Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Please Help! Need A Doctor In Minneapolis/st Paul Area - Thanks!

devo

By devo
in Doctors

Recommended Posts

devo Explorer
devo
Posted

Hi all -

I have had digestive problems all my life and I'm finally realizing that what I am experiencing is NOT normal. I want to go to a doctor that is very familiar with celiac disease and will know what to look for. I live in the Minneapolis/St Paul, MN area. Any help would be very much appreciated, thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MNBeth Explorer
MNBeth
Posted

Oh, I wish I could help! I was diagnosed through Enterolab, not through my own doctor. Even the alt.med. dr. I see doesn't seem all that knowledgeable or up-to-date on these issues - especially non-celiac gluten intolerance, which is always the hardest to be taken seriously about. So I feel like I'm pretty much on my own. I'll be watching this thread! Hope you find someone!!

Beth

  • 2 weeks later...
ckkrepel Newbie
ckkrepel
Posted
Hi all -

I have had digestive problems all my life and I'm finally realizing that what I am experiencing is NOT normal. I want to go to a doctor that is very familiar with celiac disease and will know what to look for. I live in the Minneapolis/St Paul, MN area. Any help would be very much appreciated, thanks!

Hi! I have a little information for you. My daughter (20 y.o) just met w/ Dr. Shaukat at the Fairview Medical Center on the U of M campus, after being referred there from her primary Dr. b/c of high results on her Celiac panel of blood tests. Dr. Shaukat spent quite a bit of time w/ us discussing Celiac, the endoscopy procedure that my daughter will undergo and answering all of our questions. She took her time w/ us which was great. BUT, she explained some things in a way that is inconsistent with what I've read in books. (Altho' I am just beginning to learn about Celiac, so I'm no expert) For example: my daughter will not have to resume a gluten diet before the endo is done. (She had been gluten-free since she got the blood test results, and feels so much better. She was relieved to hear that she did not have to go back on gluten prior to the endo) But I've read that you must go back on gluten before an endo to confirm that the villi are affected. Shaukat said that you could also look for, hope I spell this right, eisoniphils, in the small intestine to check for Celiac, and not necessarily the villi. So, while I did appreciate her time with us at the office visit, I am not sure about her information....

Then I looked at the Fairview Medical Center website, and found the GI department. THere are 4 drs. there, and you can click on a bio of each one. There was one Dr., Christopher Shepela, who listed Celiac as a special interest. Shaukat has "gastroenterology" as her special interest. So Shepela might be a good person to see.

Within the last 2 months, 2 of my daughters tested high on a Celiac panel of blood tests. My younger daughter (16y.o) went to MNGI in the Pediactrics group. SHe had Dr. Arora. He is not the most "sit down and chat" type of Dr., but everything he told us was consistent with what we've read. He did her endo, just a few days ago. All went well and we are awaiting results.

So, those are the two (maybe 3) doctors I know about. Hope this helps you a bit! Take Care! CHar.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. RMJ
      - RMJ replied to Me,Sue's topic in Coping with Celiac Disease
      1

      Nausea

      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight. My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she...
    2. Colleen H
      - Colleen H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Stomach burning and neuropathy

      Hello I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet. Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I...
    3. sleuth
      - sleuth replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      Of course my son is on a 100% gluten free diet. I wish his symptoms were not debilitating as there are right now. He cannot work, even when a miniscule of cross contamination occurs. It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc. It's literally neurological inflammation. Not to be taken lightly here. We...
    4. Scott Adams
      - Scott Adams replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-F...
    5. Me,Sue
      - Me,Sue posted a topic in Coping with Celiac Disease
      1

      Nausea

      Hi all I was diagnosed Coeliac a few years ago and follow a gluten free diet. The list of foods that I can eat without a problem grows shorter on a weekly basis. [I also have diabetes and asthma also]. BUT the reason I am posting this is because I seem to struggle with nausea quite a lot, which is really quite debilitating, and I was wondering...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,837
    • Most Online (within 30 mins)
      7,748
    Juliane
    Newest Member
    Juliane
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • RMJ
      Nausea

      By RMJ · Posted

      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight.  My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she suggested it.
    • Colleen H
      Stomach burning and neuropathy

      By Colleen H · Posted

      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      Of course my son is on a 100% gluten free diet.  I wish his symptoms were not debilitating as there are right now.  He cannot work, even when a miniscule of cross contamination occurs.  It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc.  It's literally neurological inflammation.  Not to be taken lightly here.  We have sought out many other possible ways to cope during this window of time (8 months!!!!)  without success.   AN-PEP does not help and seems like studies on this are not well researched.  So, we are trying this out because research shows some promising results.  And, all participants showed no cravings afterwards, no signs of addiction.  The patch is different than the oral route such as smoking, vaping, gum, pouch, etc. 
    • Scott Adams
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By Scott Adams · Posted

      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-Free.
    • Me,Sue
      Nausea

      By Me,Sue · Posted

      Hi all  I was diagnosed Coeliac a few years ago and follow a gluten free diet. The list of foods that I can eat without a problem grows shorter on a weekly basis. [I also have diabetes and asthma also].  BUT the reason I am posting this is because I seem to struggle with nausea quite a lot, which is really quite debilitating, and I was wondering if others suffer from nausea, even if following a gluten free diet. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.