tired and like she’s been hit by a train. I suggested it could be the change to gluten free or just stress from the endoscopy last week catching up with her. Just wondering if feeling more tired is a normal reaction at this stage. I suppose it’s possible some gluten might have been present without realising. Have tried to reassure her it’s not going to resolve symptoms overnight
    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
×
×
  • Create New...