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Eczema

BabsCanada

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BabsCanada Newbie
BabsCanada
Posted

New to the board and not as well-educated as I should be!!

I saw a post where the writer referred to eczema as one of the reasons she suspected a child/family was suffering with celiac.

Is eczema related to celiac disease?

I've been tested for celiac (in about 1995) and got a negative result.

I do have some moderate stomach / bowel troubles, I am insulin-dependant diabetic, and I am at present covered head to toe with eczema. I've been treating it for about 6 months with various prescription creams, all hydrocortizone. It is only getting worse (although eczema has always been a problem for me in winter)

My dad is celiac, since 1995 (which was why I got tested). My mom and only sibling are also celiac. I was quite pleased in 1995! when I escaped the diagnosis (figuring being diabetic was enough), but now when I see eczema mentioned, I wonder.

Any input?

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seeking-wholeness Explorer
seeking-wholeness
Posted

Babs,

Have you had your eczema biopsied to make sure it isn't dermatitis herpetiformis? I have read that it CAN look similar to eczema in some cases. I have an 18-month-old baby who has trouble with eczema caused by gluten, and now that he has been gluten-free for a little over three months it is almost gone! He also had some eczema during his first year that was caused by dairy, but that quickly cleared up after I removed all dairy from his (and my) diet. Now, he can tolerate ghee (clarified butter) with no obvious difficulty, but I won't be reintroducing any other dairy products into his diet because I have a hunch that he and I are casein-sensitive as well as gluten intolerant.

Regarding having "dodged the bullet," so to speak, I wonder if Open Original Shared Link could ship a stool test kit internationally. Alternatively, you might want to pester your doctor to test you again (and make SURE he or she orders a test for TOTAL serum IgA as well, as a control test). With the strong family history and your own suspicious symptoms, it really does seem prudent to pursue a concrete diagnosis!

Good luck, and welcome to the board!

gf4life Enthusiast
gf4life
Posted

Babs,

One negative test result almost 10 years ago is not enough to rule out gluten intolerance. You may not have benn producing enough antibodies then, but may be having a worse reaction now. You should be tested again. With the strong family history your doctors shouldn't give you a hard time. Celiac can start at any age, and please do not let them brush you off simple becasue of the one negative test in 1995.

Your diabetes and eczema could both be caused by gluten intolerance, and although the diabetes may not go completely away it could be made less severe by following the gluten free diet.

Looking forward to hearing what the tests show after you have them repeated.

The tests should include the following:

*IgA Gliadin

*IgG Gliadin

*IgA Endomysial and/or IgA Tissue Transglutaminase

*Total Serum IgA

And I do believe Enterolab can ship to Canada. You can find out more aobut their tests at Open Original Shared Link .

God bless,

Mariann :)

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      High DGP-A with normal IGA

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    • rei.b
      High DGP-A with normal IGA

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      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
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      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
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      High DGP-A with normal IGA

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      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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