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Finally Got A Biopsy

Guest Chrisbee

By Guest Chrisbee
in Dermatitis Herpetiformis

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Guest Chrisbee
Guest Chrisbee
Posted

I tried the new gluten free oats two weeks ago, and immediately got sick and was sick for three days. I was so disappointed. A week later I started breaking out in blisters on my chest and abdomen, so I decided while I had the blisters, I would try to finally get a diagnosis. I ate donuts, pizza, crackers, bagel chips, and garlic bread for four days until I was so sick I couldn't stand it anymore. I spent the morning of the day of my doctors appointment in the bathroom, so sick I didn't think I'd be able to go. He thought for sure that I had dh, and took two biopsies, so we should know in two weeks. Today I'm so sore and my back hurts so bad, all I want to do is go to bed. Do you think that having the rash for two weeks and eating alot of wheat right before the tests will be enough for it to show up as positive? I've made myself miserable....I want it to be worth it!

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hayley3 Contributor
hayley3
Posted

I just wanted to wish you good luck on the test and that it is positive after what you went thru. Surely it will be positive. How long will it be before you get your results?

[

Guest Chrisbee
Guest Chrisbee
Posted

Thanks! I really hope that it's positive too. I had given up on getting a diagnosis, but my grand-daughter's gastroenterologist is pushing for me to. My daughter had a positive intestinal biopsy, and my 3 year old grand-daughter is now showing symptoms, but her first round of blood tests were negative, as all the celiacs and suspected celiacs in our family have been. Her doctor thinks it may help in her diagnosis if she understands how it presents in our family.

I go back to the dermatologist on the 23rd, but if they get the results back sooner they'll call.

This dermatologist is in a small town, and I was a little nervous that he wouldn't be familiar with dh, but he said he's diagnosed several cases!

hayley3 Contributor
hayley3
Posted

How long were you gluten-free? I forgot to ask.

Guest Chrisbee
Guest Chrisbee
Posted

I've been gluten free since March of '07. I had one slip-up when I tried to use some home-made salsa that I'd put up before going gluten free. I don't know if it was the vinegar I used, or whether my ingredients were contaminated with flour. Other than that, I've been super careful. Our whole house is gluten free. I have three children still at home, and all three are on a gluten free diet as well, and they're much healthier than they were before.

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